Grief and Pregnancy Loss

To Post or Not to Post, That is the Question

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It’s been months since I considered writing a blog about social media pregnancy announcements. It’s been since June 12th, Maliyah’s due date, and the date we announced her existence (past tense) to the world. We did not make the decision to post about her lightly. In fact, months and months of discussions went into that post. If I’m completely honest, the conversation goes even further back, to October 2022 when we first found out I was pregnant.

Should we post, or should we not post?

If you are in your 20’s or 30’s, or if you have an Instagram or Facebook account, or if you just plain don’t live under a rock, you’ve probably been inundated with pregnancy announcements, gender reveals, birth announcements, or in some cases the hat trick – all three.

I am no stranger to social media, I have two TikToks, 4 Instagrams and 2 Facebooks. I used to post almost all of my meals to my stories. But with my pregnancy, I was terrified. This goes back to my post about superstitions, I was far too nervous to say anything on social media about my pregnancy at all and I didn’t want to hurt anyone. What if something went wrong? What if someone was struggling with fertility and my post made them cry? I posted exactly nothing about a pregnancy. In fact, I posted a blog in November where I talked about how my bucket list would need to go on hold “if” I got pregnant… but I already knew I was. I didn’t want to say anything and jinx it. I didn’t know what I would do about posting photos as I started showing, but I had already taken a step back from posting on my blog – that bucket list post was my ONLY post between October 2022 and July 2023. I figured I would do the same thing with Instagram and take a step back, or not post photos of myself. I posted a carousel of photos on Instagram from a wedding in mid-February where I was sort of visibly pregnant, but you could also have assume it was an unflattering angle or cut of the dress. I never said anything explicitly about it.

So, how do you announce your baby died, when you never announced she existed? Isn’t that crazy? Also, who wants to read about such a horrific loss? For some reason I felt like I wanted to tell people, but I couldn’t figure out why.

I had only one example to look to. I had a friend who had a pregnancy loss while I was pregnant. She posted about it as part of a larger social media post celebrating an anniversary. I was obsessed with that post. I read it 100 times. Eventually I asked her about it. I said, “how did you come to the decision to post this? And how did you decide when was the right time? What did your husband think of it?”

I asked that last question because Chris and I were not in agreement. He keeps things close to the chest. He doesn’t share anything about his personal life on the internet, and he certainly doesn’t share about such monumental and private things as this. I knew we disagreed, and we continued to have conversations about it.

I asked on multiple support groups what other people had done. Why did they tell people? Why didn’t they? When did they say something? Was it too late?

Some people said they needed to unannounce because they had already announced they were pregnant. We didn’t have this issue, since we never announced.

Some people said they announced to avoid questions about when/if they were going to have children. This was an interesting point I hadn’t considered.

Some people said they announced because they didn’t want people to assume their next pregnancy was a first pregnancy.

Some said they felt they needed to share about their loss because it was far too heavy of a burden to carry alone. This resonated deeply with me. As the days kept coming and going, it felt like the lead bricks on my chest were growing and it was too much for one person to handle.

But had we missed our window? She died two weeks prior. Four weeks prior. Two months prior. Would people even care? Should I share about her on our one-year anniversary, when I thought we’d have a growing family? Should I share about her on my birthday, when she was the only thing I could think about as my biological clock was ticking forward at a furious pace?

Here’s the thing: there’s no good time to tell the world about your dead baby.

I agonized over this constantly. Why did I feel such a fierce urge to share about her? I decided I needed to answer that question before I answered the timing question. I also needed to decide what I wanted the world to know.

I considered posting as a cautionary tale. I felt a sort of obligation to warn people. I had been healthy, I had a textbook, sickness-free pregnancy, I had no symptoms, and yet I almost died! I needed to tell people! I wanted to scream “CHECK YOUR BLOOD PRESSURE AND INSIST ON PERIODIC BLOODWORK” from the rooftops. Eventually, I decided that what I wanted to share had nothing to do with me. Yes, I think more education is needed, but I didn’t feel an obligation or responsibility at that point in my depths of depression.

What I wanted was a place in the world for Maliyah. I needed her to have a tiny corner of the internet that knew she existed. I needed people to know we loved her and would continue to love her. I needed people to see her tiny footprints and to understand she was a person. This was not just something that happened to me, this was a person who existed, and now she was gone. I wanted people to understand that Chris and I were not the same people anymore because the most important person in our world was no longer in this world.

For all of those reasons, I decided to post on her due date, the day that was supposed to be her birthday. I needed there to be a post only about her – a reserved spot just for her, on a day that was already reserved in my brain for her.

When I finally posted on Instagram and Facebook, I was relieved. She had a spot. Losing a child is so lonely. It feels like nobody in the entire world understands, or cares as much as you, and they never will. Even if only for one second of one day, I knew by posting on social media, people would see her name, know how much we cared about her, and perhaps pause for a moment and think about her. For Chris and me, those moments were all day every day, but for a brief moment in time, she would be on someone else’s mind.

But unlike when you post something amazing on Instagram and you sit there waiting to watch the likes and comments roll in, I couldn’t face the comments. I clicked “post” and immediately went to the gym where I locked my phone in a locker for 75 minutes. I was fearful of the pity. It wasn’t about me, after all. My therapist advised that “pity” could be reframed as “empathy” and perhaps people cared about me and that’s why they would extend sympathies. Maybe that was true, but I assumed as soon as I pressed “post,” there would be a game of telephone that started with, “OMG did you hear what happened to Emily?”  

Overall, I was happy I posted about her on social media.

Meanwhile, I continued to see an onslaught of pregnancy and birth announcements on Instagram. People had so much hope and surety they would have alive babies. It seemed like there were ultrasound photos or onesies or bump pics every time I clicked on the Instagram app. I knew every permutation of these announcements:

  • A. The collection of onesies with the parents’ hobbies/sports teams/funny puns laid out on the floor.
  • B. The ultrasound photo
  • C. The letterboard announcing Baby Smith and a date (with certainty!) of when they would be born.
  • D. The family pet with a personalized bandana.
  • E. The living child wearing a “going to be a big brother!” shirt.
  • F. All of the above.

My gut-reaction every time I saw these was disgust and anger. How could the world keep spinning? How could people get pregnant so easily? How could people just… be sure their babies would be born alive? Didn’t they know what could happen??? How dare they have such confidence.

I started to think about this all the time and I realized the anger was just jealousy. Not jealousy about their babies or their pregnancies, I didn’t want their kids, I wanted mine! The one that was dead. I would scroll through the comments and see the hundreds of “congratulations” the “you’re going to be such great parents!” the “I can’t wait to meet them!” the “this is so exciting!” the “I knew it!”

I missed out on that. I missed out on all of the positive thoughts and excitement, and I found myself in a deep pit of regret. Why had I been so hesitant to share our joy? All I was left with was a cautionary tale and a hundred “I’m so sorry” comments or “I don’t know what to say” or “this is horrible.” And it was. And it is.

I felt sadness compounded on sadness. I try very much not to have regrets, but if I had to say one regret of my entire pregnancy it was this: I wish we had taken the opportunity to celebrate while we could. I was consumed with worry, and I didn’t allow us the space to have joy, and there’s no do-overs.

I had this regret almost immediately, even before we posted about Maliyah’s death. I wished for a redo. I wished we could have been happy before we were devastatingly sad. I remember calling my pregnant best friend and through snotty tears, telling her I saw a repost on her stories of her with a bump (which had also cried privately about) but I had noticed she hadn’t put anything on her feed. I was worried she was doing this to protect me. I didn’t want her to dampen her joy because of my sadness. It wasn’t fair to her. I hadn’t allowed myself to be happy (certainly not publicly) and I regretted it. I didn’t want her to make the same mistake. Of course, I said it was up to her if she wanted to mention anything on social media, it’s a personal decision, but I didn’t want her to base it on me. I told her not to worry about me seeing anything, and I had her account muted because I wanted to make the decision about when or if wanted to see it, but this was my issue, not hers, and I wanted her to feel comfortable sharing whatever she wanted to share.

When I spoke to another pregnant friend recently, she mentioned she wasn’t planning to post on social media about the baby. She knew many people in her life who struggled with infertility and had devastating endings to pregnancies, plus she had me. She said she didn’t know who else was hiding in pain as well, and she didn’t want to contribute to that. She explained that for those reasons, and because of her own “what-ifs,” she wasn’t planning a post. I told her I could relate, but then I admitted my regret to her. I told her how I wished I had made a different decision, but it was too late. I told her to bask in her joy and excitement because you never know when it will be taken away. She ended up telling me I convinced her to change her mind.

But I understood her hesitancy. I also had friends I knew who struggled to get pregnant, and friends who had lost babies. When I found out I was pregnant, I didn’t want to push my happiness in their face. And now, I have regret for that. For prioritizing my friends’ emotions over my own, and for letting my worries shroud my happiness in clouds of anxiety.

I want to make sure I’m clear here, I think it’s important to look out for your friends and to not do anything with intentional malice. But there are always people in the world who are struggling and may find your posts triggering, whether it is about babies, parents, siblings, work, food, really anything. As a human, you should always balance the feelings of others with your own. But you also cannot take responsibility for each person’s struggles. First of all, many may be invisible. There is no way to know if something you post may hurt someone with a silent struggle. It is also important to live life for yourself, and to take control of your own story, both in the real world, and online. While I regret not sharing about my pregnancy, I cannot change the past.

I have mentioned before that social media sometimes feels like a highlight reel, and for that reason, I plan to make a conscious effort to share authentically here, and link these posts on my Instagram. This blog has quickly become heavy and dark, which is mostly because a majority of my life in this moment feels that way. But I want to also make a commitment to myself to share the moments of joy. There are so few, and they can feel fleeting. They deserve to be celebrated.

You may have assumed this post would end with an announcement. Well, it’s not going to. You may also be wondering if this means I’ll share publicly and early about a next pregnancy, and I’m not sure. To be honest, that’s none of your beeswax. But I have a feeling I will do things differently, and I promise if I do decide to share anything, I’ll take you along for the ride.  

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Grief and Pregnancy Loss

My Own Worst Enemy

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A lot of things have gone wrong this year and most of those things have been outside my control. They may have been inside my body, but they have been outside of my control. Recently, I realized that even my feelings are spiraling out of control, and it’s extremely disconcerting.

I never considered myself a control freak, but as more and more snowballs, I’m realizing that maybe I am.

I had thought that if I had controlling or stressful tendencies, they would have come out during the most stressful times in my life, like in law school, or while planning a wedding. But no, when it came to law school, I was perfectly fine with studying as hard as I could, and doing as well as I could. For my wedding, I thought maybe I’d be a bridezilla, but instead I filled out a spreadsheet with my flowers of choice, told my two bridesmaids to pick a color and style of dress they liked, and then I showed up in Cabo for the first time, 4 days before my nuptials.

So why, all of a sudden, do I want to control everything including my thoughts, and I’m mad at myself for wanting to be in control, mad at myself for not just accepting that some things aren’t in anyone’s control, and then I continue to spiral out of control (which brings me back to my very first point)?

All of this came to a head last week when I had a grief attack at the gym. I wasn’t sure if I’d write about it because it’s extremely vulnerable and embarrassing. But I also feel like I shouldn’t be embarrassed, even if I am. This blog is already an overshare, that’s the point of a personal blog, so I figured I’d jump in headfirst and overshare again.

I’ve had two “panic attacks” since Maliyah was born, both in healthcare settings. I’m using quotes because I don’t think they fit neatly into a “panic attack” box. Panic attacks usually mean extreme physical reaction triggered by intense fear when there is no real or apparent danger. For me, it’s not really a fear, or thoughts of imminent danger, it’s more like a “grief attack” with intense physical reactions based on extreme sadness and self-loathing.

