grieving – LongLegsBigCity

A Letter For Maliyah

March 4, 2024 6 Comments

In the early days of my grief, I started to read a book called Saying Goodbye. It’s a 90-day support guide to walk you through baby loss and grief. On Day 11, the task of the day was to write a letter to the baby you lost. When I read that, I thought it was crazy. I could not imagine what I could write. She was gone. What else was there? She’d never read it, she’d never grow up, she’d never know. And I barely knew her. But the more I thought about it, the more all of those reasons seemed like reasons I needed to write the letter. I sat with it for a few months. More and more thoughts came to mind. I thought of memories of her, memories of us, memories of happy times. Sometimes, I feel that since I know the end of the story, it negates all of the pages before. But as I struggled to try to remember the days of hopes and dreams, I realized that there were times of happiness. I didn’t want to forget them. In June, I started to write.

Today, in honor of Maliyah’s first birthday, I want to remember the happy and hopeful times. Since I never posted on my blog about those exciting moments, I am going to share my letter.

Dear Maliyah,

I have so many things to say. I have a lifetime of things that I will never get to say to you while you’re physically with me. A lifetime of memories, both the ones I had before you, the ones I had with you, and the years of memories I will have after, but that you will always be a part of. I like to think you’ll hear/read/see this somehow, wherever you are, hanging out with all of your friends, hopefully having a lot more fun than we are in your absence.

Usually, in a eulogy, people talk about their memories they have of the person who died. When I first sat down to write this, I thought I had none. You never existed on your own, you were always part of me. But then I realized, I actually am fortunate, because I have every single memory you have. We were one. My memories of you are your memories too. For every second you existed, you and I were together. While I wish you grew up and had your own life and memories of your own, experiences, friendships, romantic partners, you will never have those things.

But during the time we were together, we had a lot of great memories. You were a world traveler. Your first place you visited was Sweden. I had no idea you were with me then, but your dad decided to be spontaneous and book a trip for the weekend. We ate meatballs and learned about the Nobel Prize. We saw Viking ships together, and danced and sang in the ABBA museum. The number one review of the ABBA museum said not to go alone, but I didn’t care, I went anyway. I thought I was there alone, but it turns out I wasn’t.

A few weeks later, after I knew you and I were on this ride together, we went to Australia. Together, we saw koalas and wild kangaroos, we watched as wombats came out at dusk. We saw the Sydney Opera House. We walked over the Sydney Harbor Bridge. We jumped out of a plane together. I wonder what you thought of that. Were you as nervous as me? Did you laugh when our tandem diver asked if we would have a beer after? I did. But you were still my little secret then, so I chuckled to myself. We were partners in crime. Together, we saw the Great Barrier Reef, one of the 7 natural wonders of the world. I remember feeling like I was The Little Mermaid, truly part of the ocean world. I wonder now if that’s how you felt about me, part of my world. Did you know that you would be part of my world forever?

We went all over the United States together too. We were in Los Angeles, we were in St. Louis, we were in Philadelphia, we were in Atlanta, and we were in Fort Lauderdale. You met coworkers, friends, family, and so many strangers. In all of those new places, I wondered if you would be friendly and extroverted like me, or thoughtful and intellectual like your dad.

At first, you were my little secret. I sent a photo of the pregnancy test to my friend. Those two lines were the first proof I had of your existence. But even before that, I had a feeling. I knew something was different and that’s why I took the test. Something changed in me, and I knew it would be changed forever. People say that when you are pregnant, your DNA makeup literally changes. I know my spirit has definitely changed, and maybe my physical composition has, too.

Slowly, I started telling people about you. I had more partners in crime, a friend who drank my wine at a birthday dinner so people wouldn’t notice. She ordered us a gin and tonic (hold the gin) during the Halloween pub crawl. Most of my friends had no idea you were hanging out with us during all of the important events of the fall. You were there at Halloween, while we watched the marathon, at the Macy’s Parade, during Christmas. I am usually a pretty good secret-keeper, but it was SO hard keeping you a secret.

I took pictures of us, but I didn’t post them. You and I had our own little world no one knew about. At the Macy’s Parade, there was a first-time balloon of a dinosaur and their kid little dinosaur. I had my sister take a picture of me and you, with the family of dinosaurs behind us. We took pictures at Christmas where your dad and I tried to make a heart at my belly. Right where you were. We were so excited for the next year to add a third to our matching pajamas tradition. I remember on Christmas Day I sat at the table and ordered us matching sets for 2024. And then at my friend’s wedding in Florida, when my best friend was pregnant too, I took a picture of the four of us. It would be the only time we all got to meet.

I wish I had real or mental pictures of you growing up and meeting and playing with my friends, laughing at their funny faces when you were a baby, or laughing at our old clubbing stories and rolling your eyes at us when you were a teenager and far too cool for us. The only memories I have of you and my friends are when they found out about you. I remember their excitement. I remember how they said they couldn’t wait to meet you. They bought you gifts and checked in on me (and you) often. I remember them thinking about how you would look and act, a combination of your dad’s big eyes, and my super tall self. I remember them joking about how some kids are no-screen kids, but you’d be an all-screen kid with a baby iPad because your dad lovesss his electronics so much.

I remember hating women who used to touch their bellies all the time, but it was so exciting to know you were in there. I refused to be “one of those people” in public, but I remember always feeling my stomach in the shower, making sure you were still safe in there, happy to be with your mom. I remember when I started to feel your kicks. It was really late in the pregnancy, and my doctor told me it was because of how you were positioned in my body. I only felt you moving around for a couple of short weeks. In hindsight, I think it was you protecting my heart. You knew that if I felt your presence for too long, it would be even more difficult to let go. I remember laying in bed at night feeling you dancing around, and putting my hand on my stomach to see if I could feel you from the outside and show your dad. Unfortunately, I never could. He never could. That used to make me sad, but now I prefer to think of you knowing, protecting his heart, helping him heal for the future. He never knew what he was missing.

