Pregnancy After Loss

Welcome to the World Little Bro!

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He’s here!!! I have an alive baby (calling him “A” for now), and he is outside of my body. It is insane. I still sometimes wake up in shock.

I have so much to say but:

  1. I have no time to write it down
  2. I’m way too tired
  3. I probably make very little sense due to #2.

I knew I owed you all an update, and I have gotten a few thinly veiled “…how are you doing??” texts because people are afraid to ask pointedly, “are you and your baby alive?”

Here are a few short updates in bullet form because sentences are hard:

  • Labor and delivery went extremely smoothly. I think that was a gift from Maliyah because she knew I couldn’t handle any extra complications. We only had one very short scare (which of course sent me spiraling and sobbing), but otherwise everything was quick and uneventful.
  • I have definitely cried far more than A has. He was born with so much hair and I keep saying I think saltwater makes it grow because the first few weeks I was basically crying on it constantly.
  • The grief of being in the same hospital with an alive baby was a LOT.  Even just being discharged should have been joyful but it was complicated. Discharge for normal patients is at 11 am. This time we left with a group of new parents with babies in car seats, and a bustling hospital lobby. It was so starkly different from being discharged at 10 pm on a Sunday night, empty handed.
  • Things are BUSY with a baby but also extremely NOT busy. It’s hard to explain but if you ask me what I did in a day, I’ll say both “nothing” and “oh my god I’m so exhausted.”
  • I do NOT know how single moms do it. Because my husband went back to work after 2 weeks and he still comes home at night, and it is a CHALLENGE. And twin moms??? Good grief. I don’t know how. I said “moms” mostly because of feeding. Which brings me to my next point.
  • Breastfeeding??? What in the literal f&^% how come no one is talking about this unique form of torture???? It hurts if you do it, it hurts if you don’t. Everything hurts. Boobs. Shoulders. Back. Neck. Brain.
  • The stress of feeding is exacerbated by the fact that A was a little small. He was fine, and didn’t need any time in the NICU, which I was extremely grateful for, but he was almost a full pound smaller than I thought he’d be. I know the growth scans can be wrong, but I was thrown off. I immediately went to, “he’s starving. He’s dying.” Spoiler alert, he was not starving. But the adjustment of my expectations, especially when I am LONG LEGS BIG CITY and he was “tiny bean,” was hard.
  • I thought that the solo assignment was the pregnancy and the “keeping an alive-baby alive” was the group project portion. Why does breastfeeding make it feel like an extension of the solo assignment? I was not prepared for that feeling of, once again, being solely responsible for keeping him alive.
  • Being a loss mom makes this extra hard. On bad days I think, “my body already killed one baby, why wouldn’t it malfunction, not produce enough food, and kill another?” On good days I think, “there’s formula and he will be fine.” And then my husband can help.
  • Last year, I became acutely aware of just how tied my physical and mental health are. The body keeps the score. This is once again a reality with sleep deprivation. A social worker I spoke to said, at some point, you need to prescribe yourself sleep. It’s like a medication, you need it, your body needs it, and lack of it is cumulative. I can literally watch how my lack of sleep impacts my blood pressure and it’s true, sleep is necessary. We’re working on it.
  • Related… blood pressure. It’s stressful to have a human rely on you! I have been back to the hospital once since discharge, 7 days post-partum. Talk about continuing re-traumatization. Again, they took my blood pressure in triage. Again, it was severe range. Again, I had an IV put in. Again, they had the blood pressure cuff going off every 15 minutes. Again, they had to put the pulse ox on my middle finger because it had lighter nail polish. And this time, I was thinking, “now if I die, A has no mom.” Cue more tears. Thankfully they seem to have everything under control now and I’m a different dosage of meds and monitoring everything extremely closely at home.
  • I had a loss mom ask me how loving A is different than loving Maliyah and how I could love anyone more than Maliyah. It was such an interesting question that was difficult to answer with my currently-limited mental capacity. But the main answer is… it’s so different. With Maliyah, I always felt like she knew I loved her, and she couldn’t tell me otherwise. I had no way to reinforce that thought either way, so I just had to believe that what I was doing/saying/writing/feeling was enough. With A, it’s like… is it enough? Does he KNOW? If he does, why is he crying so much? There’s a live feedback loop that always makes me feel like I’m not doing enough.
  • My main struggle at the moment is trying to find a community. I love my loss moms so much. I loved my Pregnancy After Loss weekly support group. And now, I’m alone. I’m still a loss mom, but now I have what so many loss moms desperately want so I am not fully in the group anymore. And I am definitely not a normal mom. I’ve tried a little bit of convo with other moms and it’s good to know some of our worries are the same, but sometimes mine feel so much more serious because I immediately go to full catastrophe mode. Like A was small, and I could have just put him in newborn-size clothes, but I was terrified the fabric would somehow ride up over his face and he’d suffocate. I couldn’t sleep at all until we got him preemie clothes and a zipper swaddle (these things are life-changing).
  • Also related to not relating to moms, it’s really difficult for me to ask for or listen to advice. I know moms with living kids know better, they have done this before. They have feeding tips, sleep tips, etc. But I should have done this before. I should know what I’m doing because I should have an 18-month-old. But I don’t, I have a newborn and I never got to do any of this with Maliyah. Any time moms say, “this worked for me,” I hear, “I know better because my baby lived.” And the hard part is, they’re always right. I don’t know what I’m doing. This is new to me. But it’s hard to hear because I know how my story should have gone. It’s a lot of mental work to push down my thoughts of inadequacy and instead accept advice and tips.
  • At our first pediatrician appointment 3 days after A was born, the doctor said, “you’re both new at this, you’re both learning.” I try to channel that energy and remember that we are figuring this out together.

A is sleeping right now, which means I know I should be sleeping too, so I’ll finish this post off with a shoutout to my husband. He has been exceeding my expectations at every single turn. He has been watching out for both my mental and physical health. He was the one who pushed us to go back to the hospital when I needed to. He is the one who advocated for going to a post-natal retreat so we could relax and ease into this new life, and learn crucial skills. He has purchased (and assembled) all of the baby stuff in the house to make sure we are as well-stocked and comfortable as possible. This included finding a service that delivered preemie size diapers within an hour. He has been changing diapers and feeding A like a champion, and sleeping in shifts despite already being back at work. As I said before, I do not know how single moms do it, and I’m so grateful to have a partner in this and in everything. A few days ago, I said to him, “you know, I still love Maliyah,” and he said he does, too. We’re in a new chapter of our story, and I’m so thankful to have had him in my previous ones, and I’m excited to have him in my future ones as well.

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Pregnancy After Loss

It’s the Final Countdown

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Here we are. The final days of this pregnancy.

I apologize in advance for the stream-of-consciousness format of this blog, it is more of a brain dump than a thought-out post. This is the type of thing that usually goes in my journal. I have many pages of thoughts there too, and I’m sure I’ll add to that tomorrow, the day before I go to the hospital.

I want to start here: I am so glad that I have an induction date. Knowing there is a time at which I will no longer be pregnant is a godsend. We haven’t really told anyone my exact induction date, because I have enough stress in my mind about it. I can’t handle the other stress of people checking in, calling, and “seeing” how I am. Here’s how I am: STRESSED OUT OF MY MIND.

Here is a list of my worries:

  • Worry 1: The baby will somehow die inside me before my induction date. I am so hyper aware of his movements, and I live in constant fear that he is moving less, more, or differently. The main issue is, he tends to move in the morning or at night, so that leaves MANY hours midday where I am in a sheer panic.
  • Worry 2: I will go into spontaneous labor before my induction date. This is a fear, but not one of my top ones because I know I will just proceed immediately to the hospital. Do not pass go, do not collect $200 (more like pay $200,000 in medical bills). I have a friend who was scheduled for a c-section the same day as me, and she had her baby a week earlier. Her baby is doing great, so this helped allay this fear slightly.
  • Worry 3: Labor will take a long time because I’m being induced, and because it took 31 hours last time.
    • Note: my fear is not the time I will be in labor, but the fact that the longer amount of time I’m in labor, the more stressed I will be, which will raise my blood pressure, which will then force them to put me on magnesium sulfate again either during or after labor. Note on the note: my doctor warned me about this, and said I should be very vocal about my fears and my severe white-coat-hypertension so they can get ahead of it. She also recommended pain meds as soon as possible for this reason.
    • Second note, I’m not super afraid of mag because I was on it for four days last year, but it’s not fun. It means no food, it means nausea, it means feeling like your face is on fire, but your body is in hypothermia. It also means full body shivers, again, not the worst thing in the world if it prevents seizures, but not a good time.
  • Final Fear: I will die. I suppose this is rare because I’ll likely be in the hospital already and hopefully, they will be watching me carefully, but knowing it almost happened a year ago, it seems naïve to assume it won’t happen again.

Even with those worries, I’m still glad I have an end date. I feel like I have been pregnant for three years. I HAVE been pregnant for three years. I was pregnant 3 months of 2022. I was pregnant 2 months at the top of 2023. Then I was postpartum. The American College of Obstetricians and Gynecologists considers 3 months to be “postpartum,” also known as the “fourth trimester.” But some people consider individuals to be postpartum for as long as 12 months after birth. Then I was pregnant again for two months at the tail end of 2023. And I have been pregnant for 7, almost 8 months of 2024. I am ready to be DONE. Having an end date is good for my mental health.