My brain is a very fun place to be.

The first time this happened was at a post-partum appointment at the OBGYN. Obviously, being at the OBGYN after baby loss would be triggering for anyone, but this happened before I was even called into the room. I was sitting in the waiting area barely able to catch my breath, with my heartrate sky-high, facing the wall trying to avoid eye contact with anyone pregnant, and my Fitbit vibrated on my wrist, congratulating me for hitting my “zone minutes” for the week. I opened my Fitbit app, looking for a distraction, and realized it had clocked a 23-minute workout. This all happened while I was sitting in a chair just trying (and failing) to breathe normally.

The next time this happened was when I had a full abdominal ultrasound because my nephrologist thought there was a chance I had one kidney, since there seemed to be no other explanation for what happened to me. Turns out I have two kidneys. It also turns out that the sound of blood flowing into a kidney on an ultrasound machine sounds eerily similar to the sound of a baby’s heartbeat in your uterus. Cue grief attack. I couldn’t breathe while I laid there on the table. The technician was instructing me when to breathe in and out, because when your lungs inflate, they move your other organs around, making the ultrasound more difficult to perform. Clearly, I was unable to breathe on her count. I couldn’t breathe at all. I tried to focus on the ceiling tiles but soon enough I was gasping for air, with water streaming out of my eyes, and I started choking on snot while I was gasping, so she made me sit up to try and catch my breath. I got ultrasound goo all over the place, and the tech asked me if I had brought any family with me that she could call in from the waiting room.

Again, while I was caught off-guard by this grief attack, it was not exactly unpredictable. Of course I would be grossly triggered by my very first ultrasound with no baby inside me. Of course the sound of blood flow that was not a heartbeat drove me to tears. In my rational mind, this makes sense. But in my irrational mind, which is my mind most of the time, I got mad. Furious, really. Frustrated. Angry. Livid.

The mantra in my head over and over again was, “Why can’t I be normal?? Why am I like this? Why can’t I do ___ like a normal person? I used to be able to do ___ without a problem, now I am a freak. I’m the same person but now I’m completely f*cked up.”

As I mentioned, my brain is a very fun place to be.

This week was different because I thought I was safe in non-healthcare settings. But Thursday I went to the gym and I proved to myself that no, I am messed up in many different kinds of settings, yippee!

Thursday at Orangetheory was a “benchmark” day called the 12-Minute Run for Distance. A few times a month, they have treadmill or rowing challenges where you measure your progress on distance, speed, incline, or power. They repeat these workouts 2-3 times/year so you can see if you have improved. As the coach said before class last week, “it’s you against you.”

The last time I had done that benchmark was in April 2022, the month before my wedding. I had been working out a lot, and I was in pretty good shape. But I’ve been working out now 5-6 times/week mostly as a mental distraction, and I thought I had set myself up to PR. I was determined to beat my previous distance.

Well, readers, I did not. I matched my distance exactly, down to the hundredth of a mile. I got off the treadmill and tried to continue the workout, but I found myself falling apart as I picked up the weights for the next part of class. I went to the bathroom to try and calm down, but it did the opposite. I started beating myself up.

My internal dialogue: “Why couldn’t I get .01 extra on the treadmill? What is wrong with me? It’s not like I have anything else going on. All I do is work out. It’s not like I’m taking care of a baby. I’m trying to come back from a post-partum break where I wasn’t allowed to work out, but I have literally nothing to show for it. I don’t have a baby. I don’t even have .01 on the treadmill. And why am I coming back from a post-partum break? How? How is it possible that I need to have a post-partum come-back when I am childless? And I’m supposed to be thinking about going through this again? Why would anyone ever do this again?”

Then the really fun thoughts start in: “Why am I not better yet? It’s been 8 months. Some people would be functional by now. And I’m in the bathroom at the gym struggling to stand. Why can’t I be normal? I used to be able to get through a f*cking class at the gym and now I’m so messed up I can’t run 12 minutes without having a panic attack?”

I finally got to a place where I thought I could go back to class, so I did. I lifted weights for 3 minutes while I continued to battle myself in my head. That’s when I realized that my heartrate monitor had been on the whole time. Everyone in class was in blue and green zones (moderate effort) and my name was the only little box on the screen in orange and red, clearly still in full panic. When I realized that the entire class saw my heartrate sky-high during the mental breakdown I had in the bathroom, I completely lost it again and left the gym. Somehow, I wiped off my equipment and got my stuff from the locker, and made it 10 yards from the studio when I stopped being able to breathe again.

I sat down on a railing and tried to breathe. I counted 4 in, 4 out, but it wasn’t helping. I was crying hard at this point but I’m not sure how long I was there. One of the best parts about NYC is that people mind their own business. But on this particular day, I guess I looked like I was in acute distress because a woman walking her dog asked me if I was ok. I nodded. I thought she would go away, but no. She asked if I had asthma, I shook my head no. She said, “should I call you an ambulance?” I vigorously shook my head no. Given that my previous panic attacks were both in medical settings, I knew the last thing I needed in that moment was interaction with healthcare professionals. The woman asked, “are you sure?” and I nodded again, so she walked away. I think the fear of having to talk to EMTs scared me into action. I went through a list of people in my mind who I could call, who wouldn’t think I was a complete basket case. I realized it was really only Chris because he had seen this happen to me before, so I called him and talked to him while I tried to get myself home.

An hour later, once I showered and through some superhuman power, braided a girl’s hair for a race, I was able to see what happened with some distance. When I took 3 steps back and I was in a better headspace, when I was able to breathe, I said to myself, “this makes sense. You are very sad. You’re not the same person, you had a baby die inside you. You gave birth to a dead child and almost died this year. What you achieved on the treadmill is a triumph. Despite everything that happened this year, you are not only alive, but you are in as good shape as you were three weeks before your wedding.”

I see that when I am not deep in it. But when I was in the bathroom at the gym, trying to tell myself those very same things, I couldn’t believe it. All I could believe was, “fail fail fail fail fail.”

Later that night, after talking sense into myself and feeling like a completely crazy person (because who starts sobbing at the gym???), I wrote to one of my loss mom friends and explained what happened. She told me that it’s so, so hard but also so, so relatable. She said that being in an extreme pit of grief feels like you are fighting a constant battle with yourself, and it’s excruciatingly exhausting. I couldn’t agree more.

I’m tired. I’m tired of being sad and I’m tired of being mad at myself for being sad. I wish I was “over it.” I wish I was “better.” It’s ironic that the Orangetheory coach had said “it’s you against you” for the benchmark, since that is ALWAYS the battle I am fighting in my head. I want to be kind to myself, I want to “give myself grace,” as all of the Instagram Inspo accounts say, but it’s easier said than done.

The ”benchmark workout” felt in my head like it was a benchmark of more than just distance on a treadmill. To me, it was a benchmark I was measuring to see if I was still the person I used to be. When I “failed,” and found out that no, I am not, and I will never again be her, it hit me like 100 tons of bricks.

Watching other people around me grieve differently and on different timelines makes it even harder. While I try not to compare, it’s impossible. Of course, I’ve read all the books about how grief’s timeline is different for everyone, but I want to be done. I want to quit. I want to trade in these feelings for other ones. I want to talk to the manager.

But that’s not how life works. And as surprised as I am every day to wake up, ready to put on my armor and go to battle with myself yet again, here we are, alive another day and ready to fight. Waking up each day as your own worst enemy is tiring and demoralizing. I hope someday to be a friend to myself. I hope that I can be kinder to myself. Gentler. Softer. Since it’s nearly December, maybe that will be my New Year’s Resolution. I am going to try my very best to be kind, because at least that is something I can control.

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Grief and Pregnancy Loss

What’s in a Name?

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Naming someone is a huge responsibility. You are deciding what a human will be called for the rest of their life.

When I found out I was pregnant, I knew I would take this responsibility seriously. Part of the reason I was so invested in this process was because I hate my name. It is so common, so typical. Everyone knows an Emily. Actually, everyone knows multiple Emilys. When a person hears my name is Emily, they automatically know what they think I’ll be like. They preconceive my personality, my appearance, and they probably assume I’ll be a white girl in her 20’s or 30s. And they’ll be right.

The first time I realized how much I hated my name was in 9th grade when I went to sleepaway camp and in my bunk of 20 girls, there were 4 Emilys. Someone who did those assignments was surely chuckling at our confusion, but for us it was annoying. I remember each Emily came up with a nickname so we could tell each other apart, but my “nickname” was just “Emily.” Lame. Just last month I was in the airport when some “Emily” was late for her flight that was boarding at the gate next to mine. They kept paging an “Emily” over the intercom and I kept taking out my earbuds to see if it was me. But no, I was not traveling to Minneapolis, it was just another one of the million Emilys.

I have been pretty vocal to my parents about how annoying this is. Sure, every time I go to a souvenir shop I’m guaranteed to find a keychain or magnet with my name on it, but I also constantly answer to strangers who are calling out in the grocery store for another Emily. I go to Orangetheory, where they put your heartrate zones on a tv screen and sort them by first name. I’m constantly squinting across to room to see which Emily I am on the screen because there is ALWAYS more than one Emily in class. This is such a pervasive issue that the New York Times had an article about the extreme amount of Emilys recently. At least 10 people sent the article to me, since my friends know I complain about this all the time. I, of course, forwarded it to my parents to show them that I was not alone in my strife. There are too many of us!

When Chris and I tried to come up with names for our baby, we couldn’t agree. I had 4 things mandatory on my list:

  1. Unique
  2. Easy to pronounce
  3. Gender neutral
  4. Good nicknames

Chris and I had a Baby Names app where we could swipe right or left on names we liked or didn’t like, sort of like Tinder for names. We could do this asynchronously, and we were notified every time we had a match. Chris and I both had so much work and personal travel my first and second trimester, we were often not in the same place and this helped us move the name conversation forward without long, in-person conversations. I swiped and swiped (mostly left) and waited for a match. Matches did not happen often. Even for the names we agreed on, when we talked about them, we usually decided they weren’t top of our list, they were just “maybes.”

That is how we ended up in the hospital at 6 months pregnant, with the unexpected imminent birth of a child and no name.

Of course, we ended up with a dead daughter so there was no birth certificate, and no name was necessary.

I didn’t really think about a name after I gave birth. I didn’t think about anything. I was completely numb and I was on a lot of medications. I hadn’t even known she would be a girl until she was already gone. I went home from the hospital in a daze. Later in the week, I tried to rifle through the packet of papers I had received from the hospital. Some of the things were not helpful, but at the back of the packet there was information about support organizations. A lot of them were specific, either to religion, or type of infant or baby loss, but there was one organization that seemed local enough and broad enough to be helpful. I found their website and saw I could request a free peer counselor via webform. Since I was struggling to speak, this seemed easy enough. I wrote something like “I lost my baby over the weekend, and I wonder if you can help.”

The next day I received a call from one of the volunteers coordinating the program, and she asked me questions, trying to get more information so she could match me with the right peer. I cried silently through the conversation, but I don’t think she could tell. She said, “does your daughter have a name?” I was frozen. I didn’t even think of her as my daughter yet. People had never said that. At the hospital they tip-toed around terms. They were more concerned with my health and getting me in good enough shape to discharge from the hospital. No one wants a bereaved woman on the maternity ward, least of all herself. No one at the hospital called me a mom since the first night in triage when things started going south, no one mentioned my daughter. No one said “death” or “died.” There was vague conversation about “loss.” And here was this woman on the phone talking about my baby in the present tense, acknowledging she was a person, a girl, my actual child.