Speaking of your dad, I remember the day I broke the news to him that you existed. It was his birthday. He loves when I write him little poems, and I used to write them all the time when we first were dating. I thought a perfect full-circle moment would be to write him a poem to tell him about you. I remember sitting across from him at dinner as he read the card. At first, he was confused, and then he was so excited that he cried. I remember him saying you were the greatest birthday present he could ever receive in his life. I remember the big hug he gave us. You should know your dad does not show emotion often, and definitely not in public. But your existence brought him to tears right there in the restaurant. Even while you were in my body, you had that huge power. You will always be that to me, the best gift ever.

I wish I could explain to the world how special you are. I wish I could tell them your favorite books, your favorite foods, your likes and dislikes. I wish I knew. The only thing I know is that you were in the safest place your whole existence. I was recently reading a text where someone signed it ILY. I Love You. I realized those letters are in both your name and my name. It was unintentional, but now that I know, it feels intentional. You had no enemies. Everyone who knew you, loved you. They loved the idea of you, they loved their hopes for you, and they will love you forever. Especially me.

Love,

Your mom

Last minute trip to Sweden, tiny little kanelbullar in the oven and we didn’t know!

Grief and Pregnancy Loss

To Post or Not to Post, That is the Question

November 28, 2023 2 Comments

It’s been months since I considered writing a blog about social media pregnancy announcements. It’s been since June 12^th, Maliyah’s due date, and the date we announced her existence (past tense) to the world. We did not make the decision to post about her lightly. In fact, months and months of discussions went into that post. If I’m completely honest, the conversation goes even further back, to October 2022 when we first found out I was pregnant.

Should we post, or should we not post?

If you are in your 20’s or 30’s, or if you have an Instagram or Facebook account, or if you just plain don’t live under a rock, you’ve probably been inundated with pregnancy announcements, gender reveals, birth announcements, or in some cases the hat trick – all three.

I am no stranger to social media, I have two TikToks, 4 Instagrams and 2 Facebooks. I used to post almost all of my meals to my stories. But with my pregnancy, I was terrified. This goes back to my post about superstitions, I was far too nervous to say anything on social media about my pregnancy at all and I didn’t want to hurt anyone. What if something went wrong? What if someone was struggling with fertility and my post made them cry? I posted exactly nothing about a pregnancy. In fact, I posted a blog in November where I talked about how my bucket list would need to go on hold “if” I got pregnant… but I already knew I was. I didn’t want to say anything and jinx it. I didn’t know what I would do about posting photos as I started showing, but I had already taken a step back from posting on my blog – that bucket list post was my ONLY post between October 2022 and July 2023. I figured I would do the same thing with Instagram and take a step back, or not post photos of myself. I posted a carousel of photos on Instagram from a wedding in mid-February where I was sort of visibly pregnant, but you could also have assume it was an unflattering angle or cut of the dress. I never said anything explicitly about it.

So, how do you announce your baby died, when you never announced she existed? Isn’t that crazy? Also, who wants to read about such a horrific loss? For some reason I felt like I wanted to tell people, but I couldn’t figure out why.

I had only one example to look to. I had a friend who had a pregnancy loss while I was pregnant. She posted about it as part of a larger social media post celebrating an anniversary. I was obsessed with that post. I read it 100 times. Eventually I asked her about it. I said, “how did you come to the decision to post this? And how did you decide when was the right time? What did your husband think of it?”

I asked that last question because Chris and I were not in agreement. He keeps things close to the chest. He doesn’t share anything about his personal life on the internet, and he certainly doesn’t share about such monumental and private things as this. I knew we disagreed, and we continued to have conversations about it.

I asked on multiple support groups what other people had done. Why did they tell people? Why didn’t they? When did they say something? Was it too late?

Some people said they needed to unannounce because they had already announced they were pregnant. We didn’t have this issue, since we never announced.

Some people said they announced to avoid questions about when/if they were going to have children. This was an interesting point I hadn’t considered.

Some people said they announced because they didn’t want people to assume their next pregnancy was a first pregnancy.

Some said they felt they needed to share about their loss because it was far too heavy of a burden to carry alone. This resonated deeply with me. As the days kept coming and going, it felt like the lead bricks on my chest were growing and it was too much for one person to handle.

But had we missed our window? She died two weeks prior. Four weeks prior. Two months prior. Would people even care? Should I share about her on our one-year anniversary, when I thought we’d have a growing family? Should I share about her on my birthday, when she was the only thing I could think about as my biological clock was ticking forward at a furious pace?

Here’s the thing: there’s no good time to tell the world about your dead baby.

I agonized over this constantly. Why did I feel such a fierce urge to share about her? I decided I needed to answer that question before I answered the timing question. I also needed to decide what I wanted the world to know.

I considered posting as a cautionary tale. I felt a sort of obligation to warn people. I had been healthy, I had a textbook, sickness-free pregnancy, I had no symptoms, and yet I almost died! I needed to tell people! I wanted to scream “CHECK YOUR BLOOD PRESSURE AND INSIST ON PERIODIC BLOODWORK” from the rooftops. Eventually, I decided that what I wanted to share had nothing to do with me. Yes, I think more education is needed, but I didn’t feel an obligation or responsibility at that point in my depths of depression.

What I wanted was a place in the world for Maliyah. I needed her to have a tiny corner of the internet that knew she existed. I needed people to know we loved her and would continue to love her. I needed people to see her tiny footprints and to understand she was a person. This was not just something that happened to me, this was a person who existed, and now she was gone. I wanted people to understand that Chris and I were not the same people anymore because the most important person in our world was no longer in this world.