That said, having an induction date looming is extremely nerve-wracking and intimidating. The idea that there is a legitimate countdown makes the minutes of every day move at a glacial pace.

I have been trying to create distractions for myself. Here are a few things I have done:

  • Laundry. Just when I think I’ve washed everything, I find more things to wash. Couch cushion covers. Our entire linen closet of extra sheets and towels. Purple Bear. Every eye mask we own.
  • Online shopped. It just so happens that Amazon Prime Day AND the Nordstrom Anniversary sale took place the week before my induction. If that wasn’t the universe saying, “Emily, you did the right thing by not buying a single thing for this baby until the last minute,” then I don’t know what it was.
  • Attempted to clean the area rugs we have. This was a fail, and the viral vacuum I bought from Amazon will be returned.
  • Checked social media constantly.
  • Scheduled dates with Chris and friends, including a comedy show, dinner, and multiple ice cream dates.
  • Finished the Medium and Hard Sudoku every day from the New York Times.
  • Went on walks if the temperature got below 84.
  • Watched Love Island.
  • Wrote this post.
Comedy Show Date Night

A lot of websites say to have your hospital bag packed and ready by the front door at around 32-34 weeks. I couldn’t imagine needing one, so I never packed one. Yesterday, at 37 weeks, 4 days, I finally started putting things in a bag. As I have been saying to people, within a week, this baby is coming out, dead or alive. So, I guess I should have a bag. Then again, last time I went to the hospital thinking I’d be there for 2 hours max, get some BP meds, and go to sleep at home. That evening, I brought a Stanley cup of water, my phone charger, one pair of contacts, and my Kindle. I was there a week. I live close enough to the hospital that my sister and husband were able to go pick up stuff for me. This time, knowing that, I’m not worried about forgetting anything.

People talk a lot about buying/bringing a “going home outfit” for yourself and the baby. How confident! I’m not sure my baby will be going home, nor am I sure I will be. Body bags for both of us are the “going home outfit” that floats around in my mind on my bad days. But last week I finally considered the other option, and got a cute outfit for him. Worst case scenario, he’s dead and I lost $9.99 and guess what, that’s the least of my worries.

It’s crazy to me that people plan their hospital stay. They assume things will go well and that they’ll be out in 2-3 days. This is still a mystery to me. I kind of assume we will face some complication or another (hemorrhage, emergency c-section, random postpartum blood pressure spike…) that will force me to stay there longer than the initially planned time. For that reason, even though I know it’s fine if I forget things, I am bringing whatever will make me feel comfortable or slightly less uncomfortable. I know they give a toiletry bag with travel supplies, but I want MY shampoo and MY facewash. What if I’m there for 6 days again? If facewash makes me feel more human, then I’ll bring it. Let them judge the size of my bag. I really DGAF. This is also why we have kept the exact dates of our hospital stay a secret. The pressure of giving updates is too much, especially if things are tenuous and the stay is longer than originally planned.

My mom asked me yesterday if we finally “thought we were going to have a baby.” I answered this easily: “yes.” The real question is… do we think we’re going to have an ALIVE baby. And my answer to that is, I’m still on the fence. It’s so hard to imagine things going well. Yes, even now. Somehow, he needs to get from inside my body to outside, and not kill me in the process. Every single night we say goodnight to him, and every single night we say, “please don’t kill your mama.” While we are so close to the finish line, for normal people, they may say the hardest part is yet to come. For me, this ENTIRE thing has been a hard part. I kept waiting to feel assured or hopeful, and that time never came.

I’m hopeful that being in the hospital will help. I’m hopeful that hearing his heartbeat on a monitor will calm me. Last time, when Maliyah died and they took the monitors off me before inducing labor, it was both a relief because they kept slipping off my stomach, and completely devastating, because I knew there was nothing left to listen to.

This time around, I’ve been having weekly non-stress tests (NSTs) for almost two months, and I find that I am the most relaxed hooked up to those monitors than any other time. Hearing his heart beating, and knowing that if anything goes wrong, I’m in the exact right place, there’s nothing like that sense of peace. Almost every time, I nearly fall asleep because it’s the one time I am calm. I am hopeful I will feel that way when I show up at the hospital for my induction.

One of my biggest worries that is unrelated to this pregnancy is that people will forget about Maliyah. I’ve talked about this in a few prior posts, first in the one about Invisible Grief, then again in No, It’s Not my First. Not only is this a concern for after he is born with friends and family talking to us as “new parents” or saying, “you’re going to be parents!” (already happened many, many times), but we also thought about this extensively for our stay in the hospital.

Chris and I attended a Childbirth for Pregnant After Loss Parents class, and one of the things they recommended was a sign for the hospital room door. I was hesitant to make one, because I know doctors and nurses rarely read my chart, so why would they read a door sign? That said, my support group coordinator (also a nurse) said it can be helpful for staff, and it may make me feel like at least I’ve done everything I can. Even if it only saves me retelling my story one time, that may be worthwhile. In what is bound to be a stressful situation, it made sense to try and reduce the stress any way I could, so we made a sign based on a few examples from the class and from PAL friends I met in my support group. I also felt that having a sign on the door could be a moment for passive education. Last year in the hospital, every time Chris was in the hallway he was congratulated by other dads-to-be. Of course I can’t blame them, how would they know? But I do think it’s a moment to have people recognize while they walk down the hall that things are not always unicorns and sunshine, and maybe they will think twice in the future.

Our Hospital Door Sign

Speaking of the hospital, I also wanted to make sure I had something of Maliyah’s with me in the delivery room. It feels so strange to know I’m walking into the same hospital, on the same floor where I delivered her, but without her. We decided to bring laminated copies of her feet and handprints with us, as well as the jewelry I wear all the time (a ring with hers and my birthstone, and a necklace with three diamonds for the three of us, and her name engraved on the inside). I hope to get a photo of this baby’s hands next to hers, so we can introduce him to his big sis. While it’s gut-wrenchingly sad to know that they will never meet here on Earth, it felt really important to me to have them be together in some way at the beginning of his life.

This post has gotten very long. I guess I had a lot of thoughts. I am hoping this blog post closes the chapter of PAL blogs for at least a while. My brain and body need a break, and I need to move on to new worries. Every time I mention to a non-loss mom how I can’t wait to not be stressed anymore, without fail they say, “you’ll just have new worries!” Quick tip: don’t say that. Also, I obviously know that. I will be worried about keeping this child alive forever. But at least after he’s out of my body, it won’t be solely my responsibility, and I may have some visual clues. I cannot wait to share the responsibility with someone else.

See you on the other side…

(Written at: 37 weeks, 5 days)

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Pregnancy After Loss

Milestones

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motivational simple inscription against doubts

Last week in therapy, I told my therapist I was 28 weeks pregnant and she said, “wow that’s amazing, so you made it to your goal!” I started laughing and I said, honestly, I’ve made it to a lot of my goals, but I keep moving the goal post.

Later in the week, I had a similar conversation with a friend who was a college athlete and she told me that my mindset was an athlete mentality of taking things one step at a time to mentally push through hard things. That’s exactly how I feel. First hurdle: AFP test. Second hurdle: Maliyah’s gestational age. Next: 7 months. Next: 30 weeks or “still be pregnant on my birthday.” My absolute ultimate goal is to make it to July, which gets closer every day, but I’ve also come to a sense of peace that it may not happen and that’s also ok, because my REAL ultimate goal is a living, healthy baby.

But this post isn’t about simply gestational age milestones. First of all, that’s boring, and second of all, every single day is a milestone for PAL moms. Shit, every single minute feels like a milestone on some days!

Today I wanted to talk about other milestones. There have been a lot, and there are many more to go.

Let me start by saying, much of this post is an ode to myself. Just like my “Proud of Myself 2023” post, I am proud of myself for each and every one of these things. To a non-loss parent, some of these things may seem inconsequential. But for a loss parent, each one of these was like Everest and sometimes the mere thought of scaling the task took my breath away. I’m not seeking congratulations, affirmations, compliments or well wishes. I’m writing this to open the eyes of those who may not realize how small things seem HUGE, and how important it is to recognize small wins.

Interestingly, I had a conversation about this (recognizing wins) in therapy this week, too. I go to a lot of therapy. I was lamenting all of the things I haven’t been able to do (create a registry, have anything related to a baby in the house, call our baby by name) and all of the things I have had to scale back on (going to the gym, hanging out with friends). My therapist spent a full three minutes reminding me of all of the things I have done, how far I’ve come, and suggesting that maybe, just maybe, I was setting the bar too high for myself to ensure I’d never reach it and set myself up for failure. It’s possible. I have high expectations!

Me: I quit law.

Therapist: …After you graduated law school and passed two bar exams and got a job at a law firm that was a terrible work environment.

I guess she has some good points.

So anyway, I decided to dedicate this week’s post to my personal achievements relating to this new baby. The first milestone happened before I was even pregnant.