I said, “no,” because I couldn’t even bring myself to say, “we didn’t name her” and acknowledge “she” was a “she.” The woman on the phone said, “we really encourage moms to name their babies.” I thought, “Moms?? I’m not a mom I have no baby.” What I said was, “why would I name a dead baby?” She had a lot of reasons, and they all seemed equally as dumb to me. I was trying to FORGET that I had been pregnant. I was trying to forget that I had a baby, and now I don’t. I was trying to forget that for the brief moment in time when I did have her, she was killing me from the inside physically, and now she was killing my soul. Eventually, the woman on the phone stopped pressing the name thing because I was clearly not engaging, and she moved on to other topics. At the end of the conversation, she brought it up again. She really urged me to think about it, because in her experience, she had found naming a baby helped people heal and move forward. I agreed to think about it.

But I didn’t think about it. I went through the motions of living. Waking up. Staring at the wall. I went on walks to kill time. I saw doctor after doctor after doctor. None of them asked about my baby. It was all about me. Was my liver still failing? What caused this crazy fluke? Did I maybe have one kidney? Did I have an auto-immune disorder? The conversations of the long-lost baby were forgotten.

Meanwhile, I started following many dead baby accounts on social media. I listened to innumerable podcasts on my endless walks. On every single one of these accounts, people talked about naming their children and the way these moms talked about their children was heart-warming. I started to change my mind. I talked about it on support groups and with my therapist at the time. I decided to talk to Chris about it. He didn’t really see the reason for it. I tried to explain that it all felt made up. I felt like I dreamed up our whole pregnancy. She was inside me and now she wasn’t. No one knew about her. No one even knew she was a girl. How was I supposed to wrap my mind around the fact that “it happened” when “it” was a person, and that person didn’t have a name?

A few weeks before I was admitted to the hospital, I had asked Chris to send me his list of names from the Baby Names app. After our conversation months later, I went back through his list of names. The very first name on the list was Maliyah (muh-LEE-uh), like Malia Obama but with a more beautiful spelling. I absolutely loved the name immediately.

All of the reasons I wanted a gender-neutral name did not apply to a dead child. She would never go through the world. She wouldn’t have to deal with people’s assumptions before they met her because no one would meet her. No one would ever see her resume. I also cared less about having an easy-to-pronounce-by-sight name. No substitute teacher would ever call her name in class. I still wanted a unique name, one that showed everyone how special and different she was to us. I needed a name that made us think of beauty.

I looked up the meaning of Maliyah, and the first website I saw said it meant “beloved and bitter.” I felt the breath leave my lungs. How perfect and apt. I didn’t say anything to Chris, but I started thinking about her as Maliyah in my mind. I wanted to get used to her having a name. I was curious how it would make me feel. Almost immediately I found my perspective start to shift. She felt like a person. She felt more real. My grief made more sense. Of course I was devastated, I had a human inside me and now she was dead. The more I used a name in my mind, the more it felt necessary.

I brought the conversation up again to Chris. I was expecting a bit of a fight, since we had so much trouble agreeing on a name when we thought she’d live. But I think it was more important for me. I needed her to have space in the world and in people’s minds, and no one gives space to a nameless human they’ve never met. I told him about the meaning of Maliyah I found online, and he agreed, it was perfect.

The next day, I went to happy hour with a girl I had met from a support group and I told her we had a name. She asked what it was, and I said Maliyah out loud for the first time outside of our apartment. She said it back to me, and she said it was a beautiful name. I started crying. It was the first time I had heard her name out of someone else’s mouth. It gave Maliyah legitimacy. She existed! Other people knew about her and spoke her name! I immediately felt so happy she had a name. I started telling other people: my family and my therapist and my best friend.

I suppose it’s strange I haven’t said her name yet on this blog, given how happy it makes me feel to hear people say it. I posted her name on social media when we talked about her on her due date (blog coming on that next week), but sometimes I have conflicting thoughts. I want EVERYONE to know about her, but I also want to preserve parts of her for me. It’s a strange dichotomy I can’t explain. There are so few memories and so few mementos. We had so little time with her. Sometimes these things feel sacred and scarce, like a nonrenewable resource I need to keep all to myself. But sometimes, I just wish one person would text me and say her name. As my therapist would remind me, it can be “yes and,” because dialectical thinking exists. I can want people to talk about her, but also feel like I wish I had more of her to share. I can want the world to recognize she existed, but also feel that what little I have, needs to be protected.

But I do want people to talk about her. If we ever have future kids, I’ll want them to know there was a baby before. I want my friends to use her name. I wish I had more to share. I wish I had more memories. I wish I knew her better. I only have assumptions and unrealized hopes and dreams. But she did exist. And she did have a name. Maliyah.

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Grief and Pregnancy Loss

‘Tis the Season

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When you think of the saying “tis the season,” you think of Christmas, or the Thanksgiving-Christmas combo. But in my mind, the “season” starts with Halloween.

If you’ve been around here for a while, you know that Halloween is a National Holiday (caps-intentional) in my household. For as long as I can remember, I have loved Halloween. There are many photos of me as a young kid in various costumes, from a yellow M&M to a clown, to a gypsy (clearly before we cared about being politically correct). Then as a college student I had multiple costumes a year that bordered on ho-tastic. Thigh high stockings were often involved. As an adult, I came into my Halloween new self, and decided that full-body unitard costumes were my new love. I was a treasure troll (nude unitard), Smurfette (blue unitard), a Hershey Kiss (silver unitard), an Oompa Loompa (hand-dyed unitard), etc etc etc. When I moved to New York, we often had big group friend costumes like Wizard of Oz and Care Bears. Eventually when Chris came into the picture, I folded him into the group costume sometimes, like Winnie the Pooh (he was Christopher Robin) or Ninja Turtles (he was a slice of pizza). Some years it was just Chris and me, like when we were a gumball machine and a quarter, and Blue and Steve from Blues Clues.

My costumes often involved some sort of stomach stuffing or camouflage. As I mentioned last week, my body-dysmorphia contributed to my costume choices, and they often involved stuffing the stomach of my unitard. After many years of stomach-stuffing, it was ironic last year when I was actually pregnant on Halloween and I again wore a unitard but did NOT want to draw attention to my stomach. I hadn’t told any of my local friends yet, and in fact, during our annual traditional Halloween Pub Crawl, I told my first friend in NYC, so she could help be a decoy as I ordered gin and tonics, sans gin.

I remember that day so well. I woke up to put finishing touches on Chris’s and my costumes, Tweedle Dee and Tweedle Dum. I googled classic poses so we could do a side-by-side picture with the cartoons. I remember being relieved to find one picture where they were sort of leaned over. It was the perfect pose to hide a stomach and not cause any speculation. We headed down to the pub crawl and I somehow got my friend away from the crowd to tell her our news. She was so happy for us. I spent all day drinking tonic water and pretending to be drunk. At one point, another friend asked me why my drink was in a larger cup than hers, and I had the quick thought to tell her I had ordered a double. I was pretty proud of myself for coming up with that answer on the fly and presenting it in a believable way, but my brain was crystal clear, after all, I was sober and she was not.

I was SO tired, and I didn’t know if it was from being pregnant or from traveling back from Australia, and then to Los Angeles and back the previous week. All of my recent travel gave me a perfectly legitimate excuse to leave the pub crawl early. When I got home I was so relieved that our secret was still safe and I had made it through a day without anyone knowing.

Secret Pregnant
The most sober person at the pub crawl

I was already brainstorming costumes for the next year. I figured that I might not be at a pub crawl, but I definitely planned to have a family costume including a 4-month old baby. How exciting to have a new configuration for a group costume! I was researching ideas online of family costumes with babies involved. I had a running list of ideas. How naïve and positive of me to assume at 8 weeks pregnant that I would have a whole alive baby the next year? It seems crazy to think that that same girl now can’t even picture what it would be like to have a child that’s alive.

Thanksgiving brings even worse memories; I was 12 weeks pregnant. As you know, the Macy’s Parade holds a very important space in our family’s traditions. I’ve been attending since I was a baby. Last year, I went to watch with my sister. I was pregnant and she knew, but my parents didn’t know yet. It was 6 am and we were waiting hours for the Parade to start. Usually we stood and played games, but I felt so nauseous. I sat on the ground and munched on a protein bar and tried not to throw up. I was scared to drink water because I knew I would have to pee. I was planning to tell my parents the news the next day and my sister and I were predicting how it would go. I remember saying I thought they’d cry. I remember talking with my sister about how the next year I couldn’t watch the Parade in person because I’d have a 5.5-month old. She said I could definitely bring her, and we talked about how it would work out. Now Thanksgiving is around the corner and the thought of watching the Parade and NOT being nauseous makes me nauseous. Thinking about watching the balloons go by without a baby on my chest is so depressing.

December holidays bring another additional set of depressing thoughts. Chris and I had many conversations about what religion we would raise our kids. We decided we would incorporate both of our religions. The thoughts of a baby’s first Hannukkah and Christmas were so exciting. I thought about the ornament we’d get for our tiny tree. I purchased matching sets of Hannukkah and Christmas pajamas for our little family of three when they were on clearance after Christmas. I was 17 weeks pregnant, I was home free! (Can you see my eye roll through the computer?)

Sisters at the Parade (the Pillsbury dough boy wasn’t the only one with something in his belly!)
I looked so happy. I was so naive.

When we were in school, seasons were always a sign of change. Summer was time off, vacation, camp, trips to the pool. Then every August/September marked a new year. Leaves fell and we counted the days until Thanksgiving break. Winter in Florida marked a welcome reprieve from humidity, and a trip to the beach on Christmas Day. Once I moved to New York, Christmas was magical. The streets were lit up, the tree went up in Rockefeller Center, and there was always a possibility of snow. Then spring came and we were so relieved to have more light and shed our heavy jackets.

Now, every season sucks. One starts, and it sucks, one ends, and I remember how it sucked. I remember distinctly the week after Labor Day this year, I felt like I was stabbed a million times a day as all of the small talk revolved around the questions, “how was your summer?” and “what did you do this summer?”

I was supposed to be on maternity leave all summer. I was supposed to take care of a baby all summer. My summer was supposed to be magical and the start of a new chapter of my life. Instead, I was working and trying to get through every day one minute at a time.

Here’s what I wanted to hear in September, “Congratulations!” “Welcome back!” “Can I see a picture of your daughter?” I didn’t hear any of those things.

Instead, I don’t really remember the summer. It started with our first wedding anniversary… without the baby we were supposed to have. Then was my due date… without the baby we were supposed to have. Then our meet-iversary without the baby we were supposed to have. Then my nephew’s 1st birthday, where I was reminded that he was supposed to have a similar-aged-cousin. Then was the trip Chris and I took to try and distract ourselves from the fact that we had no baby.

How was I supposed to say that to well-meaning colleagues asking about my summer? I didn’t say that. I said, “good, how about you?”

I naively assumed that summer would be the hardest season. I thought for sure that summer would be harder than any other season because my expectations for what I thought it would be were so different from what actually happened.

But as autumn begins, I realize that my entire life, all four seasons of every single year, is going to be different from my expectations. What a doozy of a thought. It’s overwhelming.

I saw a post from a grief account on social media recently that talked about the seasons you had with your loved one who died. In my case I got only two seasons with my daughter. And I have innumerable ones left without her. How do I get through them? Every change in seasons is just a reminder that I am still here, the world is still turning, and somehow I continue to wake up. There’s a book called “How Dare the Sun Rise?” While the subject matter of that book is completely different, I think that same phrase often. I wake up almost every day in shock that the world is still existing while I am barely alive.