For all of those reasons, I decided to post on her due date, the day that was supposed to be her birthday. I needed there to be a post only about her – a reserved spot just for her, on a day that was already reserved in my brain for her.

When I finally posted on Instagram and Facebook, I was relieved. She had a spot. Losing a child is so lonely. It feels like nobody in the entire world understands, or cares as much as you, and they never will. Even if only for one second of one day, I knew by posting on social media, people would see her name, know how much we cared about her, and perhaps pause for a moment and think about her. For Chris and me, those moments were all day every day, but for a brief moment in time, she would be on someone else’s mind.

But unlike when you post something amazing on Instagram and you sit there waiting to watch the likes and comments roll in, I couldn’t face the comments. I clicked “post” and immediately went to the gym where I locked my phone in a locker for 75 minutes. I was fearful of the pity. It wasn’t about me, after all. My therapist advised that “pity” could be reframed as “empathy” and perhaps people cared about me and that’s why they would extend sympathies. Maybe that was true, but I assumed as soon as I pressed “post,” there would be a game of telephone that started with, “OMG did you hear what happened to Emily?”

Overall, I was happy I posted about her on social media.

Meanwhile, I continued to see an onslaught of pregnancy and birth announcements on Instagram. People had so much hope and surety they would have alive babies. It seemed like there were ultrasound photos or onesies or bump pics every time I clicked on the Instagram app. I knew every permutation of these announcements:

A. The collection of onesies with the parents’ hobbies/sports teams/funny puns laid out on the floor.
B. The ultrasound photo
C. The letterboard announcing Baby Smith and a date (with certainty!) of when they would be born.
D. The family pet with a personalized bandana.
E. The living child wearing a “going to be a big brother!” shirt.
F. All of the above.

My gut-reaction every time I saw these was disgust and anger. How could the world keep spinning? How could people get pregnant so easily? How could people just… be sure their babies would be born alive? Didn’t they know what could happen??? How dare they have such confidence.

I started to think about this all the time and I realized the anger was just jealousy. Not jealousy about their babies or their pregnancies, I didn’t want their kids, I wanted mine! The one that was dead. I would scroll through the comments and see the hundreds of “congratulations” the “you’re going to be such great parents!” the “I can’t wait to meet them!” the “this is so exciting!” the “I knew it!”

I missed out on that. I missed out on all of the positive thoughts and excitement, and I found myself in a deep pit of regret. Why had I been so hesitant to share our joy? All I was left with was a cautionary tale and a hundred “I’m so sorry” comments or “I don’t know what to say” or “this is horrible.” And it was. And it is.

I felt sadness compounded on sadness. I try very much not to have regrets, but if I had to say one regret of my entire pregnancy it was this: I wish we had taken the opportunity to celebrate while we could. I was consumed with worry, and I didn’t allow us the space to have joy, and there’s no do-overs.

I had this regret almost immediately, even before we posted about Maliyah’s death. I wished for a redo. I wished we could have been happy before we were devastatingly sad. I remember calling my pregnant best friend and through snotty tears, telling her I saw a repost on her stories of her with a bump (which had also cried privately about) but I had noticed she hadn’t put anything on her feed. I was worried she was doing this to protect me. I didn’t want her to dampen her joy because of my sadness. It wasn’t fair to her. I hadn’t allowed myself to be happy (certainly not publicly) and I regretted it. I didn’t want her to make the same mistake. Of course, I said it was up to her if she wanted to mention anything on social media, it’s a personal decision, but I didn’t want her to base it on me. I told her not to worry about me seeing anything, and I had her account muted because I wanted to make the decision about when or if wanted to see it, but this was my issue, not hers, and I wanted her to feel comfortable sharing whatever she wanted to share.

When I spoke to another pregnant friend recently, she mentioned she wasn’t planning to post on social media about the baby. She knew many people in her life who struggled with infertility and had devastating endings to pregnancies, plus she had me. She said she didn’t know who else was hiding in pain as well, and she didn’t want to contribute to that. She explained that for those reasons, and because of her own “what-ifs,” she wasn’t planning a post. I told her I could relate, but then I admitted my regret to her. I told her how I wished I had made a different decision, but it was too late. I told her to bask in her joy and excitement because you never know when it will be taken away. She ended up telling me I convinced her to change her mind.

But I understood her hesitancy. I also had friends I knew who struggled to get pregnant, and friends who had lost babies. When I found out I was pregnant, I didn’t want to push my happiness in their face. And now, I have regret for that. For prioritizing my friends’ emotions over my own, and for letting my worries shroud my happiness in clouds of anxiety.

I want to make sure I’m clear here, I think it’s important to look out for your friends and to not do anything with intentional malice. But there are always people in the world who are struggling and may find your posts triggering, whether it is about babies, parents, siblings, work, food, really anything. As a human, you should always balance the feelings of others with your own. But you also cannot take responsibility for each person’s struggles. First of all, many may be invisible. There is no way to know if something you post may hurt someone with a silent struggle. It is also important to live life for yourself, and to take control of your own story, both in the real world, and online. While I regret not sharing about my pregnancy, I cannot change the past.

I have mentioned before that social media sometimes feels like a highlight reel, and for that reason, I plan to make a conscious effort to share authentically here, and link these posts on my Instagram. This blog has quickly become heavy and dark, which is mostly because a majority of my life in this moment feels that way. But I want to also make a commitment to myself to share the moments of joy. There are so few, and they can feel fleeting. They deserve to be celebrated.

You may have assumed this post would end with an announcement. Well, it’s not going to. You may also be wondering if this means I’ll share publicly and early about a next pregnancy, and I’m not sure. To be honest, that’s none of your beeswax. But I have a feeling I will do things differently, and I promise if I do decide to share anything, I’ll take you along for the ride.