My first milestone for myself was following Pregnancy After Loss Instagram accounts. The thought of entering another pregnancy was daunting. The idea that I would willfully engage in the content was a huge step in and of itself for me. Long before I took a pregnancy test, I was favorite-ing inspirational quotes about “one day at a time” or “different pregnancy, different outcome.” I was hoping that by swiping by these mantras on social media, they would somehow mind-meld into my thoughts. Osmosis works, right? It’s how Chandler thought he was a strong, confident woman (there is ALWAYS a Friends reference). I’m not sure if any of it worked, but the mere following of accounts that mentioned alive babies, or ongoing pregnancies, as opposed to following solely loss-parent accounts and muting anyone with a child, was a big step for me.

The next milestone came in the form of feeling movement from baby boy. With Maliyah, I had an anterior placenta, so I didn’t feel movement until much later in pregnancy, and I was never able to feel her from the outside. This also meant that Chris was never able to feel her moving. The first few weeks of movement for this pregnancy, I was in a bit of denial. First, it started a lot earlier! I wasn’t sure if I was making it up. For a while, I ignored it. Then eventually, I would put my hand on my stomach at night (another mini-milestone) and see if I could feel him kicking around. Eventually, I knew I could. Again, I waited a few days-weeks until I said anything. Then, I told Chris. When I finally told him and let him put his hand on my stomach, that was a massive milestone for me. The idea that we were both in on this, and we could both fall so so so far, was something that took me a long time to reckon with.

Some people are excited to be a cute pregnant person in cute pregnant-people-clothes. They take photos holding their bump, they make little hearts with their husband’s hands. They purposefully wear form-fitting clothes. Not me. Not me one bit. If I showcased my pregnancy, that would mean acknowledging it. Worse, that might mean someone would TALK to me about it. That was/is the very last thing I wanted. I imagined the day that strangers would approach me on the street and ask when I was due. When you are just trying to make it one day at a time, that is a LOADED question. But eventually, I didn’t fit in my jeans. And it was getting too hot to wear leggings every day. Also, leggings are tight, and the bruises on my stomach were more and more pronounced as my blood volume was increasing. I needed clothes. I held out as long as I could, but eventually, I dove in and purchased some maternity clothes. I talked about this in support group, and someone suggested that perhaps it was easier to think about buying something for me as opposed to buying something for the baby. That reframe actually helped me a lot. Whether or not this baby survived, it was hot, and I needed to wear clothes. I wasn’t jinxing the baby by having clothes, I was just… living in a world that requires clothed people. I decided I would become an “overalls girlie” because having no waistband means having no pressure on my stomach bruises. Thank god for Amazon returns because my tall self needed to try on a LOT of shorts overalls before finding a couple that worked. #LongLegsBruisedCity. If you thought I’d be including photos here, you’d be wrong.

The next huge milestone I looked forward to was having our baby boy surpass the weight of his older sister. She only weighed 634 grams when she was born, or 1 pound and 6.4 ounces. I didn’t have a scan for this baby at the exact gestational age of Maliyah’s birth (25 weeks 4 days), but I did have one a week prior, at 24 weeks, 4 days, and he was already 728 grams, or 1 pound, 10 ounces. This was huge news for us. Trust me, I know most moms aren’t jumping for joy at a baby under 2 pounds, but the fact that he was growing bigger was a sign that things were already going better. That measurement put him in the 58th percentile, which was MASSIVE as far as we were concerned. No wonder I needed maternity clothes!

Our next milestone was one I put off for a long time: picking a name. Chris was all in on choosing names. Last time, we used an app called Baby Names, which is like Tinder for expecting parents. You tie your account to your partner’s and then you swipe left or right on names and it alerts you when you have a match. The idea is fun, it’s gamified, and it’s easy. But… it’s only really fun if you think your baby will be alive. It’s not a “fun” task to pick a name for a baby you still believe will likely be dead. Chris had more confidence than me. He also probably remembered how hard it was for us to pick a name last time, so he thought we should start the process early. He redownloaded the app and told me to, too. He purchased the upgraded account so we could filter different names by national origin, celebrities, all sorts of things. I put off downloading the app, and put it off some more. I wasn’t ready to call this baby anything other than “baby.” Or “maybe baby.” Finally, after much cajoling I downloaded the app and forced myself to swipe a little bit every day. As you read in the post about our “maybe babymoon,” we picked some front-runners. We have a name we have been test-driving in the house. By we, I mostly only mean Chris. We picked a name, but I can’t bring myself to say it. I cannot acknowledge him by name because what if…

I’m working on it. Let’s call it a milestone-in-progress.

The final milestone I’ll mention for now, was when I decided to tell my coworkers I was expecting a baby. I put this off for a WHILE. When I was pregnant with Maliyah, we had some worries about her before things went south for REAL for real. So I put it off. I didn’t tell my work until I was 22 weeks pregnant. I waited for our anatomy scan, and once that was clear, I thought we would be smooth sailing. I told the whole staff on a zoom meeting, with all cameras on. 3 weeks later, to the day, I checked myself into the hospital and my supervisor had to un-tell the staff.

I swore I would never make that mistake again. I thought I had waited a long time last time, but this time, the idea of telling anyone at 22 weeks felt like tempting the universe in a huge way. I needed to wait longer. And I could not imagine looking at anyone’s face while I said it. I assumed I would see either sympathy or excitement, and I didn’t want to see any of it. I didn’t want to be forced to react to any of it, either. Also, I am now so keenly aware of many others’ silent struggles, and I wanted to minimize the pain that I might cause them as much as possible. I decided I would wait until absolutely necessary, and then I would send an email. I wrote and rewrote that email 5 times. Then, I asked Chris to proofread and approve it. He told me it felt “cold.” It was. I didn’t want warmth in return, I didn’t want ANY response in return (in fact, I even said that). I wanted to simply make an informational announcement. I made Chris stand next to me while I sent the email. My heart was racing, I got zone minutes on my Fitbit. But I did it. Then, I immediately went to the gym and locked my phone in a locker, which has become my standard way to avoid the world and human interaction.

I am on to the 4th page of this blog. Those are a lot of milestones to celebrate! Again, I will reiterate that to some, these things may seems small. So what, I followed an account on Instagram? Obviously, I would let my husband feel our baby move. Of COURSE I told my coworkers I have leave coming up in 3 months (hopefully). But none of those things were easy, small, obvious or straightforward. To me, those things were huge. I hope to have more milestones soon… as my therapist would say, even a tiny step forward is a step forward.

(Written at: 28 weeks 4 days)

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Pregnancy After Loss

Crossover Day

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white clouds with sun piercing through it

It’s Crossover Day: the day I have been both dreading and looking forward to since I saw two lines on a pregnancy test.

At this exact gestational age last year, I checked myself into the hospital, only to be discharged 6 days later with no baby.

I’ve wondered for many months how it would feel to be here again, and the only word I can put my finger on is: weird. It feels weird. Not good, not bad, not really nerve-wracking (ok… a little nerve-wracking), but it feels strange. It’s kind of like déjà vu, but actually not. This pregnancy has been so different than my last one.

I was having dinner with Chris last night and I brought this up. He asked what I meant by “different,” and the best way I could describe it was that last time, I felt like my pregnancy was going on in the background of my life. Yes, I was growing a human, but I was still going about my life business-as-usual. I had the same friends, the same activities, I was following the same people on social media, I was still focused on work, I was still going to the gym, and I was still hanging out with friends. On the side, I was watching YouTube videos about what to add to your baby registry, and I had doctor’s appointments about every 4-5 weeks, but that was just going on in the periphery.

This time around, my pregnancy IS my life. It’s the first thing I think of when I wake up, and the last thing I think of when I go to sleep. My friends group has changed. I rarely leave my house. My morning and evening centers around my meds routine and taking my blood pressure. My main focus in my life is reducing stress. My Instagram is flooded with loss-mom-content. My social calendar is mostly non-existent, but when I do have things to do, they are scheduled around my frequent doctors’ appointments and scans. Almost every conversation with Chris eventually veers into “do you think the baby is ok” territory.

My entire life is this pregnancy. And finally, tomorrow, I will be the most pregnant I’ve ever been. Well, that’s not entirely true, Maliyah lived for 48 hours after I checked into the hospital, but tomorrow will be my most-pregnant-not-hospitalized day. Hopefully. I don’t foresee any emergency hospital visits, but you never know. 25 weeks and 2-4 days has been in my mind for months.

For crossover day, we are currently in the Catskills. The main reason we picked this week was because my office was closed. Also, of course, I knew crossover day was coming and I needed a distraction. After we booked the trip, I told Chris we’d be away for crossover day, and I fully expected him to be surprised. I feel like he is able to compartmentalize much better than I can, so I figured he hadn’t thought about the timing, but I was wrong. He said of course he knew that. I asked him if it made him nervous to be away from a hospital (because it definitely made me nervous!) and he said no. He said no, because we had a scan 2 days before we left, everything looked perfect, my blood pressure has been great, and we have no indications of things going south. But still, I’m nervous.

We also picked this week because it’s nearing the time I will not feel comfortable leaving the city anymore. I know for my mental health, I will need to be within 15 minutes of a Level IV NICU at all times. Also, I will need to be within New York State, because every other state continues to make headlines for killing pregnant women.

A few weeks ago, someone asked me how far along I was, and I said 20 weeks. They were surprised, and they said, “wow! 20 weeks already? Time flies, doesn’t it?” I looked at them dead in the eyes and said, “no. time does not fly. Time is crawling.” I thought 25 weeks 2 days would never come.