I’ve been talking a lot in therapy recently about trying to stay in the present. The past is filled with things I can’t change, and the future is completely outside of my control, so the only thing I can do is be in the present, try to find an ounce of gratitude for it, and continue on. But it’s hard to stay in the present when the present is so hard.

There are certain pieces of the holiday season that I will continue to observe, but at least this year, I have decided I need to opt out of some things for my mental health. I cannot fathom creating a DIY costume for just my husband and me, knowing that a crucial part of our group is missing. There’s absolutely no way I can sign up to hand out candy to the kids in my building who will come up to the door in all of their adorableness with their parents, while our house remains empty of little giggles.

I will probably still go to the Macy’s Parade and I will try to channel my gratitude that I only have to rouse myself and not a baby at 5 am to get a good spot. I will also travel to family to celebrate Thanksgiving and Christmas. But it’s not going to be easy. The constant comparison of what I thought the holidays would be, versus what they are, is on a loop in my mind. The only thing I can do is be honest by telling people I expect it to be difficult, and then try to give myself grace when it is, indeed difficult. At 8 months post-loss, It’s becoming harder for people to understand why I am still so sad, but I hope that reading this blog helps some people understand. I write it for myself, but I also write it as a gift of communication. I have learned over and over again that people can’t read minds, so instead, I have put my thoughts online.

Wishing you all a happy(ish) holiday season.

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Grief and Pregnancy Loss

Body Image and Pregnancy Loss

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TW: pregnancy loss and eating disorders and TMI if you’re not comfortable with female bodies

I have been debating for a few months whether or not I should write on the topic of body image and pregnancy, since I didn’t have a full-term pregnancy and my view is different from others. But a few weeks ago, I was on a support group with a fellow loss mom who lamented that her stomach was slowly getting smaller post-loss, whereas she watched other future moms as they continued to get bigger. I realized that while pregnancy and body image are intimately linked, so are pregnancy loss and body image. I can speak from both sides, the before, and the after.

I never understood people who said pregnant bodies were beautiful. I was never the type to look in awe at someone with a baby bump. Honestly, to me they looked uncomfortable. When I started to seriously think about getting pregnant, the thought of my body changing outside of my control was terrifying. For many years I struggled with disordered eating, but for about ten years, I’ve felt good in my own skin and I’ve been a staunch proponent of the body positivity/intuitive eating movement. I enjoy food and I don’t want to count calories. I also enjoy movement and I don’t want to count workouts. I like sweets, and I like lifting weights. I try to balance everything. Since I knew that being pregnant could cause me to change both my eating habits and my movement habits after I was finally in a good place with both, I was very scared.

After we told my parents I was pregnant, I remember talking to my dad on the phone and he asked me if I would take weekly “bump” pictures comparing the baby to a fruit or whatever weird thing the apps say your fetus is the size of (a peanut!). I remember exactly what corner of the sidewalk I was on when I started laughing hysterically. I said, “Daddy have you ever met me!?” I would never do that. The thought of taking maternity photos where I would be capturing my body in its largest and uncontrolled form seemed preposterous to me. Why would I ever want those pictures? I distinctly remember around 15 weeks when my blood pressure was on the cusp of normal and my doctor suggested she may want to induce me at 37-38 weeks “to be safe,” I was so excited because it meant I wouldn’t be so big and uncomfortable.

But let’s rewind. During pregnancy, everyone’s body reacts differently and there are a million things strangers will say about it. Pregnancy is one of the times society has decided that it’s ok to comment publicly about a woman’s shape to her face. Some people will decide you are having a boy or girl depending on if you’re “carrying high or low.” Some say you “pop earlier” if you eat certain foods, or do certain things, or who even knows. Everyone pretty much agrees that you don’t start to show until later if it is your first pregnancy. In my case, I am not a small person. I am 5’11” and I used to describe my body type on my OKCupid profile as “athletic.” Long legs, big city, remember?

More like, long legs, no big belly. Around 12 weeks, I started to get nervous. Why didn’t I have any bump yet? Not that I wanted to have a changing body, but shouldn’t I see something? I started to be a little more conscious of the foods I was eating. After years of “only eating when I was hungry” I started to think about whether or not I was hungry and why. People talk about pregnant women “eating for 2” or being ravenous during their second trimester. I never was. I was just eating the amount I normally ate. I started asking friends for protein shake recommendations so I could make sure I was consuming enough protein, but basically every protein powder said to ask your doctor before consuming it if you’re pregnant, so I nixed that plan.

For my 16-week anatomy scan, I went to a different ultrasound facility because most of them were closed. I happened to be 16 weeks during the week between Christmas and New Year’s Eve. Not ideal. My appointment was at 8:30 am. I hadn’t been that hungry, but I figured I should eat something, so I had half of a protein bar in the cab on the way there. Most of the scan went well, but the tech had some issues getting some of the pictures, because she said our baby was staying in the same position, and she needed her to move into a different position. She said sometimes this happens, and I might have to come back the next day. But then she asked me to stand up and walk around the office and she asked what I had eaten that morning. I told the truth (half a protein bar), and she started scolding me. She said, “your baby needs nutrients and you need to feed it what it needs. You need to think about your baby and not you.” I was taken aback. It wasn’t even 9 am two days after Christmas. I had basically rolled out of bed and hopped in a cab. I wanted to do what was best for my baby, but I didn’t want to gorge myself when I wasn’t hungry.

Two weeks later, I had a regular appointment with my OB, and I asked my doctor about it. I explained to her that I didn’t want to know what I weighed because I try not to focus on the number, but that I was yelled at by the ultrasound tech, and I wanted to make sure I was gaining “enough” weight to have a healthy baby. Of course, I ended up in tears. I cry every single time I see my OB now, but at the time, I think this was my first time crying in front of her. My doctor apologized profusely for the ultrasound tech and said she was out of line and really should not have said that to me and shouldn’t talk about what to eat. My doctor said I was gaining exactly what I should be for where I was in the pregnancy, and that I should continue to listen to my body about hunger cues. I noticed after that appointment that she added “history of disordered eating” to my chart.

At that same appointment, my doctor checked on our baby and mentioned that due to the placement of the placenta, I probably wouldn’t feel movement until much later in the pregnancy, but not to worry, everything looked perfect. It seemed hard to believe that I was 18 weeks pregnant but looked exactly the same. Throughout the winter I wore the same jeans without a problem. At 20 weeks, we had another anatomy scan, and again, everything looked great, but I still had no visible bump. At 23 weeks, I finally had a tiny visible bump. I noticed it in the mirror when I was just in underwear, but in clothes, it was hard to see. I was going to my friend’s wedding in Florida, so I bought a new dress that would fit well. For the day and night before, I wore my regular clothes, which still fit. I spent the day before the wedding at the pool with my best friend, and she commented about how she couldn’t believe how little I still was. My mom asked me if I bought a maternity swimsuit and I laughed. I just looked like I maybe ate unlimited breadsticks at the Olive Garden.

The next week, at a 24-week growth scan, everything was trending well, our girl looked good, and I still looked… barely pregnant. I was secretly thrilled. As long as our baby looked good, I was totally fine with a baby on the smaller side, easier birth, right? Less stretch marks! But it was still strange. Nobody who walked by me on the street would know I was pregnant, my own friends couldn’t really tell. I was still working out like usual, going to Orangetheory 4 days a week, doing most of the same exercises with the exception of some core work. I kept my ultrasound photos on the fridge as a reminder since there weren’t many external ones.

When I was checked into the hospital the next week, they had a mandatory protocol that they needed to have a fetal heartrate monitor strapped on to me 24 hours a day to monitor the baby. For me, they had trouble getting the monitor to stay in the right place because I barely had any bump. They Macgyvered all sorts of things to try and keep it in place. One nurse folded up a paper towel and put it under one side so the monitor was tilted down. Some nurses were better than others. Every 12 hours during a shift change, one nurse would show the next one what they had come up with to help it stay. But if I shifted even an inch, the monitor would slide or slip and the alarm would go off. I had to lay completely still for days. I had to alert a nurse every time I was going to go to the bathroom because I knew it would trip up the monitor. Reaching for my water cup would move it. The nurses kept apologizing and saying it was just because I wasn’t that far along, so it was difficult to keep in place. Of course, I knew I wasn’t that far along, but having that constant 24-hour reminder, while also being told I needed to deliver my baby within 24 hours was a complete mindf*ck. I hated my body, both the size of it, and the fact that it was failing me from the inside. The two were intimately intertwined.

Now, when I see people on the street with baby bumps, I immediately think, “if they had the baby RIGHT NOW, the baby would probably survive.” The exact bumps I didn’t want, and didn’t think were beautiful, are now the one thing I wish I had. Sure maybe they are 31, 32, 33 weeks, but that’s all I dreamed of, a few more weeks. I see that bump and I think, “survival.” I think, “If only I ever had that.” It’s wild to be so close to the loss that I can remember how I felt before about being that size, but I can also see how much my entire mindset has changed.

The one thing that definitely changed throughout my pregnancy was my boobs. My first indication that I was pregnant was that they were changing. As someone who grew up like Judy Blume, doing the “I must increase my bust” chants, they were finally increasing. I thought it would make me happy, but it made me uncomfortable. I remember one time saying to my friend on the treadmill next to me that my boobs were distracting me! I wasn’t used to even noticing my chest, and all of a sudden, they were right in my face. But then, as quickly as they were new and exciting, they were terrifying. Post pregnancy, I was told that my body would likely start producing milk because my body didn’t know my baby was dead, my body only knew that I had a baby. I was constantly terrified. My body had already completely disappointed me, and now there was this. I felt like everything that was contained inside my skin was broken. My doctor (and the internet) said that the only thing I could do to prevent this from happening was wear my TIGHTEST sports bra, 24 hours a day, and basically bind my chest. I scoured google for how long I would have to do this, but every website said something different. To be safe, I decided on a month. 30 days of wearing the tightest sports bra I owned. I feared warm water, too, another thing the internet warned about. I took cold showers and barely let any water get on the front of my body. I went to sleep praying I wouldn’t wake up with a wet shirt. Every night that first week my sheets were soaked, but it was “just” post-partum hormonal sweating. My body continued to mock me and my childless arms and womb.

And then, after that month of obsessive sports bra wearing, I finally took it off and my boobs looked… the same. Normal. Just like they had “before.”

Did I make it all up? Was I ever really pregnant? How could I wake up with no baby, to a dead silent house (pun intended), and yet I looked exactly the same. I felt like I had lived 100 lives. I felt like I didn’t even know the woman I was the year before, and yet I wore the exact same clothes. I fit into everything. My body failed me over and over and over again, and yet, the mirror said it was the same body. I was the same person.

I’ve always loved to work out, and one of the hardest parts of post-partum with no baby was the bar on exercise. During those first few weeks, I went on hours and hours and hours of walks just to get out of the house and fill the time. I don’t remember them, really, I would just move aimlessly. I couldn’t tell you what I thought about. I was just trying to fill time until I could sleep again. Not being allowed to lift weights, or run, or do anything active like I was used to made me feel even worse. How was it fair that I was not allowed to do the things I liked, and the things that brought me joy, but I also didn’t get a baby? When I finally was allowed to go to the gym again, I remember a friend of mine saying I looked thin. I said “thanks, I lost a baby worth of weight.” He already knew that, of course, but it seemed like the only thing to say. I wasn’t happy I was thin, I was devastated. For the first time in my life, I just wished I was bigger. For the people who didn’t know I had been pregnant, I probably just looked normal. Even for the people who did know, I looked normal. This was the strangest part.