Grief and Pregnancy Loss

‘Tis the Season

October 26, 2023 3 Comments

When you think of the saying “tis the season,” you think of Christmas, or the Thanksgiving-Christmas combo. But in my mind, the “season” starts with Halloween.

If you’ve been around here for a while, you know that Halloween is a National Holiday (caps-intentional) in my household. For as long as I can remember, I have loved Halloween. There are many photos of me as a young kid in various costumes, from a yellow M&M to a clown, to a gypsy (clearly before we cared about being politically correct). Then as a college student I had multiple costumes a year that bordered on ho-tastic. Thigh high stockings were often involved. As an adult, I came into my Halloween new self, and decided that full-body unitard costumes were my new love. I was a treasure troll (nude unitard), Smurfette (blue unitard), a Hershey Kiss (silver unitard), an Oompa Loompa (hand-dyed unitard), etc etc etc. When I moved to New York, we often had big group friend costumes like Wizard of Oz and Care Bears. Eventually when Chris came into the picture, I folded him into the group costume sometimes, like Winnie the Pooh (he was Christopher Robin) or Ninja Turtles (he was a slice of pizza). Some years it was just Chris and me, like when we were a gumball machine and a quarter, and Blue and Steve from Blues Clues.

My costumes often involved some sort of stomach stuffing or camouflage. As I mentioned last week, my body-dysmorphia contributed to my costume choices, and they often involved stuffing the stomach of my unitard. After many years of stomach-stuffing, it was ironic last year when I was actually pregnant on Halloween and I again wore a unitard but did NOT want to draw attention to my stomach. I hadn’t told any of my local friends yet, and in fact, during our annual traditional Halloween Pub Crawl, I told my first friend in NYC, so she could help be a decoy as I ordered gin and tonics, sans gin.

I remember that day so well. I woke up to put finishing touches on Chris’s and my costumes, Tweedle Dee and Tweedle Dum. I googled classic poses so we could do a side-by-side picture with the cartoons. I remember being relieved to find one picture where they were sort of leaned over. It was the perfect pose to hide a stomach and not cause any speculation. We headed down to the pub crawl and I somehow got my friend away from the crowd to tell her our news. She was so happy for us. I spent all day drinking tonic water and pretending to be drunk. At one point, another friend asked me why my drink was in a larger cup than hers, and I had the quick thought to tell her I had ordered a double. I was pretty proud of myself for coming up with that answer on the fly and presenting it in a believable way, but my brain was crystal clear, after all, I was sober and she was not.

I was SO tired, and I didn’t know if it was from being pregnant or from traveling back from Australia, and then to Los Angeles and back the previous week. All of my recent travel gave me a perfectly legitimate excuse to leave the pub crawl early. When I got home I was so relieved that our secret was still safe and I had made it through a day without anyone knowing.

I was already brainstorming costumes for the next year. I figured that I might not be at a pub crawl, but I definitely planned to have a family costume including a 4-month old baby. How exciting to have a new configuration for a group costume! I was researching ideas online of family costumes with babies involved. I had a running list of ideas. How naïve and positive of me to assume at 8 weeks pregnant that I would have a whole alive baby the next year? It seems crazy to think that that same girl now can’t even picture what it would be like to have a child that’s alive.

Thanksgiving brings even worse memories; I was 12 weeks pregnant. As you know, the Macy’s Parade holds a very important space in our family’s traditions. I’ve been attending since I was a baby. Last year, I went to watch with my sister. I was pregnant and she knew, but my parents didn’t know yet. It was 6 am and we were waiting hours for the Parade to start. Usually we stood and played games, but I felt so nauseous. I sat on the ground and munched on a protein bar and tried not to throw up. I was scared to drink water because I knew I would have to pee. I was planning to tell my parents the news the next day and my sister and I were predicting how it would go. I remember saying I thought they’d cry. I remember talking with my sister about how the next year I couldn’t watch the Parade in person because I’d have a 5.5-month old. She said I could definitely bring her, and we talked about how it would work out. Now Thanksgiving is around the corner and the thought of watching the Parade and NOT being nauseous makes me nauseous. Thinking about watching the balloons go by without a baby on my chest is so depressing.

December holidays bring another additional set of depressing thoughts. Chris and I had many conversations about what religion we would raise our kids. We decided we would incorporate both of our religions. The thoughts of a baby’s first Hannukkah and Christmas were so exciting. I thought about the ornament we’d get for our tiny tree. I purchased matching sets of Hannukkah and Christmas pajamas for our little family of three when they were on clearance after Christmas. I was 17 weeks pregnant, I was home free! (Can you see my eye roll through the computer?)

Sisters at the Parade (the Pillsbury dough boy wasn’t the only one with something in his belly!)

When we were in school, seasons were always a sign of change. Summer was time off, vacation, camp, trips to the pool. Then every August/September marked a new year. Leaves fell and we counted the days until Thanksgiving break. Winter in Florida marked a welcome reprieve from humidity, and a trip to the beach on Christmas Day. Once I moved to New York, Christmas was magical. The streets were lit up, the tree went up in Rockefeller Center, and there was always a possibility of snow. Then spring came and we were so relieved to have more light and shed our heavy jackets.

Now, every season sucks. One starts, and it sucks, one ends, and I remember how it sucked. I remember distinctly the week after Labor Day this year, I felt like I was stabbed a million times a day as all of the small talk revolved around the questions, “how was your summer?” and “what did you do this summer?”

I was supposed to be on maternity leave all summer. I was supposed to take care of a baby all summer. My summer was supposed to be magical and the start of a new chapter of my life. Instead, I was working and trying to get through every day one minute at a time.

Here’s what I wanted to hear in September, “Congratulations!” “Welcome back!” “Can I see a picture of your daughter?” I didn’t hear any of those things.