I have been jealous of my loss mom friends who had earlier losses and therefore had their crossover days many weeks ago. I know this makes no sense; I didn’t actually want Maliyah to die before she did. But when you have an early loss, you get past that date in a subsequent pregnancy sooner and sometimes getting past that date brings along with it some peace and confidence. For me, 25 weeks and 2-4 days was soooo far away from that initial positive test. There were many months, weeks, days, hours, minutes, seconds to get through before this moment. And they did NOT fly by.

Two weeks ago, I spoke to my mom on a Friday afternoon, and she asked me what my plans were for the weekend. That question stopped me in my tracks. The weekend? I had completely forgotten it was Friday, and I had literally 0 plans. By the way, I am completely fine with 0 weekend plans, it was just remarkable that I hadn’t even considered the two days ahead of me. I was so extremely laser-focused on the current moment in time and getting through it, that it had not occurred to me to make ADVANCE plans.

I mentioned in my post about the danger zone that everyone has different points at which they feel confident in their pregnancy. For a lot of people, 24 weeks is that point. Many doctors call this “viability,” or when a baby has a chance of survival outside the womb. But that chance is not great, and I was already past 24 weeks when Maliyah died. Also, “survival” could still mean immense complications. The numbers are: 40% of babies born at 24 weeks’ gestation survive, 50% of those born at 25 weeks, 60% of those born at 26 weeks, 70% for 27 weeks, and 80% for 28 weeks. The countdown is on.

As I approached crossover day, my anxiety was ramping up. I could tell by my heartrate when I took/take my blood pressure. It’s a vicious cycle, I’m nervous it will be high, I get stressed about taking it, the stress and anxiety makes it high, and then I’m more stressed and nervous because it’s elevated. Being out of town and far from the hospital doesn’t help. I see that my pulse is nearly 100 before I’m going to take my blood pressure and the moment I’m done, it goes back down to 75. I can’t seem to get a handle on my stress, and I know it’s crucial to do so, which only makes me more frustrated. The loop continues.

I am hoping I will feel less stressed once we cross this threshold of 25 weeks 4 days, and once I am back in the city in proximity of emergency care.

I keep hoping and hoping to front-load the growth of this baby, in case we need to take him out early, so he has the best chances. So far so good. We’ve already hit a few crossover milestones (more on milestones coming soon). He is officially bigger than Maliyah ever was. And he’s probably 2 pounds by now, which is a weight Maliyah never hit. At our last scan when we found out he was 1 pound 10 ounces, I turned to Chris and I said, “2-pound babies live.” Would I like him to be 3 pounds? 4? 5? Even 6? Yes! But being across the 2 threshold is already giving me some hope. I would not say I’m “confident” in any way, shape, or form, but my hope is slowly growing.

I remember vividly being in the hospital last year and begging for additional days or weeks, and now, I’m getting them (hopefully). I am thankful for each day more, and I hope there are many of them.

I’ve used the word, “hope” 7 times in the last three paragraphs. Maybe if I type it here some more, I’ll internalize it!

Hope… hope… hope… hope… hope… hope… hope… hope… hope… hope… hope… hope…

(Written at: 25 weeks, 2 days)

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Grief and Pregnancy Loss, Pregnancy After Loss

The Anger Zone

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Anger is not an emotional state I typically find myself in. Not before my first pregnancy, not ever. This is not to say I never get mad, but I don’t usually sit in a space of anger. Recently, that has changed.

I noticed a drastic shift in my mindset toward anger in February 2024. The days were slowly moving forward toward Maliyah’s 1st birthday, and I could not stop myself from reliving my February 2023. Every day in February 2024, I found myself logging into the hospital app on my phone and obsessively rereading my old medical records. I read doctor’s notes, ultrasound tech annotations, and blood test results. I was back and forth, furiously switching apps between Epic and Google, searching every single medical definition. I went into my blood pressure app and looked at my readings day after day from the year prior. Truly masochistic behavior, day after day after day.

I got madder and madder.

We all know the saying, “knowledge is power.” Well, in my case? Knowledge was anger. Knowing what I know now, when I looked back at my charts from last year… I became increasingly angry every day.

I found my anger directed more inward than outward. I did not blame my doctors. I truly think they were doing the best they could with the knowledge they had. I have learned over the past year that doctors have specialties, and often, despite our common belief that doctors know everything, it’s truly a misconception. Doctors know their field. Doctors know how most cases resolve in their field, and how most bodies react to certain things, they know means and averages and medians. Unfortunately, as I said two weeks ago, I was an EXTREME outlier. I do not blame my doctors for not expecting I would be the .00001 case.

However, I found myself in February in an anger spiral, extremely angry at myself. The reason I was so mad, was because I know now that I had a lot of red flags. I had yellow flags, and they were flags I raised to my doctors. However, because the yellows don’t usually transform into reds, my concerns were dismissed. Now, knowing what I know, knowing the ending of my story, I am extremely livid with myself for not pushing harder. In my rational mind, I know this is not fair to me. I know that I did my best, and all I knew last year was to raise any concerns I had, and to trust my medical team’s expertise. But now that I know what I know, I find my blood boiling.

I mentioned a test last week called an AFP test. I am not going to get into the details here, but the short version of my story is, my test result was high. Not just high-ish, but HIGH. Now in 2024, I am an AFP expert. At the time, I was not. At the time, I raised my concerns, my doctor did a scan, said it was “unexplained,” and I threw up my hands. Now that I know what I know, I see my records and I say, “why didn’t I insist on seeing an MFM immediately?” I’ll tell you why… because I literally didn’t know what an MFM was last year.

I chastise myself now for not reading my charts during my first pregnancy. At the time, I was told specifically not to check the ultrasound reports or notes, because they said the baby’s sex, and we were keeping that a secret. My doctor told us that she would tell us verbally if anything was wrong. I really did not question this. I naively thought that medical notes were meant for a doctor’s own records. Yes, I knew I could access the notes on my app, but why would I? Wouldn’t my doctors say everything aloud to me that they put in there?

It turns out, that answer is no. There were many notes in my chart that were either inaccurate to the information they said aloud, or were just excluded from our 1:1 conversations. I know now, that notes are often not added to a patient’s chart until 3-4 days after the appointment. I know that, because nowadays, I refresh the app constantly after appointments, and I read the notes religiously and thoroughly.

What happens between the appointment time and the notes-entering time? I really can’t say. But I imagine that sometimes, a doctor looks over what they saw, observed, felt, heard, etc., and then later, they put those pieces of information together and write down some theories in the chart. Also, days later, when a doctor is seeing patient after patient, it’s very possible they told one patient something that they didn’t tell me, but 3 days later, how could they remember what they said to whom? Also, just like in any profession, doctors have specialized knowledge that they may inaccurately assume patients also know.

One glaring personal example is that no doctor ever mentioned pre-eclampsia to me after 12 weeks. At 12 weeks, my doctor told me to start taking one baby aspirin a day because it was proven to reduce the risk of pre-eclampsia, and I had two risk factors of pre-eclampsia: being 35 years old, and the fact that it was my first pregnancy. I started taking that one aspirin daily, as suggested, and nothing else was ever said. I didn’t ask what pre-e was, what to look for, how early it could begin… I didn’t ask anything. I just took the pill daily, and lived my life. And that word was never said again to me until I checked myself into the hospital.

Imagine my surprise when, in February of this year, I opened up an ultrasound report from 5 weeks before Maliyah was born, and found the note “close monitoring for preeclampsia.” I don’t know what “close monitoring” was meant to entail, but first of all, it was never said out loud, and second of all, I never saw a doctor in 3D between when that note was written, and until I was in triage with stroke-level blood pressure readings. But I didn’t know. So when I saw that note, I was mad. Very, very mad. Also included in that same notes section of the ultrasound was this: “We reviewed the association of an elevated AFP with adverse maternal and/or fetal outcomes including but not limited to stillbirth, fetal growth restriction and preeclampsia.” None of this was true. I mean, the actual risks are true, but they certainly did not “review” that with me. Nobody ever said the word “stillbirth” to us.

I felt so blindsided when I saw that note, that I asked my husband. I don’t remember being in a heightened state of anxiety such that I would have forgotten such a dire possibility being mentioned, but I was glad I had an additional witness. Sure enough, my husband confirmed, this was never stated to us.

Of course, hindsight is 20-20. I’d like to think that if I had seen that note, if they had said those words aloud to me, I would have asked more questions and I would have done more googling. I’d like to think that I would have advocated for myself more when, 3 days later, I had a video appointment with my doctor, I told her my blood pressure was rising, and she said, “that’s normal in pregnancy because your blood volume is increasing, it’s not high enough to medicate.” I didn’t know what that could mean back then, and I didn’t even know that I had already been flagged for pre-e. But now when I read those notes, and relive all of the events that followed, the what-if voices in my head are loud, and they are incessant.

Five weeks after that video call, as we were pleading with the doctors in the hospital for 1 more week, 5 more days, 3 more days, it’s impossible for me not to think, “WHAT IF I had just started on blood pressure meds a few weeks prior? What if I had actually been monitored closely and had even one routine blood draw?”