Throughout my entire pregnancy I probably gained 4 pounds. By the day after the hospital, I had lost those 4 plus an extra 5. Some of that was probably from not being allowed to eat for 5 days. Some was from muscle deterioration. Some was from my baby being gone. Some was from blood loss and surgery. None of the lost weight was “good.” Even two weeks ago (7 months post-loss) I went to the doctor the day after going to multiple 10 course tasting menus in Peru, and she asked me if I had lost weight. I told her I didn’t know, because I don’t weigh myself, and she said I looked like I had. Never in my life had a doctor said that to me before, and for SURE never before had it been said with the unspoken words of “are you ok? You don’t look ok.”

Clearly, I’m not ok. I also don’t think I lost weight. But I certainly look sad. Sometimes I think the circles under my eyes and the hollows of my cheeks are simply physical manifestations of my brain. I look in the mirror and I don’t see “thin,” I see “sad.” I see the indents in my collar bones, and where I used to think “oh!” I now think “oh, right, dead baby.” I wish I saw my tired eyes I thought “new mom, no sleep.” But instead I see, “mom of a dead baby, nightmares.”

When I look at my body now, I see nothing but a container. I don’t think anything of it at all. The shape of my body is the least interesting thing about me. I realize now more than ever that the size doesn’t matter. It can look one way, and completely rebel against me. I was at Orangetheory feeling 100% fine, and 4 hours later I was in the hospital feeling 100% fine and they were saying I was going to die. I can look like a supermodel and my body can still try to kill me if it gets pregnant again. I don’t necessarily hate my body, I just am completely disassociated from it.

However, I have a new added fear that people might think I’m pregnant. Most girls always fear this, the “are they or aren’t they?” like Rihanna at the Superbowl. But now, there’s the added issue that if someone asks me, I know I will spontaneously burst into tears. I am especially nervous because I know it’s from a place of love, and people will act hopeful and excited for me. I’ve stopped wearing anything with an empire waist because I don’t want the speculation. There was a photo of me in a swimsuit from the summer that was at an unflattering angle and I immediately edited it. I don’t care how I look, but I don’t want to field any questions.

Back in my post about what not to say, I mention how you should not comment on a person’s body. You can see now, it’s because it’s layered. The fact that my child lived and died within my own body adds a huge layer of complication. It’s the only loss that is completely contained within another person. For men, they don’t have all of these additional complicated feelings, and that adds to the difference in grieving. While I look the same, everything about me has changed. It’s surreal.

I am not sure how this will manifest if I ever become pregnant again. Maybe I will be happy to have a big baby bump, or maybe I will be terrified of that as well, because it’ll be even one more thing I could possibly lose. Maybe I will be happy if strangers recognize me as being pregnant for the first time. Or maybe I will view it as superstitious and wear baggy shirts for fear of not wanting anyone to speak of it. I can’t predict how I will feel in the future, all I know is that it is complicated and while I wish more than anything that I had a baby, I am not looking forward to it.

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Grief and Pregnancy Loss

The One Where All of Her Friends Were Pregnant

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TW: Pregnancy Loss

I am 36 years old. That means that if my friends want to have kids it’s now or never. Unfortunately for me, that means a lot of my friends are having kids now. And I am… not.

It’s hard. I think the main theme of this blog post is going to be that it is just plain hard. It’s difficult to navigate friendships when you’re a loss mom and your friends are pregnant. It is difficult to keep friends when they’re pregnant, to communicate with them, to relate to them, to be happy for them, to be around them, and quite honestly, it’s hard to just see them. Let’s start there, with the bare minimum.

How do you keep a friend when literally seeing a picture of them makes you cry? I remember exactly where I was post-loss when I saw the first picture of my friend and her baby bump. It was bad. It set me off for about three full days. It was not a surprise that she was pregnant, I already knew. It was also not a surprise how far along she was, I knew her due date. But to see that physical proof of something she had that I didn’t have, it was brutal. (Side note: I do not fault her at all for posting a photo, in fact I have a whole blog coming about this.)

I saw her body, and my thoughts started to spiral: Was I ever that big? What did people think of me? Did they ever think I was pregnant? What do people say to her when she’s in public? Do people congratulate her? Give up their seat for her? Can her husband feel the kicks? Do they ask her what the sex of the baby is? Does she already have names in mind?

All of these were things that I never got to have, and they were right there in my face. The hardest part was that when that picture was taken, she was exactly the same amount of weeks I was when our daughter died, but every body is different, and my body never looked like that.

One option to deal with these friendships would have been to stop all communication with my pregnant friends, or as my therapist called it, avoidance LOL. I decided this was not what I wanted for a few reasons: 1. I had lost enough, and I didn’t want to lose my friends, too. And 2. My anxiety NEEDED to know that my friends were ok.

One of the worst parts of navigating these relationships was that my emotions were and are unpredictable. I really didn’t know that seeing a photo would be so triggering. But I knew that if a photo sent me down a rabbit hole, seeing a pregnant friend in person would be even worse. For that same friend in the photo, we were going to hang out a month later, but I ended up telling her a week later that I couldn’t. I just didn’t think it would be productive for either of us if I was crying the whole time. Another month later, I changed my mind again and decided that I wanted to see her, so long as she wanted to see me. My feelings and moods kept changing, and there was no way she could have known.

A month ago, I went to coffee with another friend who was 9 months pregnant. I was SO proud of myself for this, especially for giving her a hug when I left. I thought I might spontaneously break into sobs when her baby bump touched my flat(ter) stomach, but I held it together.

Even when we didn’t physically see each other, it was hard to cut off friends from communication when we were used to speaking constantly. As I mentioned in my blog about small talk, conversation felt extremely meaningless when I knew we were just dancing around and avoiding the big stuff. As the loss parent, it was my job, I supposed, to lead the conversation. Most good friends avoided speaking about their pregnancies to me at all. I knew they did this to protect my heart, but sometimes it felt like they were actually just hiding from me and excluding me. When I most recently heard from a friend that she, too, was pregnant, she told me she wouldn’t talk about it at all on the group chat. For some reason, that rubbed me the wrong way. I knew she was doing it so that the chat would be a safe space for me, but instead, it felt like my friends were afraid to talk about their lives in front of me anymore. I was too fragile for them to share with, and they had to walk on eggshells around me. It made me take a step back and think about what I actually would want, if asked, and I realized that I didn’t know! How could my friends possibly know if I didn’t know.

In my specific case, I had the added complication in my loss that I nearly died. When I think of pregnancy, I think of death. I know too much. I know allll of the things that can go wrong. For example, my anxiety and superstition would not let me publish this blog until all of my friends due in September delivered alive-babies, and all of my friends survived and went home from the hospital.

Recently, I texted another one of my pregnant friends who lives in the same neighborhood as me. I had texted her on her birthday a few months back and she hadn’t replied. I had seen her post a few times on social media, but she never mentioned a pregnancy. I started to get nervous. I texted and asked how she was, her due date, how everything was going. As I suspected, she hadn’t been texting me because she didn’t want to push her pregnancy on me. Once I texted, I opened our communication again, which I was happy for, but then she offered for us to go on a walk. This was one step too far. I couldn’t imagine chit-chatting and walking alongside a 9-month pregnant person. I typically avert my eyes when I see pregnant strangers on the sidewalk! She totally understood when I turned her down for a walk, but I imagine it was confusing for her that I was fine to ask about her due date, but not to see her. I couldn’t explain this discrepancy.

A few months ago, another one of my pregnant friends asked me if I wanted to know when she had the baby. I was adamant that I wanted, nay, NEEDED to know that she had the baby. I explained how I had extreme anxiety keeping me up at night, knowing that so many of my friends were about to go through this mortal and dangerous time in their lives. Of course, my therapist reminded me constantly that many babies (most babies, even) were born fine, and their moms are fine, but all I could remember was what happened with me. My friend told me she hadn’t even thought that I may be thinking about her own safety, but she was so glad she asked me if I wanted to know about the birth, because she was nervous to tell me.

During pregnancy, my friends were uneasy talking to me, but leading up to their due dates, they were even more hesitant. The crazy part was, I had experience with labor and delivery! I used to be someone that people went to for advice, but in this one area, I was cursed. People forgot that I had a kid and she just, unfortunately, died. My friends knew I was pregnant, and they knew I was not anymore, and a lot of them read this blog. But most of them forgot that I was VERY pregnant, that I understood what it was like to be pregnant, that I went through 31 hours of labor, and that I delivered a child. I’ve done it.

I was recently talking with a friend who had an induction date coming up and she was explaining to me a procedure she planned to have to induce labor. She explained it for a minute or two until I interrupted and said, “I know what that is, I had that.” I had it all. They did almost everything to get my baby out of me because she was literally killing me. I had a balloon. I had a membrane sweep. I had multiple (failed) epidurals. I had fentanyl in doses that I thought were reserved for shows like Ozark. I had an emergency operation post-delivery. And then, I was post-partum. I had all of the problems and physical limitations that come along with that. I was doing everything possible to prevent and minimize milk production, I had hormone changes, night sweats, a ban on sex and hot tubs, I just didn’t have a living child. I could relate to my pregnant and post-partum friends (minus the whole “taking care of a living baby” part), but it was uncomfortable to talk about because of the ending. I completely understood that they wouldn’t want to think about my experience because it was scary and horrible, but sometimes it felt like their avoidance invalidated my story.

On the flip side, I couldn’t really bring it up either because who wants to think about possible bad outcomes when they have hope and happiness? While I wanted to text my friends daily and remind them to check their blood pressure at home, I recognized that while I thought I was protecting and looking out for my friends, it could have been viewed as patronizing, not staying in my lane, and projecting my anxiety.

When I first talked with my therapist about my anxiety around my friends’ pregnancies, she asked if a small part of me wanted something to go wrong with their pregnancies so I wouldn’t have to go through this alone. But you know the saying, “I wouldn’t wish this on my worst enemy?” Well, I certainly wouldn’t wish this on my close friends. Not even a tiny little bit. I spent many weeks agonizing over whether to send baby gifts in advance. Even though my friends didn’t send me their registries, I knew where to find them on Amazon or Babylist, I had had them myself! Every time I added things to my cart and went to check out, I imagined them having to return the gifts or send them back, or worse, look at them in their homes and cry. I remembered myself packing our baby stuff on a luggage cart 12 hours after returning from the hospital so my mom could take it all out of our apartment. I thought about my friends having to go through that, and I couldn’t do it. I decided I would wait until all babies were earth-side and I could feel some sense of calm and celebration for everyone. I’m not going to lie, buying items I had looked at for myself, and sending them to someone else, was not easy. At all. But I tried to channel my relief that they didn’t have to go through what I had, and I was able to feel some sense of joy. As a lot of memes say, “happy for you, sad for me.”

It’s hard not to compare. When my first friend mentioned she had a baby at 3 am, I remembered that I had, too. But she was in labor an entire day less than me. How was it fair that she had a living child AND 24 hours less of labor? I thought to myself, “AT LEAST let her go through a tough labor.” But then, a few weeks later, another friend of mine had her baby and her husband talked on Instagram about how strong she was for going through 24 hours of labor. Meanwhile, I went through 31 and no one was singing my praises on the internet. I can’t tell you what it’s like to labor hoping you’ll have your alive baby in your arms soon, but I can tell you what it’s like to labor knowing yours will be dead and I can almost 100% assure you it’s worse. But none of this is fair, and knowing that others went through 4 or 24 hours of labor doesn’t make it any better.