Instead, I don’t really remember the summer. It started with our first wedding anniversary… without the baby we were supposed to have. Then was my due date… without the baby we were supposed to have. Then our meet-iversary without the baby we were supposed to have. Then my nephew’s 1^st birthday, where I was reminded that he was supposed to have a similar-aged-cousin. Then was the trip Chris and I took to try and distract ourselves from the fact that we had no baby.

How was I supposed to say that to well-meaning colleagues asking about my summer? I didn’t say that. I said, “good, how about you?”

I naively assumed that summer would be the hardest season. I thought for sure that summer would be harder than any other season because my expectations for what I thought it would be were so different from what actually happened.

But as autumn begins, I realize that my entire life, all four seasons of every single year, is going to be different from my expectations. What a doozy of a thought. It’s overwhelming.

I saw a post from a grief account on social media recently that talked about the seasons you had with your loved one who died. In my case I got only two seasons with my daughter. And I have innumerable ones left without her. How do I get through them? Every change in seasons is just a reminder that I am still here, the world is still turning, and somehow I continue to wake up. There’s a book called “How Dare the Sun Rise?” While the subject matter of that book is completely different, I think that same phrase often. I wake up almost every day in shock that the world is still existing while I am barely alive.

I’ve been talking a lot in therapy recently about trying to stay in the present. The past is filled with things I can’t change, and the future is completely outside of my control, so the only thing I can do is be in the present, try to find an ounce of gratitude for it, and continue on. But it’s hard to stay in the present when the present is so hard.

There are certain pieces of the holiday season that I will continue to observe, but at least this year, I have decided I need to opt out of some things for my mental health. I cannot fathom creating a DIY costume for just my husband and me, knowing that a crucial part of our group is missing. There’s absolutely no way I can sign up to hand out candy to the kids in my building who will come up to the door in all of their adorableness with their parents, while our house remains empty of little giggles.

I will probably still go to the Macy’s Parade and I will try to channel my gratitude that I only have to rouse myself and not a baby at 5 am to get a good spot. I will also travel to family to celebrate Thanksgiving and Christmas. But it’s not going to be easy. The constant comparison of what I thought the holidays would be, versus what they are, is on a loop in my mind. The only thing I can do is be honest by telling people I expect it to be difficult, and then try to give myself grace when it is, indeed difficult. At 8 months post-loss, It’s becoming harder for people to understand why I am still so sad, but I hope that reading this blog helps some people understand. I write it for myself, but I also write it as a gift of communication. I have learned over and over again that people can’t read minds, so instead, I have put my thoughts online.

Wishing you all a happy(ish) holiday season.

Grief and Pregnancy Loss, Travel

Peru Part Uno

September 28, 2023 3 Comments

It has been a LONG time since I’ve written a travel blog, so I’m excited to bring you new, world-traveling content this week (and next!). My original plan was to split this blog into two: one where I talked about all of the positives about traveling, getting away with friends, exploring new places, seeing amazing scenery, eating local delicacies, etc., and one where I talked about the difficult co-existing emotions of going on a trip during this #veryhardyear. Then, I was chatting with one of my loss-mom internet friends and she said it was inspiring to see me “finding joy amongst the griefyness,” and that’s why I decided to write this instead as a fully integrated post. The good, the fun, the sad, and the complicated. However, a 2-in-1 post means this one is a pretty lengthy, so strap in. It’ll be posted in two installments, but stay tuned, I included pictures.

Let’s start at the top. Many months ago, my therapist asked me what used to bring me joy so I could try to find it again. I could barely remember, but I told her I guessed it was traveling with friends. She suggested I start small, like a brunch. But I didn’t want to go to brunch, and I didn’t want to see my friends.

In my past life, I traveled in the early autumn every year because I always had extra time off from work. 4 months ago, when I realized I wouldn’t be tied down with a baby this season, and when I realized I’d have three friends having babies in September (blog about this coming soon), I requested a week off from work mid-September. My time-off request was approved. A group of my friends started talking about possible places to go. My therapist was so proud of me. Many, many messages and ideas were sent back and forth. Then in July, I fell off the face of the earth. I deleted my social media and I stopped answering any texts. The trip planning ceased, at least on my end. I couldn’t think in advance even one day, nonetheless a few months ahead, and I couldn’t fathom booking activities when I was just trying to get through the current hour.

Then in August, since I hadn’t been on any group chats, I fired up a group message via text and asked if anyone was still up for going on a trip. I was honest about my lack of planning abilities. I said I’d still be down to travel, but that I just needed someone to tell me where to book a flight and that I’d be mostly useless on planning. Ideal travel buddy, right? Thankfully, my friend stepped up and suggested Peru. It seemed like the ideal location because there were nonstop flights from NY and FL and only a one hour time difference, which was great since we had about 9 days total and didn’t want to deal with jetlag. My friends booked flights. I couldn’t get my act together until the next day, when flights went up $150 but it is what it is. It’s just money #thingsprivilegedpeoplesay.

Anyway, we settled on Peru and we started planning. By “we” I mean, not me. My main contribution was asking other people for Peru recommendations and throwing them in a google doc. The one thing I did was book us an Airbnb for Lima. My friend liaised with a travel group in Cusco and did the extremely heavy lift of coordinating everything with the travel agency. The agency took care of everything from tours, airport pickups, train and hotel reservations, and anything else we could have wanted, like advice on how much to tip drivers. Did I mention this was all done 3 weeks in advance? We had extremely low expectations given that this was a slapdash, last-minute trip, and we were all extremely pleasantly surprised.