I’ll never have those answers, and it’s infuriating.

I had months of anger about my previous pregnancy, and what I should have done, if I somehow could have known. Then, I thought I was through my anger phase. Things continued to progress smoothly through pregnancy #2. I had a week where I had two very big appointments: first, an appointment with my MFM, then, an appointment for an anatomy scan, which is often the most detailed scan a pregnant person has throughout their entire pregnancy. I was extremely anxious (as usual), because I could have learned about many possible anomalies, or likelihood of preterm labor. I also could learn if my baby was growing on pace.

Everything went extremely well, and I was so incredibly happy that I screamed it from the rooftops! I announced baby #2 immediately on social media and excitedly told all my coworkers!

PSYCH!! I did none of those things.

I took the bus home from the hospital and cried. Then took a hot shower and cried. Then I laid in bed and cried. A lot. And I wasn’t even sad, I was MAD. Truly furious.

I couldn’t understand why everything was going so well. Of course I wanted it to go well, but why did one of my babies die, and this one was just… hunky-dory? I wanted to be so happy but I couldn’t get over my comparison and frustration.

I dug into my brain and went through everything that I was doing differently this second pregnancy. There were a lot of things. I had pre-conception consultations and tests. I’m taking some different meds. I’m taking two aspirin daily instead of one. I’m overseen by a team of doctors who are extremely knowledgeable.

On a good day, those things give me peace and solace. On a bad day, like I was having around 19 weeks, 5 days, it made me furious. Here’s why: the things I’m doing differently are so easy. SO EASY. They’re so easy, that I cannot possibly grasp why I didn’t do them last time. The most invasive thing I’m doing this pregnancy is giving myself one injection a day. Needles don’t bother me, and if I’m honest, I don’t mind the injections at all. It’s not like I had a massive surgery or reconstructed my uterus. I’m taking 1 additional aspirin a day! Those pills are so small I routinely drop them on the ground. The things I am doing are SIMPLE.

And yet, I wasn’t told to do them last time.

If I had done those things, would I have a living child at home? If I had, would our baby boy be able to meet his sister instead of just seeing her handprints? I just cannot make sense of the fact that I had to lose a baby when it seems so SIMPLE to have an uneventful pregnancy. Like I said before, the what-ifs are loud, and they are incessant. I absolutely hate when people in the loss community say “if you didn’t have baby 1, you wouldn’t have baby 2” because it’s just simply not true. We always wanted more than one baby. And I very easily could have had both alive. But I don’t, and I will never know why. It’s unfair, and it makes me angry.

I know anger is one of the classic stages of grief, and somehow, I hadn’t found myself there until recently, but here I am, and who knows when I’ll see myself on to a different stage. Everyone says, “grief is not linear,” and I’m here as a shining example, finding myself back in stage 2, after I made it through the other 4. If you need me, I’ll be at the nearest rage room.

(Written at: 20 week 4 days)

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Pregnancy After Loss

Comparison is the Creator of Joy

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“Comparison is the Thief of Joy.” This is a phrase that is thrown around a lot, and usually attributed to President Theodore Roosevelt, although that is likely a misattribution according to the internet. The point of the phrase is, if you compare yourself to others, you will likely be disappointed and it will make you feel like shit.

Going through baby loss, I can say 100% yes, this can be true. I spent a lot of my time in 2023 comparing myself to everyone else, and feeling like a complete failure, that the world was sh*t, that I couldn’t get myself the literal one thing I’ve always wanted in my entire life, and that everyone else just seemed to have it better. Then, I realized I was doing this toxic comparison stuff, and I felt like sh*t even more because, as the saying goes, I was “robbing myself” of joy. Comparison, however, is an extremely normal thing for humans to do. In fact, according to research in Psychology Today, more than 10% of daily thoughts involve making a comparison of some kind.

Recently, I’ve found myself comparing me to ME, though, and I have to tell you, it’s the opposite of a thief of joy, it’s almost the only thing that can CREATE joy for me now.

You may remember a few days ago, I talked about how my only experience with pregnancy resulted in horrific trauma and loss. Therefore, it’s only natural that I compare my current pregnancy with my previous one, since it’s my only point of reference. But every time something goes well that did NOT go well last time, I feel extreme joy and relief. Comparing my own personal past experiences to my present ones is the only thing that seems to bring this reaction.

In November 2022, I had an appointment for a 12-week scan. This is the first scan where they do an abdominal ultrasound, so they advise you to have a full bladder. What they did NOT advise me, was that they were running 2.5 hours late. Without going into the details, I will just say, it did not end well. Holding my bladder eventually shifted my organs so that I could no longer go to the bathroom. I ended up leaving the hospital without the scan because they closed for the evening, and then I ended up back in the hospital on the emergency triage labor and delivery floor later that night to try and empty and re-shift my organs back into place. It was traumatic, to say the least. The next morning, I was BACK at the hospital to try to have them perform the scan again. Again, I was greeted by a new receptionist who told me to have a full bladder, to which I just laughed, then I eventually did get the scan by an ultrasound tech I had never seen, in a dark room where she did not speak. I was terrified the whole time that the events from the night before had killed my baby, and I just waited and waited while she didn’t say anything to me until I finally asked, “is everything ok?” And it was. Then the attending doctor, who I had also never seen, came in and said “everything looks good” with no acknowledgement of the previous day and night, and they sent me on my way.

Four weeks later, I was scheduled for another scan. This time, I had to go to a different ultrasound facility I had never been to, again with strangers, for an early anatomy scan. I was told an early anatomy scan was necessary because I was ANCIENT, aka 35 years old. Again, I was laid down on a bed in a dark, silent room with an ultrasound technician, and this time, she was having trouble getting the pictures she needed. She kept shifting the bed up, down, angle up, angle down, asking me to shift to one side, lift my legs, do all sorts of things. Eventually, she told me to get up and walk around. This was also when she scolded me for not eating enough breakfast, which you may remember from my post about body image. I was terrified. What was she trying to see that she couldn’t see? I thought some crucial part of my baby was MIA. Again, it turned out everything was fine. But since this scan was done at a different facility, those scan images weren’t in my chart online. When, two weeks later, I had an additional scare that my baby might have spina bifida (she didn’t), my doctor wanted to see the photos from the scan, but didn’t have them. All I could say was that the tech had told me, “everything looked normal.”

When I think about my pregnancy with Maliyah, I usually say it was, “uneventful… until it was NOT.” But then I think about those two scans and I realize, it was kind of eventful. Those stories are just background to say, even before Maliyah died, things were not smooth sailing.

While of course, I wish my pregnancy with Maliyah had been nothing but great memories with rainbows and unicorns, it isn’t true. That also means that every single time something goes smoothly or easily with pregnancy #2, I am floored, and I am overjoyed.  

Last week, I had my 12-week nuchal translucency scan for pregnancy #2, the same infamous bladder-uterus-shifting scan from 2022. I was terrified, but I was mentally prepared. To make matters even more complicated, it was the very first time I was to go back to the hospital where Maliyah died. The last time I checked myself in on those screens, I was pregnant. Then, six days later, I left very NOT pregnant. I was nervous about entering the hospital and having this scan for weeks.

I arrived, and the receptionist confirmed if I had a full bladder. I didn’t of course, because ONLY FOOLS MAKE THAT MISTAKE TWICE. But I lied, and kind of chuckled, and I said, sort of. She said, “ok good, because they’re about to call you.” Now, in my previous pregnancy, I had 4 scans on that same floor and they had NEVER been less than an hour behind, so that comment actually elicited a true laugh from me. I said, “oh yea? What does ‘about to’ mean?” And she said, “you’re next, maybe five minutes?” I went to find a seat with Chris, away from all of the other visibly pregnant people, and I said to Chris, “do you think five minutes means like 30 minutes? Or two hours?” We didn’t believe it for a second. Chris took out his iPad, and I took out my Kindle, ready for the inevitable long wait.

The second nurse who came out to call someone said “Emily!” I didn’t even believe it at first, I actually said it back to her to double check. Sure enough, it was me. We walked back to the room, one I had never been in before and had no traumatic experiences in, and she started the scan. Immediately she found our baby, she talked out loud the whole time to us. “There’s your baby! See baby dancing around?” Immediately she shifted to show us the tiny heart beating away. She took all of the necessary photos, while explaining aloud the whole time what she was doing, she even answered a question of mine. Then, she said everything looked good, but my doctor was going to come in and confirm. Within five minutes, my actual doctor walked in (a familiar face! Gasp!) and she knew my name, she knew I had seen my other doctor the week prior, she answered my questions, and she even knew the next time I was going to see her. We left the appointment feeling happy and relieved, and we were HOME within one hour and fifteen minutes of our appointment time, even taking the cross-town bus.

Later that night, Chris asked me how I felt. He was there with me at the scan, so of course he knew we had gotten good news, but he wasn’t just asking about the baby, he was asking about ME. It was only then that I reflected on why I felt so great. It wasn’t just the baby, it was the experience. It was a full 180 from our last experience at that same scan. There was no wait. There were no unanswered questions. The tech was kind and immediately showed us our baby and heartbeat without prompting. She was friendly. Then we got to have face time with our actual doctor. I must admit that it was just a happy coincidence that my doctor was on call there that day, but it made a world of difference. Dealing with a brand-new person every appointment who doesn’t understand the baggage and trauma I am carrying to every appointment is emotionally taxing. To see a familiar face, for the doctor to know the next time I would see her, it felt like I was actually being cared for. It felt like, if I had concerns, I had someone I could call. It felt so much less lonely than last time, when I had checked myself into the triage unit later that night without ever talking to my doctor.