So, PHEW, now they all have living babies and everything is great, right? Wrong. Pregnancy, while temporary, leads to a permanent role change. The best-case scenario of having a pregnant friend, is that they eventually become a parent friend, and they have a living child for the entire rest of their lives. This brings a whole new set of problems I’ll reserve for another post.

A few weeks ago, I was on my way to a baby loss event with Baby Loss Library when I was scrolling through Instagram and saw my third friend who was due in September had her baby. Almost at the same time, she messaged me. She said since it was Sunday, she was planning to “have beer and watch football like a normal person.” I was on my way to an event full of moms with dead babies, and I realized the cold reality that I would quite literally never be a “normal person” again. Yes, I might have my own little family someday and I may also be watching football and drinking a beer, but I’d always have a dead baby. It was impossible in that moment not to compare. I was thankful to spend the day with women who understood, but the contrast of a “normal person” versus me, spending the day talking about dead babies, is my reality now and forever.

When I started writing this, I wanted to give tips. I wanted it to be a “how-to” of navigating friendships while dealing with loss. After free-writing, I realized I can’t give a how-to, because I literally don’t know how to! My main takeaways are for those who are pregnant: You should know that navigating this is hard. While us loss-parents know you are probably scared to bring up your pregnancy, and you are probably scared to even reach out period, please do. It’s a huge burden for the loss mom to constantly reach out. Loss moms are probably anxious, scared, scared to scare you, and lonely. We probably don’t want to bring our bad juju into your space. But we also probably love you and want the best for you. And while we may not be able to be “happy” for you every day because we’re jealous and angry and sad, we also don’t want to lose you. We’ve lost enough. So please, check in. Ask how to be present without showy. Be sensitive but not absent. Ask what we want to hear. What pictures of your babies we want to see. It may change day to day. And hopefully someday, we can all have earthside kids who play together.

My beautiful place setting at the baby loss event, with free books, a bracelet for pregnancy and infant loss awareness month, and of course the dates with the most important spaces in my heart.
The mandala I painted, they provided all of the supplies and instruction and frame.
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Grief and Pregnancy Loss, Travel

Peru Part Dos

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If you missed Part Uno, start there!

Our first day in Cusco, we had a bumpy start because our flight was nearly two hours delayed. Our scheduled tour was supposed to begin at the Cusco Cathedral, but we wanted to put our bags away, eat some food, and change shoes, so we met up with the tour at stop two. Cusco was the capital of the Incan Empire, so we started at the most important Incan temple, called Coricancha, that is right in the middle of town. We learned about the amazing ways Incas measured time, astronomy, and seasons. We also learned about their ingenious engineering using internal metal joints and trapezoidal shapes to resist seismic waves. Their engineering is why so many of their temples and fortresses are still standing despite the many earthquakes that have hit Peru since the time of the Incas. Unfortunately (or fortunately!) this was the first time we had rain on the trip. While inside Coricancha, we were able to stay under covering until the clouds cleared, and then at our next stop we were blessed with a fabulous rainbow and mostly great weather for the rest of the trip. I “wasted” 5 soles on a disposable poncho, but since that converts to about $1.25, I was ok with it.

Next on our tour we visited a few other Incan ruins, including Sacsayhuamán, an Incan citadel, and we had some time to explore on our own. It’s crazy that so many of these ruins are just massive things standing on semi-public grounds (with ticket entrance) and you can just walk around on them and touch them. We ended the day at a store that specializes in alpaca and baby alpaca scarves. We learned about the world’s most expensive and exclusive wool, made from vicuña, one of the two wild South American camelids, which live in the high altitude areas in the Andes.

Coricancha after the sun came out
Saksayhuaman
Saksayhuaman with sexy women!

We were told by our travel agency to avoid red meat and alcohol while we acclimated to the elevation, and since 11,500 feet in Cusco didn’t seem like enough for us, we booked a last-minute trip to the Palcoyo Mountains for the next day, which stand at a cool 16,076 feet. Most people who have been to Cusco may have heard of Vinicunca, which is a large rainbow mountain about 3.5 hours from Cusco. Many tourists go there, and it is 17,000 feet above sea level. Also, it is 3.5 hours from Cusco, and an hour and a half hike once you get there. For all of those reasons, we searched for alternatives. We were pleasantly surprised to find Palcoyo, which is an hour closer, 1,000 feet lower, only a 30-45 minute hike, AND it has THREE rainbow mountains instead of one. However, since it is less visited, there were no tours and we had to book a private driver and guide. Thankfully, it was only $50/ person for the entire 9-hour day (what!??). Our driver picked us up and along the way, our guide taught us facts about Peru and alpacas (they’re trimmed once annually after winter for fur, and the first shave is most valuable and softest), and the rainbow mountains (they used to be lake beds, and the colors come from sedimentary minerals).

When we got to Palcoyo, the views were breathtaking, literally and figuratively. It was certainly tough to climb stairs and mountains at that elevation, but with periodic breaks, it was doable. The scenery made it all worth it, and at the top, we took photos with alpacas after tipping the local man who brought them there specifically for photo opps. We saw a total of ten people the entire time. It was so nice and peaceful to have the mountains to ourselves. About 700-1000 additional feet up, there was a “stone forest,” and while the other girls opted out of the “encore hike,” I decided I wanted to do it. #YOLO, right? When else was I going to be there? Our private guide walked me up to the stone forest, which I appreciated because it had started sleeting and he kept me steady on the way back down. He also served as an expert photographer. It was stunning. Truly so special. I started to have the same spiraling thoughts I mentioned last week, about how lucky and unlucky I was to be there, witnessing these beautiful sights, but I tried to keep them at bay while I climbed down the slippery mountain back to my friends.

Along the way up the mountain, we had seen various piles of stones and our guide had explained that they were called apachetas, a combination of the words Apu, the name of the Mountain God, and Pachamama, the name of Mother Nature. People made these tiny rock towers as offerings to hope for good luck and blessings, either on their current journey, or in general. On our way back down the mountain, my friend and I decided to make our own and we scoured the mountain for different colored rocks of various sizes. Our guide helped us balance it and as soon as our apacheta was complete, it started sideways sleeting. Our guide said this meant our offering was received, although we couldn’t be sure if it was a good or a bad thing. After an exhausting day, we had dinner in Cusco, and then packed our bags again to get ready for our next day in the Sacred Valley and our journey to Machu Picchu.

Girlies!
Look at these.
Alpacas! Plus Peruvian man.
Kiss kiss!
Rainbow Mountains pre-sleet rolling in
Rainbow mountains and sleet
Stone Forest
Best photographer
Look at this view! Sleet and all.
Apachetas and Sleet

We started our day early, cramming our many bags into the van for the day. Our first stop of the day was a lookout point with a breathtaking view of the Sacred Valley. We stopped for a few minutes to take it in, and of course to take some photos, then we headed to Pisaq. We stopped at a silver factory that was more like a small storefront, where we learned all about silver, silver-making, and even got to see some of the local artists making jewelry. There were some aggressive sales tactics, and they worked. I bought a couple things and then we headed to more Incan ruins. While each one of the sites was impressive, I must admit they started to get a bit repetitive. We climbed many, many stairs, and we started to recognize certain architectural patterns, ways the Incas tracked the sun and the stars, and the ways they built their civilizations to face the best sunlight for their crops. In the afternoon, we went to Olantayytambo, another ruins site, with 254 more stairs to climb. We did it! This specific site was interesting because it was overlooked by a mountain with two faces in it – one profile that was natural, and another that was carved by the Incas. It was a fabulous view, and we were blessed with amazing weather.

In between ruins, we ate lunch at a restaurant called Tunupa in Urubamba. The food was buffet-style and it was fine, but the views were out of this world. The restaurant was situated on the Sacred River, and after we ate, we went to the river to put our hands in and gather all of the blessings the river would give us. There were alpacas and llamas on the grass, and there was even live traditional Peruvian music, played with multiple different kinds of flutes.

After many, many stairs, we were ready for a break in the form of a train ride. We were dropped off at the train station, where we were surprised by another dance party, as people in traditional clothes held signs and danced and sang and led us to our train car. The entertainment didn’t stop there. Not only did the train have some of the most beautiful scenery I’ve seen, as we traveled along the Sacred River, but there was also a show. Two of the workers put on a whole love story skit in the middle of the ride. I had no idea what we were in for, and I didn’t understand any of the words, but I got the gist of it. After we dropped our bags at our hotel where we would be only one night, we went out to find food. Not only did we find a restaurant called Machapo that served both guinea pig and alpaca burgers, but we also found the friendliest waiter in all of Peru. We are now Instagram friends. Hi Kevin! Miss you every day!

Sacred River, hoping I got some blessings
So. Many. Stairs.
Can you see the faces?
Train and dance!
Amazing train views, before we even got on!

The next morning we were up with the sun and ready to hike Machu Picchu. As I mentioned before, we did not do the 4-day Inca trail. Instead, we took a bus to the entrance. This is traveling in your mid-30s. I have no regrets. Of course, the day started for me with many braids. I did 2/3 of my friend’s hair, and I did mine in the bus. Again, this day we had a private guide, which was helpful because we could take as many breaks as we wanted, and we had a built-in photographer. Our guide liked photos a LOT more than we did, and he insisted on many, many, many photo breaks. You should see my camera roll. He wanted individual shots and group shots and selfies. I only included a select few below.

The views from Machu Picchu were truly gorgeous. We had picture-perfect weather, and despite it filling up by noon with people, it felt like we were there alone. There was a moment (after our 100 photoshoots) where we just sat down and took in the view. Again, I was hit by a wave of sadness. It’s really hard to be in such a perfect place and then reflect on my not-so-perfect life. The juxtaposition of the beauty and the hurt seems to highlight itself like a neon sign whenever I realize the vastness of everything. I see ancient ruins and I just think about how small my problems are, but then I realize how BIG they are to me and it just makes me sad. It’s hard to be present when my present is so hard. My thoughts constantly go to my friends with babies, and thinking about how I’m “lucky” to be where I am, but also wish I wasn’t. One of my therapists always encourages me to feel my feelings but also recognize that emotions are fleeting. I try to understand that I’m feeling this way and that it makes sense (because my baby died), but I should also allow myself to move through it and into a less heavy feeling.  We started to climb down the many stairs and back to the bus to town, where we had lunch and I started to feel lighter again.

We went back to our hotel, grabbed our bags, and then took a train back to Cusco, where we did some final souvenir shopping and then packed again for our flight back to Lima the next morning. Our final two days in Lima, we mostly ate a lot of food. We also went to see the catacombs under the San Francisco Cathedral (no photos allowed), but we mostly ate.

As I mentioned last week, Lima has established itself as one of the world’s greatest food towns. No city other than Copenhagen also has two restaurants on the current top 10 of the prestigious World’s 50 Best Restaurants list. Lima has Central (#4) and Maido (#7), both of which were completely full when we tried to make reservations, since we only booked our trip three weeks in advance. We decided to try our luck and put ourselves on the wait list for Maido, and we got in! I am not exactly sure what we were thinking when we booked a 16-course tasting menu for 9 pm on a day where we had an early flight that morning, but we were excited to try everything. The food was absolutely fantastic. They call it the “Maido Experience” and it was a true experience. However, by midnight, we were falling asleep at the table with 3 courses left to go. I included some of the food photos here, but the pictures cannot do it justice. The cocktails were creative and the dishes were delicious. But don’t worry, by 1 pm the next day, we were ready to eat again and we had a reservation at another highly rated restaurant, Gaston y Astrid. The restaurant is centered around a beautiful courtyard with a huge tree in the middle. We chose to order a la carte this time, and again we had the most amazing food. We left with extremely full stomachs.