Our trip started with three girls (including me) in Lima, and we had zero plans. We had a few lazy days exploring the city. We slept in, left the Airbnb around 11 am, got iced lattes, and went on a few free walking tours. We explored the Huaca Pucllana pre-Incan ruins that are right in the middle of the city. We also did some solo exploring, first at the nearby John F. Kennedy Park. The strangest thing about this park is not that it is named for a US President, but that it houses hundreds of stray cats. One of the friends I was with is obsessed with cats, so of course me made multiple visits to the park. These are not just dirty street bodega cats, thankfully. There is an association, Gatos Parque Kennedy, that cares for, feeds, and provides sterilization for the cats living in the park. There’s even an adoption process in case someone wants to take one home. I don’t think you’re allowed to transport cats across the border, otherwise my friend may have tried to smuggle one home (she did not).

We went on a tour of the historic city including the Gran Hotel Bolívar, the Plaza de Armas, the House of Peruvian Literature, and the Santo Domingo Church. At one point, we passed a woman dressed as a zombie bride holding a dead bloody baby, and she had 3 other bloody babies at her feet. I’m not sure if anyone else on the tour noticed her, but I did. At first, I thought I was making it up so I brought it to my friend’s attention. I said “do you see all those bloody babies?” It was not in my head, they were indeed there, but they were dolls. At another point we went into the Church of San Francisco, where our tour guide said “see all those little toy cars by the statue of Jesus? Each one was put there by a parent for their dead child. Ok! Let’s move on.” He was a fast-moving guide. It took me a few moments to shift gears.

We ended the tour with a Pisco tasting in a souvenir shop, where we tried 8 types of Pisco, and then we were hustled into buying souvenirs (we got adorable pom pom hair ties).

The next day, we went on a free walking tour of Barranco, which started out with a bang because we had to take a local bus there with the tour guide. We were surprised to find out that the buses do not actually stop at stops, but instead just open their doors while moving and expect you to jump out. What an adventure. Thankfully we all survived.

Barranco is known as the artsy neighborhood of Lima filled with murals, street art, and lots of great local food. In Barranco, you can also find the famous Bridge of Sighs, where legend has it, if you’re able to walk across the bridge while holding your breath, your wish will come true. I won’t tell you my wish, but I bet you can guess.

Throughout my trip to Peru, you’ll see that eating was a main theme. Lima has become a bit of a food destination, and it’s often called South America’s culinary capital. While we didn’t do any of our fancy eating until the last few days of the trip (stay tuned!), we did a good amount of eating throughout the trip. On the front end of the trip, we ate a lot of street food. I was thrilled to be traveling with fellow adventurous eaters, so we tried and shared a lot of Peruvian delicacies, starting with antichuchos (beef heart). We also tried a classic dessert called picarones, aniseed-flavoured doughnuts with mashed squash. We bought a caramel-filled churro from the street, as well as an ice-cream-looking cone, but it was more like marshmallow fluff? Later in Cusco, we tried alpaca and guinea pig (I’ll save you the pictures). Alpaca tasted like bison, guinea pig was a little bit like rabbit. We knew we had to try the classic rotisserie chicken, but since we like to go big or go home, we went to a chicken place and got chicken three different ways. All three were amazing. We also sampled Inca Cola, which I hated, but I don’t like soda so I wasn’t surprised.

In between our eating, we got our steps in by exploring the city. We walked to the shoreline along El Malecon, a cliffside walking path. There’s a mall there as well, called Larcomar. We walked around and chatted while we sat on a bench and were approached by many locals who wanted to practice their English (and ask us for money). It was beautiful and peaceful. There was also a “Love Park,” which was dedicated on Valentine’s Day. It features a massive sculpture of two people embracing, and it’s surrounded by mosaics with romantic lines from Peruvian poems.

On our final day in Lima we decided to book an excursion to the Palomino Islands. According to TripAdvisor, they promised we would see Humboldt penguins and sea lions, and that we’d get wet suits and have the opportunity hop in and swim with them. The reviews were less stellar. Most of the recent reviews said that the sea lions were extremely stinky, and that the water was too cold and the sea lions wouldn’t get in. We decided it was worth a try anyway. I don’t know why, but I expected we’d see maybe 10-15 sea lions. I am not exaggerating when I say there were THOUSANDS. I’ve never seen anything like this in my life. We donned our wetsuits and were told to put our feet up in front of us to show the sea lions we were not aggressive. Soon enough, the sea lions were hopping into the water off the rocks and swimming all around us. It was absolutely breathtaking, and not just because they were smelly (they were). Our guide had goggles he passed around, and when I looked under water, they were all around us. Hundreds of them were swimming below and alongside us. It was insane. Truly one of the coolest experiences I’ve ever had. In theory, sea lions sometimes come up to you and kiss/lick your feet, but none of them did this to me. I was a little disappointed but also relieved because they are HUGE up close and intimidating. It was a real adrenaline rush.

In our $2 Uber back to our Airbnb to shower off the sea lion smell, I couldn’t stop thinking about how amazing the experience was, and I started getting soooo sad. My thought process went like this: “wow that was the coolest experience ever. I can’t believe I got to do that. I wish I hadn’t been able to do that. No, that’s not true, I’m really glad I got to do that. I had so much fun. I wish I hadn’t had fun. No that’s not true. I’m glad I had fun. But I wish I had a living child instead. If I had a baby, I wouldn’t have been able to do that. I’d rather have a baby. But I don’t get to choose. I wish I could choose. Why don’t I get to choose? Everything is so unfair. Why am I upset every time I’m happy? Why am I like this? Why can’t I just be happy? I hate who I am now. I don’t want this life.” Etc. etc. in circles. It’s really frustrating to be mad at myself every time I’m happy. Some may call this survivor’s guilt, but it isn’t really guilt. It’s more like a consolation prize. I’m happy I got a prize, but it pales in comparison to the real prize, the one I really wanted. And if I had a choice, I’d give up the consolation prize in a split second for the real prize. But I don’t get to choose, and that just fucking sucks. This was the first of many times during this trip that these spiraling thoughts happened to me.