When I reflected this back to Chris, I said how I wouldn’t even have known how amazing that experience was, if I hadn’t seen the polar opposite in my previous pregnancy. While comparison is sometimes the thief of joy, this time, a regular old scan, in comparison to the experience I had last time, was the creator of such an abundance of joy. I left feeling supported, feeling like I had a team, and feeling like maybe, just MAYBE things would go differently this time around.

While I think it’s still unhealthy to compare myself to others regularly, comparing myself to my own experiences can sometimes be a good thing. It’s not just about the results of a test or scan (although those matter a heck of a lot, too), it’s also about how I feel, who is around me, and those pieces of mental health are sometimes just as important. While I don’t love thinking about my previous pregnancy as “bad” and comparing it to the one now as “good,” sometimes when I look objectively, I can see major differences and that’s ok. It doesn’t mean Maliyah means less to me, it doesn’t mean I love her less, it just means I now have a great care team, and that gives me reassurance and an inkling of hope.

(Written at: 12 weeks, 6 days)

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Grief and Pregnancy Loss, Pregnancy After Loss

My First Pregnancy Was a Dead Baby

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Last week, I wrote about how difficult it is to be excited about my new pregnancy. That’s because it seems impossible to believe that things will end well.

Before this new pregnancy, I used to say, “100% of my babies are dead.” That was true. That was also why I was terrified to consider another pregnancy. Based on the only evidence I had, when I got pregnant, I almost died, and my baby died. That was the only example I had.

I am a very realistic and logical person. If X, then Y. If not Y, then not X. It’s basic algebra. The contrapositive. When I got pregnant, my baby died. Therefore, in order for my baby not to die, the only way to ensure that, was to not get pregnant.

I may catch some serious hate here, but I’m saying it anyway: losing your first pregnancy is worse than losing a later one after having a living child. I know, this is extremely controversial, but hear me out. When your first pregnancy is successful (as in, it results in a living child), you had one glorious naïve experience. You not only had the absolute freedom of joy in a pregnancy, but you had unadulterated excitement in a birth. Also, you have at least one example of how things can go right.

Once a dead kid comes out of you, you have lost naivety forever. Every single bit of the journey is tinged and you know every little thing that could go wrong. This is true for every stillbirth, no matter the birth order. But when it’s your first, it is impossible to consider something breathing leaving your body. You have no reason to believe things can go well, because they quite literally never have.

When Chris and I talked about possibly growing our family, it meant completely suspending my sense of reality. My reality was: get pregnant, nearly die, baby dies, birth a dead baby. Don’t get me wrong, I know for other people, pregnancy, labor and delivery don’t end that way. But for me, with my body, it does. And it did. I have the evidence. I’m sure you’ve all heard the saying misattributed to Albert Einstein, “insanity is doing the same thing over and over again, and expecting a different result.” To me, when I thought about considering another pregnancy after loss it was exactly that: insanity. Entering the space of considering a different outcome felt entirely unrealistic and plain stupid to me.

I remember when Maliyah died, people called me strong a lot. People don’t say that to me as often anymore. The irony is, the true strength is happening right now. The idea that I would consider entering this beast of pregnancy again, knowing what I know, with the evidence I have… THAT is strength. That is bravery. And that deserves recognition. I always think about other types of trauma, and how most people would never consider willingly and knowingly putting themselves in similar situations again, making themselves vulnerable to the exact same type of repeat trauma. If you were bitten by a shark, would you willingly and excitedly open-water swim ever again?? But for PAL (pregnancy after loss) moms, we do it time and time again.

Last week, I promised the story about my breakup with my therapist. Our conscious uncoupling was about this very issue. I could tell immediately from her reaction to my pregnancy announcement that we were operating on different emotional planes. Despite my months of prepping her for my storm of emotions that I knew would come with a next pregnancy, she didn’t seem to understand. Week after week, things came to a head because she was so extremely excited for me, and I was… confused and scared.

Eventually, after weeks of her excitement and my hesitancy, I received a test result that had me terrified. It was the exact same elevated liver enzyme that went haywire last time, which was the second indicator that my body was going to shut down from my pregnancy. Staring at the test result, seeing that exact same elevation AGAIN, was even more evidence to prove my theory that being pregnant would cause both my death and my baby’s death.

We got into a huge fight. Raised voices and all. She kept saying “what if everything is fine and you have a healthy baby?” For me, that was an absolute impossibility. The conversation was not productive, and I did not think we could ever be on the same page. She didn’t understand my fear, even when faced with scientific indisputable (later disputed due to lab error) evidence. I knew we needed to separate.

Later the next week, I repeated our conversation to my other therapist. We usually focused on EMDR, but I felt like I needed to disclose that I had parted ways with my other therapist. Also, I wanted her opinion on the conversation. I wasn’t necessarily seeking validation on my “side” of the fight, but I was looking to see if I was unfixable by therapy. I wasn’t sure if my “inability to be optimistic” (quote from ex-therapist) disqualified me from therapy. I figured I would check before throwing more money down the drain. (Thank you, American healthcare system.)

We spoke for a while about affirmations. Specifically, she talked about phrases people write on their mirrors and repeat to themselves every morning until they believe them. Sometimes they work. But sometimes, the phrases are so incredibly outlandish, that they are impossible to imprint in one’s thoughts. They are just too far-fetched to become reality. She used a simple example: the difference between saying, “my body is beautiful and I like myself,” versus, “I am as beautiful as Beyonce.” The first one is more likely to “take,” because it’s easier to believe, and closer to a person’s current truth.

For me, the idea that “everything is going to be completely fine and I’ll have a healthy, full-term baby” seems like an insane thought that is so far from my current truth. There are hundreds of hurdles to get over and past before we get to that point. I cannot possibly wrap my mind around it. My EMDR therapist said, “that makes sense. It’s hard to believe because it’s never happened before. So, what can you believe?”

Since then, that has been my motto. What can I believe to get me through each day? Can I believe that I’m doing my best? Can I believe that I’m taking my meds and monitoring my health, and going to all of my appointments, and that’s all I can do? Can I believe that it’s only 4 more days until I can get visual confirmation that my baby is still alive? And can I believe I will get through those days, one way or another? Can I wait 24 more hours to take my blood pressure again, and feel peace that it’s exactly the same as it was the day before? Then, can I maybe believe that it will also be the same the next day? I may not be able to fast-forward 5 months and believe that it will stay steady 180 more days, but I can maybe allow myself a couple days of peace at a time. For now, while it doesn’t seem like a lot, it will have to be enough.

I can no longer say 100% of my babies are dead, because I have an alive one right now. I think. And I’ll get confirmation of that again next week. And maybe… just maybe… my second pregnancy will not be a dead baby. I am not sure I can believe that yet, but hopefully, someday, I’ll have evidence. In my arms.

(Written at: 12 weeks, 0 days)

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Grief and Pregnancy Loss, Pregnancy After Loss

Invisible Grief

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lonely woman walking up a road filled with shadows of people

Maliyah’s birthday is coming up, which means I’ve been living in the grief and loss community for almost a year. It seems crazy to think how long it’s been, and it’s been a blur.

There are so many terms I’ve learned in the past 11 months. A lot of them are medical, like Diluted Russell Viper Venom Time (not related to a snake), but some are death and grief-related. Something that comes up time and time again in this community is the concept of  “disenfranchised grief.” According to WebMD, the Wikipedia of medical issues, disenfranchised grief is when a person’s grieving doesn’t fit in with the larger society’s attitude about dealing with death and loss. There are a lot of examples of this, like when a person’s pet dies, and society thinks it isn’t a “bad enough” loss. Or when someone dies from suicide or addiction and society says that it’s the person’s “fault.” Other examples include loss of something that isn’t a death, like divorce or loss of a job. Society tends to think these things aren’t “as bad” so you don’t have the “right” to grieve them in the same way.

Most people agree that losing a child is REALLY bad. But what if the child is someone who never lived outside your body? Then it doesn’t count.

I sometimes think of late term pregnancy loss as disenfranchised grief, but more often, I think of it as invisible grief. It’s something that no one else sees, both literally and figuratively.

I feel like the one good thing about typical grief is that it brings people together. There’s a whole concept in Judaism called shiva where people come together for seven days to discuss their loss and accept the comfort of others who maybe knew the person who died. But in the case of late-term pregnancy loss, no one knew the person who died. No one met her. No one saw her, not even in photos. Some people may share photos of their uterus but that’s not really my style. In a lot of cases, people didn’t even know Maliyah existed!

I recently went to a work conference that was full of land mines. I work for a membership organization with more than 1500 members. I never announced my pregnancy to the members, and there was no live birth, so most of them had no idea. The last time I saw most of them, I was pregnant, but in secret. There were so many conversations that began, “how was your past year?” Or “it’s been so long! What’s new?” Or my favorite, a person who called across the hall to me, “everything good, though, right?” NO. Everything is NOT good. Everything is shit, actually. But you can’t say that to tangential colleagues, especially because nobody knew what happened, nobody knew the person who died, and some people wouldn’t even have considered her a person.