Glorious Machu Picchu
Part of our many photoshoots
More learning about Incas and the Sun Temple
Sitting, pondering, probably crying.
#GirlsTrip
The beginning of a lot of food

The first few days I was in Lima, I had decided I wanted to try paragliding. I hadn’t done anything crazy adventurous since I was in Australia when I had gone scuba diving, sky diving and ziplining in one week. I was ready to try another new thing. But the day I wanted to go, it was extremely cloudy and I was scared I wouldn’t have much visibility. I decided to postpone until we were back in Lima and hope for the best. Sure enough, on the day we landed back in Lima, it was cloudy but better than before, so I decided to go for it. As I waited for my turn to go into the sky on a tiny air boat/go-cart apparatus, I thought for sure that it was the end. My friend recorded a video of my “last words.” I found out that the woman I had booked with via whatsapp was the wife of the pilot, and so I figured she didn’t want us to go down, either. Nevertheless, they did give me a life vest to wear in case we crashed into the ocean. I didn’t tell my husband or my parents I was doing this, why worry them!? While I am not immune from fear, I definitely care a lot less about dying now. Since I wake up every day now and think “ugh this again,” it makes it easier to do riskier things.

After strapping in and putting on a helmet (would that actually help anything?), we took off into the sky. Part of the price of the experience included an HD video, and I must say, this video was hilarious. It captured every single human emotion there is. I started with happiness and elation and you could see me laughing and smiling huge. Then I switched to awe, you could see me taking photos and videos on my phone. Then I started to look at the ocean in its vastness, a place that usually gives me such peace, and I started to cry. You could see tears rolling down my cheeks as I realized all of the amazing things I can do now that our daughter isn’t with us. I always think about her when I’m at the beach, I don’t really know why. A lot of grieving people mention the ocean seems like a safe place because it is the only thing vast enough to hold such huge emotions. I often think about that. As I watched the waves roll in and the sun setting from my perch hundreds of feet above the water, I again realized how small I am in the grand scheme of things. We turned around toward the land zone, and I was hit with another emotion: fear. The pilot started dipping left and right, gliding in extreme angles to descend back to earth, and you can see me saying “oh my god, oh my god” in the video. Then we finally turned around toward landing, and you could see my relief. What an exhausting emotional ride. I knew as soon as I landed that the video would be a trip.

Overall, I feel the same way I did about paragliding as I did about the whole trip to Peru, I am glad I did it. I felt proud of myself for doing something outside of my comfort zone, and I was glad to make new memories. It was not easy, and it was not without its bumps, but it was an overall fun experience that I don’t regret. I had to navigate my own emotions as well as my friends, which I haven’t really done all year since I’ve been living in a bubble. I can’t say when I want to go on another trip, since I’m still mentally recovering, but it’s not out of the question. Where do you think I should go next?

Me in my life vest that was not going to save me from anything.
Go-go-gocart in the sky!
Byeeee
Selfie!
Flying high, probably crying
Watching the sunset probably crying or yelling oh my god
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Grief and Pregnancy Loss, Travel

Peru Part Uno

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It has been a LONG time since I’ve written a travel blog, so I’m excited to bring you new, world-traveling content this week (and next!). My original plan was to split this blog into two: one where I talked about all of the positives about traveling, getting away with friends, exploring new places, seeing amazing scenery, eating local delicacies, etc., and one where I talked about the difficult co-existing emotions of going on a trip during this #veryhardyear. Then, I was chatting with one of my loss-mom internet friends and she said it was inspiring to see me “finding joy amongst the griefyness,” and that’s why I decided to write this instead as a fully integrated post. The good, the fun, the sad, and the complicated. However, a 2-in-1 post means this one is a pretty lengthy, so strap in. It’ll be posted in two installments, but stay tuned, I included pictures.

Let’s start at the top. Many months ago, my therapist asked me what used to bring me joy so I could try to find it again. I could barely remember, but I told her I guessed it was traveling with friends. She suggested I start small, like a brunch. But I didn’t want to go to brunch, and I didn’t want to see my friends.

In my past life, I traveled in the early autumn every year because I always had extra time off from work. 4 months ago, when I realized I wouldn’t be tied down with a baby this season, and when I realized I’d have three friends having babies in September (blog about this coming soon), I requested a week off from work mid-September. My time-off request was approved. A group of my friends started talking about possible places to go. My therapist was so proud of me. Many, many messages and ideas were sent back and forth. Then in July, I fell off the face of the earth. I deleted my social media and I stopped answering any texts. The trip planning ceased, at least on my end. I couldn’t think in advance even one day, nonetheless a few months ahead, and I couldn’t fathom booking activities when I was just trying to get through the current hour.

Then in August, since I hadn’t been on any group chats, I fired up a group message via text and asked if anyone was still up for going on a trip. I was honest about my lack of planning abilities. I said I’d still be down to travel, but that I just needed someone to tell me where to book a flight and that I’d be mostly useless on planning. Ideal travel buddy, right? Thankfully, my friend stepped up and suggested Peru. It seemed like the ideal location because there were nonstop flights from NY and FL and only a one hour time difference, which was great since we had about 9 days total and didn’t want to deal with jetlag. My friends booked flights. I couldn’t get my act together until the next day, when flights went up $150 but it is what it is. It’s just money #thingsprivilegedpeoplesay.

Anyway, we settled on Peru and we started planning. By “we” I mean, not me. My main contribution was asking other people for Peru recommendations and throwing them in a google doc. The one thing I did was book us an Airbnb for Lima. My friend liaised with a travel group in Cusco and did the extremely heavy lift of coordinating everything with the travel agency. The agency took care of everything from tours, airport pickups, train and hotel reservations, and anything else we could have wanted, like advice on how much to tip drivers. Did I mention this was all done 3 weeks in advance? We had extremely low expectations given that this was a slapdash, last-minute trip, and we were all extremely pleasantly surprised.

Our trip started with three girls (including me) in Lima, and we had zero plans. We had a few lazy days exploring the city. We slept in, left the Airbnb around 11 am, got iced lattes, and went on a few free walking tours. We explored the Huaca Pucllana pre-Incan ruins that are right in the middle of the city. We also did some solo exploring, first at the nearby John F. Kennedy Park. The strangest thing about this park is not that it is named for a US President, but that it houses hundreds of stray cats. One of the friends I was with is obsessed with cats, so of course me made multiple visits to the park. These are not just dirty street bodega cats, thankfully. There is an association, Gatos Parque Kennedy, that cares for, feeds, and provides sterilization for the cats living in the park. There’s even an adoption process in case someone wants to take one home. I don’t think you’re allowed to transport cats across the border, otherwise my friend may have tried to smuggle one home (she did not).

We went on a tour of the historic city including the Gran Hotel Bolívar, the Plaza de Armas, the House of Peruvian Literature, and the Santo Domingo Church. At one point, we passed a woman dressed as a zombie bride holding a dead bloody baby, and she had 3 other bloody babies at her feet. I’m not sure if anyone else on the tour noticed her, but I did. At first, I thought I was making it up so I brought it to my friend’s attention. I said “do you see all those bloody babies?” It was not in my head, they were indeed there, but they were dolls. At another point we went into the Church of San Francisco, where our tour guide said “see all those little toy cars by the statue of Jesus? Each one was put there by a parent for their dead child. Ok! Let’s move on.” He was a fast-moving guide. It took me a few moments to shift gears.

We ended the tour with a Pisco tasting in a souvenir shop, where we tried 8 types of Pisco, and then we were hustled into buying souvenirs (we got adorable pom pom hair ties).

The next day, we went on a free walking tour of Barranco, which started out with a bang because we had to take a local bus there with the tour guide. We were surprised to find out that the buses do not actually stop at stops, but instead just open their doors while moving and expect you to jump out. What an adventure. Thankfully we all survived.

Barranco is known as the artsy neighborhood of Lima filled with murals, street art, and lots of great local food. In Barranco, you can also find the famous Bridge of Sighs, where legend has it, if you’re able to walk across the bridge while holding your breath, your wish will come true. I won’t tell you my wish, but I bet you can guess.

Cat Park Visit 1
Cat Park Visit 1000
Malecon
Love Park
Mosaics
Pre-Incan Ruins
Selfies all day
Very fast-moving walking tour

Throughout my trip to Peru, you’ll see that eating was a main theme. Lima has become a bit of a food destination, and it’s often called South America’s culinary capital. While we didn’t do any of our fancy eating until the last few days of the trip (stay tuned!), we did a good amount of eating throughout the trip. On the front end of the trip, we ate a lot of street food. I was thrilled to be traveling with fellow adventurous eaters, so we tried and shared a lot of Peruvian delicacies, starting with antichuchos (beef heart). We also tried a classic dessert called picarones, aniseed-flavoured doughnuts with mashed squash. We bought a caramel-filled churro from the street, as well as an ice-cream-looking cone, but it was more like marshmallow fluff? Later in Cusco, we tried alpaca and guinea pig (I’ll save you the pictures). Alpaca tasted like bison, guinea pig was a little bit like rabbit. We knew we had to try the classic rotisserie chicken, but since we like to go big or go home, we went to a chicken place and got chicken three different ways. All three were amazing. We also sampled Inca Cola, which I hated, but I don’t like soda so I wasn’t surprised.

In between our eating, we got our steps in by exploring the city. We walked to the shoreline along El Malecon, a cliffside walking path. There’s a mall there as well, called Larcomar. We walked around and chatted while we sat on a bench and were approached by many locals who wanted to practice their English (and ask us for money). It was beautiful and peaceful. There was also a “Love Park,” which was dedicated on Valentine’s Day. It features a massive sculpture of two people embracing, and it’s surrounded by mosaics with romantic lines from Peruvian poems.

Antichuchos
Picaronnes
Alfajores
???
Churros

On our final day in Lima we decided to book an excursion to the Palomino Islands. According to TripAdvisor, they promised we would see Humboldt penguins and sea lions, and that we’d get wet suits and have the opportunity hop in and swim with them. The reviews were less stellar. Most of the recent reviews said that the sea lions were extremely stinky, and that the water was too cold and the sea lions wouldn’t get in. We decided it was worth a try anyway. I don’t know why, but I expected we’d see maybe 10-15 sea lions. I am not exaggerating when I say there were THOUSANDS. I’ve never seen anything like this in my life. We donned our wetsuits and were told to put our feet up in front of us to show the sea lions we were not aggressive. Soon enough, the sea lions were hopping into the water off the rocks and swimming all around us. It was absolutely breathtaking, and not just because they were smelly (they were). Our guide had goggles he passed around, and when I looked under water, they were all around us. Hundreds of them were swimming below and alongside us. It was insane. Truly one of the coolest experiences I’ve ever had. In theory, sea lions sometimes come up to you and kiss/lick your feet, but none of them did this to me. I was a little disappointed but also relieved because they are HUGE up close and intimidating. It was a real adrenaline rush.

In our $2 Uber back to our Airbnb to shower off the sea lion smell, I couldn’t stop thinking about how amazing the experience was, and I started getting soooo sad. My thought process went like this: “wow that was the coolest experience ever. I can’t believe I got to do that. I wish I hadn’t been able to do that. No, that’s not true, I’m really glad I got to do that. I had so much fun. I wish I hadn’t had fun. No that’s not true. I’m glad I had fun. But I wish I had a living child instead. If I had a baby, I wouldn’t have been able to do that. I’d rather have a baby. But I don’t get to choose. I wish I could choose. Why don’t I get to choose? Everything is so unfair. Why am I upset every time I’m happy? Why am I like this? Why can’t I just be happy? I hate who I am now. I don’t want this life.” Etc. etc. in circles. It’s really frustrating to be mad at myself every time I’m happy. Some may call this survivor’s guilt, but it isn’t really guilt. It’s more like a consolation prize. I’m happy I got a prize, but it pales in comparison to the real prize, the one I really wanted. And if I had a choice, I’d give up the consolation prize in a split second for the real prize. But I don’t get to choose, and that just fucking sucks. This was the first of many times during this trip that these spiraling thoughts happened to me.