There were many nights where I cried myself to sleep, but I am a pretty quiet crier, and I think mostly no one noticed even though I was sharing a room. Mornings used to be hard, back when I’d first wake up and realize my life wasn’t all a bad dream. But now, nights are the hardest, especially when I’m away from Chris, the one person who I feel truly understands what we have been through. Even he doesn’t always understand how I feel, but he understands best.

As we prepared to go to Cusco, which is approximately 11,500 feet above sea level, we were told to buy altitude sickness medication from a pharmacy and to start taking it one day before arrival. Since Manhattan is about 250 feet above sea level, I thought it would be smart to be prepared. However, as I googled the side effects, I realized that there may be some contraindications with my blood pressure medications I’ve been on since my pregnancy. I scrambled to message two of my doctors and hoped they would write me back. Thankfully they both did, but one of them recommended I down-dose my other meds, depending on what my blood pressure was reading at high altitude. I probably should have brought a monitor, but I didn’t. I spent the next 4 days worried I’d pass out in the street and end up in a Peruvian hospital. Thankfully, that did not happen, but the constant low-grade anxiety was not ideal. These are all just fun continuing repercussions of having a dead daughter, I guess.

The next morning, after taking two doses of altitude meds, we headed to the Lima airport to take a short, 80-minute flight to Cusco, where we would meet our fourth friend and begin our hiking adventures. Don’t get it twisted, we did not do the Inca Trail 4-day hike, we took a train to Machu Picchu. But we did do a good amount of walking and stairs over the next few days. We saw some of the most amazing landscapes I’ve seen in my life. I don’t usually go for blog post cliffhangers, but this one is already long, so get ready for Cusco and Sacred Valley adventures next week!

Can you see how many sea lions are behind us?

Grief and Pregnancy Loss

Death by a Million Cuts

August 17, 2023 4 Comments

TW: Pregnancy Loss

People sometimes ask or ponder what it feels like to lose a baby. There are thousands of metaphors on the internet. Grief is like the ocean, some days have large waves and some have small. Grief is like a black hole that never fills, but you build around it. Grief is like a big black ball in a jug, where the ball doesn’t get smaller, but as you heal, the jar gets bigger. I could go on and on. But most of these descriptions and similes have to do with grief, not with actually losing a part of yourself. That’s what losing a baby is. My daughter’s entire existence was within my own body, and then she was gone. If I could describe what it’s like, it’s like dying yourself, but not in one fell swoop in a large dramatic event. It’s like death by a million tiny cuts.

Obviously, there is one huge gaping wound, and I mean that physically and metaphorically. But the tiny cuts almost hurt worse because they are completely unpredictable, and it seems like they are always right behind a dark corner. Nowhere is safe.

The first cut came the same day I got home from the hospital. I went on Instagram, which is a mine field even on a good day. I saw a post from a friend who I knew was pregnant and due the same month as I was. Her lizard died and she was devastated. Her lizard. She posted a photo of it in her hand. Meanwhile it made me think about how little my baby had been. Would she have fit in my hand in an 8×8 box in a similar staged photo? What if I posted that on Instagram? This girl still had a baby in her stomach, how dare she be upset about a reptile???

The next cuts came from a doctor’s visit. Twelve hours after leaving the hospital, I had to go into the doctor’s office to have blood drawn for labs and to calibrate my meds. I was really hoping for a video appointment so I wouldn’t have to sit in a waiting room full of pregnant people, but the only availability was in-person, another tiny cut.

I was sort of prepared for the waiting room, and I was so glad Chris was with me, but I was fully unprepared for the next part. I was originally supposed to have my 26-week appointment that day and take a glucose test. Even though all of my upcoming appointments had been deleted from the system (thanks to my sister for handling this for me), there must have been a miscommunication. The nurse asked me if I drank the glucose drink. I said no. She asked if I already did the blood sugar test. I said, “I’m not doing that test anymore.” I couldn’t bring myself to say why. The nurse then handed me a packet of papers and told me there was information in there about “how my baby is acting and measuring at 26 weeks.” I looked to Chris and I said, “what the f*ck is going on??” I thought it was some sort of cruel joke. I was waiting for Ashton Kutcher to jump out from behind the door and say I was being Punk’d. I was speechless. Chris said, “we’re not pregnant anymore” and I burst into tears. Of course, the nurse felt horrible and ran out of the room. When the nurse came back with tissues, she handed me an EDPS survey to measure post-partum depression. Another small cut – how could I be post-partum with no baby?? She proceeded to take my blood pressure and of course it was sky-high.

Then, I had to get more blood taken (a physical small cut), and the phlebotomist asked which arm I preferred. My arms were COVERED in bruises, so I said, “how about I show you my arms and you can decide which is better.” She told me she was pretty confident in her skills and had seen some bad bruising in her time, but when I freed my arms from my long sleeves, I believe her exact words were, “damn girl! Those are impressive!” I had green, yellow, blue and purple gnarly bruises spreading from my tops of my hands, to my wrists, all the way up my arms almost to my shoulders. Looking at them through the phlebotomist’s eyes took me immediately back 7 days to my initial few minutes in triage where 8 nurses and doctors were running around trying to get a needle in my arm as fast as possible, trading off to the next nurse after each one failed. Over the next few months, every time I had blood drawn at the doctor’s office, that same phlebotomist remembered me and my bruises.

10 days later, more metaphorical small cuts came at the doctor. I checked my chart online first, to make sure it wasn’t showing a 28-week appointment or anything like that. Instead, it was coded as “post-partum,” which, technically, was correct. I was hopeful there wouldn’t be any mishaps. Again, I waited in a room full of pregnant people and sat in the corner with sunglasses on, listening to a podcast, trying to breath normally. Again, Chris was with me to try and allay a panic attack. We were called into the room, and the nurse started asking all these questions about my delivery, how I was doing with the baby etc. This time I was able to say out loud “there’s no baby” and of course immediately started crying and losing control of my breathing. Again, she felt awful. And again, she proceeded to take my blood pressure and it was sky high. When the doctor came in, I asked her to PLEASE put in caps in my chart that there was no baby and I started crying again.