It’s less hurtful to have people ignore or not see your grief when those people are minor characters in your life. It’s a lot worse when it’s close friends or family. The hard part is, I know it’s not intentional, but it’s hurtful nonetheless. And since the grief is invisible, the hurt is, too.

I had an example of this at Christmas. I brought Maliyah’s ornaments with me to Texas, where I was celebrating Christmas with my in-laws. We celebrated Christmas with them last year when I was 4 months pregnant with Maliyah. Everyone in 2022 knew I was pregnant. Everyone talked about it a LOT.

When I arrived in Texas this year, I told my sister-in-law that I brought ornaments to hang, and she instructed her son, my 15-year-old nephew, to hang them. He took one look at her name and said, “who’s Maliyah?”

Here’s the thing, I know he’s a kid. I also know that it’s quite possible her name was never spoken in their house. But if she was alive, he’d know who she was. They’d be first cousins! They are first cousins. And yes, it’s very possible he never even knew she was born. I know people are weird around death, dying, grief, and kids. Some people think they can’t handle it. And I get that he never met Maliyah, but he knew all about her the year prior when she was in my body, and the next year… POOF. No recollection.  When he asked who she was, I just said simply, “remember how I was pregnant? She was my daughter who died.” End of conversation. I could have ignored it, but he asked a direct question and I wanted him to know the answer. For me, the hole in the family is gaping. For others, it’s not even visible.

I held off on publishing this post until I broke the news about my new pregnancy because now, Maliyah and my grief about her death is even more invisible. I follow enough loss accounts on social media to know that this is common. I know that most people believe a new pregnancy “fixes” the previous loss. This seems absurd if you think about your baby as a person. No other humans are just replaceable or interchangeable.

I saw a post on Instagram that said, “this is how it would sound if we responded to every loss the same way we respond to baby loss.” There were six slides after that, where they went through different scenarios, like if someone’s father died, and someone said, “it’s ok, you can always find another dad,” the way people say, “you can always have another baby.” Or if someone says their sibling died, and someone answered, “at least you know you can have siblings” the way people say “at least you know you can get pregnant.” There were 4 more examples, equally as disturbing, but equally as true. I heard all of those things.

It was less than one month from Maliyah’s death when people started asking if we had considered “trying again” or if we were allowed yet to “try again.” The “again” word, as if we could just replace Baby 1 with Baby Version 2.0.

My grief has become more invisible as people now think of Maliyah as a stepping stone on the way to our happy eventual family. I heard concrete examples of this in the reactions I heard from people after announcing our new pregnancy.

There is an added wrinkle here, which is that to others, there is an extreme sense of déjà vu. My new pregnancy is less than two months off from the previous one, so when we told family before Christmas last year, then this year we were at Christmas again, announcing a pregnancy again, it seemed like Groundhog’s Day. I understand that it seems repetitive to others, and that it seems like the same thing.

To me it’s not. It’s a new pregnancy. A different baby. I repeat a mantra to myself every single day, “different pregnancy, different baby, different placenta, different outcome.” But to outsiders? It’s the same.

When we started to share the news of this new pregnancy, we received messages and phone calls, people saying they were praying for us, that they can’t wait to celebrate with all of us together next year, including the new addition. But, they said the exact same thing last year. Same prayers. Same hopes for a Christmas with a new addition. And then there was no new addition. And no mention of her whatsoever. Nothing. All I saw in church at Christmas was the baby in the row ahead of me, and the baby missing in our row. But to everyone else, they saw the same old Emily and Chris, with no living child and the same possibility of one growing.

People like to look forward, especially when the present is uncomfortable. People like to have hope and belief that things will improve. But for me, I need to hold both. I have the loss of Maliyah in my mind still, and I always will. Of course, I hope for a different-looking holiday season next year, but I also hoped for that last year, and I didn’t get that, and no one acknowledged that. I didn’t forget last year, it was only a year ago! The “yes, and” is STRONG in my head, like the dialectical thinking I mentioned last week. Yes, I’m pregnant. Yes, I may have a baby next year. AND, I still have a dead one. Forever. And I remember what everyone said last year. The hopes and the excitement that people seem to have forgotten. I haven’t forgotten.

I had a full breakdown on Christmas Eve. I explained to Chris how I know people don’t think they have memories with Maliyah because she was never outside of me, but I think of all of the times I had with friends and family when she was with me as memories I have with her.

I have 150 days of memories with her. 150 days of memories of her. I have 150 days that I still think about. But no one else does. It’s strange to feel that those memories are completely invisible to others. It makes ME feel invisible. I’m working on this feeling, trying to feel less invisible, or make my feelings more visible so it’s less lonely. This blog is part of that. I’ll take you with me, whether you like it or not.

(Written at: 11 weeks, 3 days)

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Grief and Pregnancy Loss, Pregnancy After Loss

I’m So Excited! … I’m So SCARED

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I have some news…

That’s always how these things start. They’re usually followed by uterus photos (if the “news” is delivered by text) or high-pitched squealing from the receiver (if the “news” is delivered in person).

It’s true, I am pregnant. Notice, I didn’t use an exclamation mark. That’s because I’m not exclaiming it, I’m not necessarily excited either. When Chris and I started sharing the news, we mostly said we were “cautiously optimistic,” because my main doctor said exactly that, she’s “optimistic.” But if we’re being completely honest, “cautious” is operating a hell of a lot stronger than “optimistic.”

When Chris and I decided we were going to attempt to have a living baby, I tried hard to prepare and pump myself up. I talked to all of my therapists about how I wanted to be excited. I wanted to be less nervous this time. I wanted to “cherish every moment.” I wanted to be grateful for every day I had with my new baby. I thought I could think these things into being. I thought I could just erase a year + of trauma. It’s not that easy. I haven’t gotten there yet. I’m trying, but I’m failing.

I was explaining recently to my one remaining therapist (other-therapist-breakup-story coming later) how I felt like such a failure not being able to get excited. I’m in this infertility/loss community now where I know many women would be so grateful and excited to be in the spot I am in, but all I can do is be scared. My remaining therapist said, “maybe being ‘excited’ is too much to ask of yourself.”

Right now, it’s true, excitement is too much to ask. My real feelings are: I’m scared, I’m anxious, I’m worried, and I’m nervous. If you didn’t catch the reference in the blog title, it’s from Jessie Spano’s popular caffeine-pill-induced breakdown on Saved by the Bell from November 3, 1990.

While I have consumed zero caffeine pills, I definitely feel the same. I can tell myself a million times that I’m excited, but right now, I’m really just scared. I am also happy. For now. Every time I say I’m happy, I get the nagging feeling like someone is tapping on the back of my brain, and saying, “but for how long?”

At one of my doctor’s appointments, Chris was out of town and couldn’t come. I knew myself, though, and I needed a chaperone, so I brought a friend. As I casually had a borderline panic attack in the waiting room and my Fitbit logged 33 “activity zone minutes,” my friend tried to distract me. When we went into the exam room, and everything looked great with the baby, I was crying, as usual. The doctors said, “it’s ok, everything looks great!” I couldn’t speak because of the tears and the snot and such. My friend said, “it’s just… she’s been here before.” She took the words right out of my mute mouth.

In recounting this story to my therapist (can you tell we talk a lot?), I said, “sure they say everything looks great… for now!! Meanwhile I was just thinking, ‘yea well everything looked fine last time… until it didn’t. So, when is sh*t going to hit the fan this time around?’”

She reminded me about dialectical thinking, which I struggle to use as a default, but I’m trying to train myself to think more consciously about it. I try to shift my thoughts from “yeah but…” to “yes and.” Instead of, “yea everything looks great now, BUT when won’t it?” I try to make a minor shift to “everything looks great now AND someday it might not. For now, though, it does look good.” The minor shift from “but” to “and” helps me think a little less negatively. Yes, things may go south. AND for now, they are looking good.

There have already been many comedies of errors. First, a 2.5 hour wait at the doctor that led to me almost missing a flight. Then, a pharmacy called to say they didn’t carry my meds and hung up on me. Then, there was a lab error on one of my blood tests which led me to believe I was heading into liver failure AGAIN. Then, the lab where they sent the replacement test lost the vial of my blood. Then, I had an ultrasound where they couldn’t see anything and I thought the baby was gone, but eventually with an internal ultrasound everything looked completely fine. It’s been a roller coaster and I’m barely in the second trimester.* After the initial lab error, I said to Chris, “I had tricked myself into thinking that I deserved a pregnancy that was smooth sailing, but I guess that was too much to ask.” He agreed, we were not likely to have an uneventful time.

When I broke my pregnancy news to a friend recently, she asked me when I was due and I wasn’t even sure. My doctor has never mentioned my due date to me, I had to look in my chart to find it. Thinking to the future to a full-term baby, that’s way too far away. “Full term” is not the goal. “As far as I can get,” is the goal. “Staying alive” is the goal. “A living baby” is the goal. I remember last pregnancy, I hoped I wouldn’t share a birthday week with my baby. This time around, I just hope our baby gets a birth day that isn’t the same week as a death day. To say my expectations are different with my second pregnancy is a gross understatement.