Two days later, another tiny cut came in the form of stomach problems. One of the main side effects of the medication I was on was stomach issues. Thankfully, I hadn’t had any. Until now. It felt cruel that just as my body was starting to normalize and stop bleeding, it would let me down again. I canceled all of my weekend plans because I felt terrible. And to be honest, I didn’t want to go anywhere anyway. There is nothing worse for your mental health than when your physical health is bad as well.

I was pretty sure my doctor had to be sick of hearing from me, but I messaged her again asking how to fix my stomach. She wrote me back the next day and good news (irony) was that since I wasn’t pregnant anymore or breastfeeding, I could basically take anything I wanted. While I was thankful and hopeful it would work, I remember chugging the medicine and crying, extremely angry that I was even allowed to take it. Another cut.

At least my body wasn’t bleeding anymore, right? Wrong. My body just continued to blackmail me. Two weeks later, I was bleeding again. And again, I messaged my doctor, “is this normal?” Good news: it was “within the range of normal.” Bad news, the doctor said “normal” was that my body could be messed up and out of whack for three months. EYE ROLL.

I took two weeks off work, but I was going stir crazy at home. I wasn’t allowed to work out, which was another tiny cut. I decided I should go back to work because being alone with my thoughts wasn’t helping. But the second week back to work, I opened a Zoom and boom, it was a woman holding her 3-month-old baby. I felt like I was stabbed. In my job, I help people find new jobs, so she was lamenting to me about all of the terrible things that had happened to her in the past year, and why she wanted to look for a new job. All the while, she was bouncing and holding her (very alive and healthy) baby on camera. I’m not sure if she could sense my silence or uncomfortability but she added “of course having this little guy was amazing and the best part of our year.” Then she made some baby noises at him. At that point I just blacked out. I have no idea what I said to her. I was just trying to survive and get through the call. Eventually it ended and I gave up on work for the rest of the day so I could cry.

I haven’t even mentioned the endless tiny cuts caused by social media. As a 35-now-36-year-old female, I know a LOT of people getting pregnant. It felt like a new person every single day. A bump pic. A pregnancy announcement. I only have four cousins, and one of them had a baby the exact same day we lost ours. So of course I saw photos from them and from other cousins. Also, from my aunt and uncle, proud grandparents 3 times over. Just when I thought the social media barrage was done, all of a sudden somehow my baby cousin was 1 month old, and I saw more pictures and a reminder that it had been exactly one month since we lost our daughter. I realized that for the rest of that child’s life, every single milestone would be a reminder of what we don’t get to have. I immediately muted my cousin’s social media.

One of the issues with losing a baby so far along in a pregnancy is that people know and word travels quickly. Soon, it’s not just the people you told, but the people they told. That also means that you don’t necessarily know who knows or when it will come up. Danger is around every corner and you’re left with two options: mention it first and create a very awkward situation, or don’t mention it and hope it doesn’t come up or hope that they don’t know. A million cuts waiting to happen.

Two months to the day after I left the hospital, I was in the elevator in my building with a friend of my neighbor and her 4-year-old daughter. The doors closed and she excitedly said, “you’re having a baby!” I was stunned and momentarily speechless. Then I finally said, “I’m not.” And she said “Oh!” Another awkward silence. Then I said, “I was, but now I’m not.” Thankfully, the doors then opened on my floor, and I walked out.

In a twisted sense of fate, I had told my neighbor we were expecting the week before I went into the hospital. Of course. The universe has a sense of humor sometimes. When I came home from the hospital, I didn’t tell her what happened. I didn’t have the words to tell anyone, but I had asked a few friends and family to spread the news on my behalf. Of course, they didn’t know to tell my neighbor. After my elevator run-in, I walked into my apartment and collapsed on the couch to cry. It was so unexpected and that made it even worse. I was mad at myself for letting my guard down and leaving the house. Nowhere was safe, not even the elevator to my home. Worse, I knew I’d eventually hear from my neighbor once her friend wrote her and probably yelled at her, “how could you not have told me! I felt so bad!” I just curled up into a ball and waited for her text, another small cut.

Sure enough, an hour later my neighbor wrote to me and was so sweet and empathetic. She really couldn’t have written a better message, but it still wrecked me. She said she was so sorry and that she had no idea we were mourning a horrible loss, meanwhile she was picturing us nesting and getting ready for a baby on the other side of our shared wall. I couldn’t stop thinking about that: what could/should have been happening versus what actually was. I started thinking about what was happening with my other friends who were due the same month as me. Instead, in our apartment, it was just Chris and me and a silent house filled only with blank spaces where baby things used to be and punctuated by sounds of my cries instead of a baby’s.

The little cuts never stop coming. It’s the lake house my family booked for a week that was driving distance to New York City, because we thought we’d be driving with our baby. It’s the trips we can now take because we have no reason not to. It’s the weekend mornings when I sleep ‘til 11 am, and wake to an empty and silent room. It’s my friends asking to go to happy hour, and me knowing I can drink as much as I want because I’m not breastfeeding. It’s every friend who has a baby who will now be older than any future baby of mine for the rest of their lives.

I wish that this was a one-and-done loss, but unfortunately it seems like the gift that keeps on giving. Just when I think one cut has started to scab over and heal, I hit something else sharp, and a wound opens again. I hope a time comes when the cuts are fewer, and I have more healed scars than open wounds, but that time is not now.

A Letter For Maliyah

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To Post or Not to Post, That is the Question

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‘Tis the Season

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Peru Part Uno

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Death by a Million Cuts

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