The best thing people have said to me when I share the news is just, “congratulations,” because then I can simply say, “thank you.” Some people have asked me how I am feeling, which is a very difficult question to answer. Physically, pretty good. But mentally? I’m a wreck. I’d need a novel (or a blog) to explain that, so I usually just say, “so far so good,” which is definitely a lie. According to the notes in my chart from my doctor, I have “significant anxiety.” I wonder why…

Despite my millions of doctor appointments and the ever-present sharps container on the table and ultrasound photos on the fridge, it’s still difficult to believe. Will I get what I want? Do I deserve it? Does anyone NOT deserve it? Who even am I to get what I want? These are all existential questions and I have no answers.  

I am taking things one day at a time. Sometimes I’m at the hospital three times in a week. But everything will be worth it if it is worth it. And I can’t tell the future, so I will just operate in the present. Feel free to extend your congratulations, but don’t ask me how I feel, because I honestly don’t know and it will probably be different tomorrow.

* Writer’s Note: I wrote this blog when I was heading into my 2nd trimester. Despite what I thought I would do, mentally I couldn’t bring myself to share about this new pregnancy until I made it through Maliyah’s first birthday. I’ve pre-written many, many blogs about this pregnancy as I felt the urge to get my thoughts on “paper,” and I will be sharing them in the coming weeks, even if the language and my thoughts no longer align with the timing completely. Therefore, at the end of each blog, I will share the gestational age of baby #2 when I wrote the post.

(Written at: 11 weeks, 6 days)

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Grief and Pregnancy Loss

A Letter For Maliyah

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In the early days of my grief, I started to read a book called Saying Goodbye. It’s a 90-day support guide to walk you through baby loss and grief. On Day 11, the task of the day was to write a letter to the baby you lost. When I read that, I thought it was crazy. I could not imagine what I could write. She was gone. What else was there? She’d never read it, she’d never grow up, she’d never know. And I barely knew her. But the more I thought about it, the more all of those reasons seemed like reasons I needed to write the letter. I sat with it for a few months. More and more thoughts came to mind. I thought of memories of her, memories of us, memories of happy times. Sometimes, I feel that since I know the end of the story, it negates all of the pages before. But as I struggled to try to remember the days of hopes and dreams, I realized that there were times of happiness. I didn’t want to forget them. In June, I started to write.

Today, in honor of Maliyah’s first birthday, I want to remember the happy and hopeful times. Since I never posted on my blog about those exciting moments, I am going to share my letter.

Dear Maliyah,

I have so many things to say. I have a lifetime of things that I will never get to say to you while you’re physically with me. A lifetime of memories, both the ones I had before you, the ones I had with you, and the years of memories I will have after, but that you will always be a part of. I like to think you’ll hear/read/see this somehow, wherever you are, hanging out with all of your friends, hopefully having a lot more fun than we are in your absence.

Usually, in a eulogy, people talk about their memories they have of the person who died. When I first sat down to write this, I thought I had none. You never existed on your own, you were always part of me. But then I realized, I actually am fortunate, because I have every single memory you have. We were one. My memories of you are your memories too. For every second you existed, you and I were together. While I wish you grew up and had your own life and memories of your own, experiences, friendships, romantic partners, you will never have those things.

But during the time we were together, we had a lot of great memories. You were a world traveler. Your first place you visited was Sweden. I had no idea you were with me then, but your dad decided to be spontaneous and book a trip for the weekend. We ate meatballs and learned about the Nobel Prize. We saw Viking ships together, and danced and sang in the ABBA museum. The number one review of the ABBA museum said not to go alone, but I didn’t care, I went anyway. I thought I was there alone, but it turns out I wasn’t.

A few weeks later, after I knew you and I were on this ride together, we went to Australia. Together, we saw koalas and wild kangaroos, we watched as wombats came out at dusk. We saw the Sydney Opera House. We walked over the Sydney Harbor Bridge. We jumped out of a plane together. I wonder what you thought of that. Were you as nervous as me? Did you laugh when our tandem diver asked if we would have a beer after? I did. But you were still my little secret then, so I chuckled to myself. We were partners in crime. Together, we saw the Great Barrier Reef, one of the 7 natural wonders of the world. I remember feeling like I was The Little Mermaid, truly part of the ocean world. I wonder now if that’s how you felt about me, part of my world. Did you know that you would be part of my world forever?

We went all over the United States together too. We were in Los Angeles, we were in St. Louis, we were in Philadelphia, we were in Atlanta, and we were in Fort Lauderdale. You met coworkers, friends, family, and so many strangers. In all of those new places, I wondered if you would be friendly and extroverted like me, or thoughtful and intellectual like your dad.

At first, you were my little secret. I sent a photo of the pregnancy test to my friend. Those two lines were the first proof I had of your existence. But even before that, I had a feeling. I knew something was different and that’s why I took the test. Something changed in me, and I knew it would be changed forever. People say that when you are pregnant, your DNA makeup literally changes. I know my spirit has definitely changed, and maybe my physical composition has, too.

Slowly, I started telling people about you. I had more partners in crime, a friend who drank my wine at a birthday dinner so people wouldn’t notice. She ordered us a gin and tonic (hold the gin) during the Halloween pub crawl. Most of my friends had no idea you were hanging out with us during all of the important events of the fall. You were there at Halloween, while we watched the marathon, at the Macy’s Parade, during Christmas. I am usually a pretty good secret-keeper, but it was SO hard keeping you a secret.

I took pictures of us, but I didn’t post them. You and I had our own little world no one knew about. At the Macy’s Parade, there was a first-time balloon of a dinosaur and their kid little dinosaur. I had my sister take a picture of me and you, with the family of dinosaurs behind us. We took pictures at Christmas where your dad and I tried to make a heart at my belly. Right where you were. We were so excited for the next year to add a third to our matching pajamas tradition. I remember on Christmas Day I sat at the table and ordered us matching sets for 2024. And then at my friend’s wedding in Florida, when my best friend was pregnant too, I took a picture of the four of us. It would be the only time we all got to meet.

I wish I had real or mental pictures of you growing up and meeting and playing with my friends, laughing at their funny faces when you were a baby, or laughing at our old clubbing stories and rolling your eyes at us when you were a teenager and far too cool for us. The only memories I have of you and my friends are when they found out about you. I remember their excitement. I remember how they said they couldn’t wait to meet you. They bought you gifts and checked in on me (and you) often. I remember them thinking about how you would look and act, a combination of your dad’s big eyes, and my super tall self. I remember them joking about how some kids are no-screen kids, but you’d be an all-screen kid with a baby iPad because your dad lovesss his electronics so much.

I remember hating women who used to touch their bellies all the time, but it was so exciting to know you were in there. I refused to be “one of those people” in public, but I remember always feeling my stomach in the shower, making sure you were still safe in there, happy to be with your mom. I remember when I started to feel your kicks. It was really late in the pregnancy, and my doctor told me it was because of how you were positioned in my body. I only felt you moving around for a couple of short weeks. In hindsight, I think it was you protecting my heart. You knew that if I felt your presence for too long, it would be even more difficult to let go. I remember laying in bed at night feeling you dancing around, and putting my hand on my stomach to see if I could feel you from the outside and show your dad. Unfortunately, I never could. He never could. That used to make me sad, but now I prefer to think of you knowing, protecting his heart, helping him heal for the future. He never knew what he was missing.

Speaking of your dad, I remember the day I broke the news to him that you existed. It was his birthday. He loves when I write him little poems, and I used to write them all the time when we first were dating. I thought a perfect full-circle moment would be to write him a poem to tell him about you. I remember sitting across from him at dinner as he read the card. At first, he was confused, and then he was so excited that he cried. I remember him saying you were the greatest birthday present he could ever receive in his life. I remember the big hug he gave us. You should know your dad does not show emotion often, and definitely not in public. But your existence brought him to tears right there in the restaurant. Even while you were in my body, you had that huge power. You will always be that to me, the best gift ever.

I wish I could explain to the world how special you are. I wish I could tell them your favorite books, your favorite foods, your likes and dislikes. I wish I knew. The only thing I know is that you were in the safest place your whole existence. I was recently reading a text where someone signed it ILY. I Love You. I realized those letters are in both your name and my name. It was unintentional, but now that I know, it feels intentional. You had no enemies. Everyone who knew you, loved you. They loved the idea of you, they loved their hopes for you, and they will love you forever. Especially me.

Love,

Your mom

Last minute trip to Sweden, tiny little kanelbullar in the oven and we didn’t know!
Don’t go alone to the ABBA museum? Fine I won’t, I’ll take you with me.
The night I told Chris about you.
His smile before his birthday wish says it all.
Not so many little ones can say they’ve been to Australia!
Or to the Great Barrier Reef!
Tweedle Dee, Tweedle Dum, and Tweedle Baby!
Me trying to stay Covid-free to protect you.
Dino Family plus my tiny little family.
Marathon Day!
Can you tell your grandparents were ecstatic to find out about you?
You had the same due date as my sister! So I had to make a matching shirt like the one your grandma had.
We tried a few times to get this picture.
We were so happy for you to be with us earthside next Christmas.
BUMP INCOMING!
Crazily, the only wedding we attended together.
Love you and miss you every day.
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