There were many nights where I cried myself to sleep, but I am a pretty quiet crier, and I think mostly no one noticed even though I was sharing a room. Mornings used to be hard, back when I’d first wake up and realize my life wasn’t all a bad dream. But now, nights are the hardest, especially when I’m away from Chris, the one person who I feel truly understands what we have been through. Even he doesn’t always understand how I feel, but he understands best.

As we prepared to go to Cusco, which is approximately 11,500 feet above sea level, we were told to buy altitude sickness medication from a pharmacy and to start taking it one day before arrival. Since Manhattan is about 250 feet above sea level, I thought it would be smart to be prepared. However, as I googled the side effects, I realized that there may be some contraindications with my blood pressure medications I’ve been on since my pregnancy. I scrambled to message two of my doctors and hoped they would write me back. Thankfully they both did, but one of them recommended I down-dose my other meds, depending on what my blood pressure was reading at high altitude. I probably should have brought a monitor, but I didn’t. I spent the next 4 days worried I’d pass out in the street and end up in a Peruvian hospital. Thankfully, that did not happen, but the constant low-grade anxiety was not ideal. These are all just fun continuing repercussions of having a dead daughter, I guess.

The next morning, after taking two doses of altitude meds, we headed to the Lima airport to take a short, 80-minute flight to Cusco, where we would meet our fourth friend and begin our hiking adventures.  Don’t get it twisted, we did not do the Inca Trail 4-day hike, we took a train to Machu Picchu. But we did do a good amount of walking and stairs over the next few days. We saw some of the most amazing landscapes I’ve seen in my life. I don’t usually go for blog post cliffhangers, but this one is already long, so get ready for Cusco and Sacred Valley adventures next week!

Can you see how many sea lions are behind us?
A moment for the braids.
Before we hopped in to swim with the smellies!
Look at all of the sea lions!
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Grief and Pregnancy Loss

Big Talk About Small Talk

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I used to be the queen of small talk. Also, I used to think everyone could small talk. That is, until I met my dear, beloved husband. He was the first person who pointed out to me that it is a skill, and not a skill everyone has. He, in fact, does not possess it. Don’t get me wrong, he’s extremely friendly, but he really doesn’t know how to talk about nothing. If you get him going on something he loves or has a passion about, say, the newest Apple product, or international politics, or police brutality, he can wax poetic and it’s difficult to get him to stop. But ask him how his day was? He will say “good.” End of conversation.

This blog isn’t about my sweet husband, though, it’s about me, and I have seemingly lost this important gift. I mentioned that Chris was the first person to tell me I was talented at small talk, but many other people have said similar things in different ways to me before. My best friend always used to say, “it’s so easy to take you places because I never have to worry about you, you make friends everywhere!” This is also why I make a great wing-woman. It isn’t really making friends, though, it’s just mindless chat, and finding little things in common with people so you can fill the time with a drink in your hand. I honestly never gave it a second thought, it’s just something I did with ease.

That is, until 6 months ago, when all of that changed. Small talk is hard now because it’s small. And what has happened in my life recently is HUGE. I can’t possibly think about the weather because I’m thinking about my dead daughter. I can’t think about someone else’s work drama because I almost died. I can’t think about how frustrating it is to deal with airline customer service, because all of my friends are pregnant and I am not even allowed to try to be.

I remember two events specifically where I realized I had lost the gift of small talk. The first one happened a few weeks after I left the hospital. I agreed to go on a walk in Central Park to see the cherry blossoms with a few friends. I was pretty nervous about it. It was the first time I was going to see a group of people, and the first time I was going to see a lot of these people post-baby. Walking there, I figured out a strategy: I didn’t want to talk about what happened with me, so I would ask a million questions about them. That’s exactly what I did. And the truth of small talk is that really only one side needs to talk, and the other side can just listen and ask a lot of questions. The main problem with this is that the question-asker is supposed to care about the answers, and I simply did not. For almost two hours around the reservoir in Central Park I heard about my friends’ dating woes, their job interviews, their vacation plans, all of the little things in life. But they were all just that: little. Meanwhile, all I heard in my head was the BIG thing in life. My empty uterus.

The issue is, when you don’t care about little things, but you don’t want to talk about big things, it makes socialization really difficult. The second event I remember, again I was in a group of people. We had planned a low-key short walk through a street fair and gelato outing. But it turned into a multi-hour affair. I didn’t want to talk about “the big thing” but I realllly didn’t care about everyone’s small things. All I wanted to do was go home and cry. And sleep. It was so exhausting feigning interest while also being constantly on edge that something about me might come up. I danced around it to try and remain engaged. I remember one person talking about their extremely high medical bills and I chimed in to mention that I had already hit by $5750 out of pocket max for the year. Besides that, I don’t remember any of the details of the conversations, since I was mostly thinking about going home, but not knowing how to remove myself from the situation.

When I leave events like that, and I realize I’ve basically blacked out my friends’ conversations and details about their lives, it makes me feel like a horrible friend. But the reality is, I just don’t care. In the grand scheme of things, all of the small things just feel so small! My therapist always chides me for my newfound social isolation, but it feels like a lose-lose situation when I’m around people. The cycle goes like this: I ask questions, I try to care, I fail at caring, and I feel like a shit friend.

I have noticed that this phenomenon is even more magnified when I speak to my pregnant friends. I, unfortunately, have 3 pregnant friends. Four before last weekend, but now I have three pregnant and one with a newborn. I could write a whole blog (or series) about how I am navigating these friendships, but for now, let’s just say, small talk is EXTREMELY difficult. For them, the main thing in their lives is being pregnant, having a baby soon, and the complete role-adjustment of becoming a parent. For me, the main thing in my life is not being pregnant, having a dead baby, and the complete role-adjustment of being an almost-parent, to being an empty, baren, not sure if I’ll ever be the parent of a living child. My pregnant friends don’t want to talk about their big things because they don’t want to upset me, and I don’t want to talk about my big thing because I don’t want to terrify them with my story. So, what does that leave for conversation? Small talk. Dumb work drama. Photos of their pets. Weather. Memes. It all feels extremely meaningless.

I actually pointed this out a while ago to my pregnant friend. Last November, she had gone through a pregnancy loss, and I was still pregnant. I planned not to talk about my pregnancy at all when we had dinner, but she kept asking questions, so I followed her lead and answered them as tersely as possible. When we saw each other in July, she was pregnant again, and I was not, and I was asking her questions. She said she hadn’t been talking to me about it because she didn’t want to upset me, but I explained that I had no interest in talking about the weather and I wanted to know how she was really feeling. This is all extremely complicated to navigate, and as the loss mom, I know I have to drive the conversation since I am the one whose feelings are being protected.

As for my non-pregnant friends, I have been trying as hard as I can to come back to my friendships and care about their lives. That sounds bad in writing. I find myself more and more like Chris, trying to get into deeper conversations that feel meaningful. Surface-level conversations now feel empty to me, so I have been working to have more one-on-one time with friends where we can actually talk about the real stuff. I’m seeking out spaces where I feel comfortable laughing, but also feel ok if I shed a tear. Maybe I don’t care that their Instacart order delivered the wrong milk, but I do care that their egg freezing cycle wasn’t as successful as they had hoped. Maybe I will zone out if they tell me that their husband left his socks on the floor 5 days in a row, but I will try hard to listen and relate if they tell me that their in-laws are driving them insane because they haven’t visited enough. I don’t want my friends to shy away from talking about their problems because they know my problem is HUGE. I may not be the queen of small talk anymore, but I am working toward being the queen of empathetic listening.

I am going on my first girls trip in 10 days. If I told you I was excited and not anxious about it at all, I’d be lying. It’s a huge step for me to hang out with multiple people for multiple days, with many many hours of conversation. As I move forward, I am trying to cultivate time and space with friends who can be there for both ups and downs. I know that all of my friends have their own struggles, and that we can hold space for both complaining about a long hike, and talking about grief and loneliness, all in the same sentence. For that, I’m grateful.

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Grief and Pregnancy Loss

Say Something. But Not the Wrong Thing.

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After we lost our baby, we heard from a lot of friends and family. We received calls, texts, emails, flowers, Instagram DMs, you name it. Some things that were said were great, and some were… not so great. I’ve been waiting for a while to write this post so I could base this on my own experience of things I heard, instead of the usual list. I’m almost 6 months post loss, and I have heard it all. That said, I have to shoutout to my absolute favorite podcast ever, As Long As I’m Living. They did an episode called “I Can’t Imagine,” which goes over a more general list of do’s and don’ts, and in general, I agree with everything they said. There’s one place I differ but I’ll get to that later.

This post requires a very important preamble. I want to thank EVERYONE who reached out to me. I know it is far easier to say nothing than to say anything. If you read this and you identify yourself as someone who said the “wrong” thing, do not fret. Death and mourning and grief are complicated and we, as a culture, do not talk about it openly. It is uncomfortable and it is hard to know what to say. But you know what’s worse than putting your foot in your mouth? Not acknowledging the loss at all. It means so much to a grieving person to hear from friends and family. And sometimes when I heard from a friend on a particular day, absolutely nothing felt like the right thing to my ears, but a week, a month, or 6 months later, I do remember each person who texted to check in, commented on my Facebook post, or sent me a 5-pound bag of gummy bears.

I am not writing this post to chastise people who put themselves out there and tried to console me. I also know that unfortunately, I am not the only person you will meet in your lives who will go through a loss, whether it is a child, parent, sibling, or close friend. I am writing this as a first-hand account of what felt best to me, so you can take this advice and use it in the future. I want this to be a practical and useful tool.

I will be the first to admit that before this happened to me, I had NO idea what to say. I look back at the way I acted when I had friends lose parents and I cringe. I did not understand. I said the wrong things, or I said nothing at all. I forgot important dates. I didn’t acknowledge how hard Father’s Day must be for them. Etc. etc. etc. I hope that my own experience can deepen my empathy for others and help me react in kinder ways in the future to help my friends and family.

I am not an “expert.” But I can tell you what made me feel slightly better, and what made me feel slightly worse.

What not to say:

For starters, PLEASE do not call. If you are very close family, I understand calling, but anyone else, please text. In the early days, I was fielding so many calls from unknown numbers: doctors, hospitals, pharmacies, social workers, support groups, peer counselors etc. I felt that I needed to answer my phone no matter what, and I was often not in the mindset to be screening the calls. It put me in an extremely awkward position when I picked up and all I wanted to do was hang up. I once had a call from a distant family member who called from her work number. Her work, unfortunately, shared a word with the place where our daughter was being buried. I saw the caller ID and I picked up thinking it was a call about the details of burial. I was stuck on the phone for 5 minutes. Eventually, since I was mostly answering in one-word answers, she understood and ended the call, but it was excruciating.

Now on to the actual words you may say. Let’s start with the worst and most common mistake of all. DO NOT SAY “AT LEAST.” There is no “at least.” At least nothing. My child died. I almost died. I find that people start off strong with “I’m so sorry” or “This is horrible,” then they go on to the “at leasts.” As my favorite podcast hosts Judith and Alina say, don’t say anything that could end with “…so don’t be so sad.”

At least you didn’t die! … so don’t be so sad.

At least you can go on vacation now! … so don’t be so sad.

At least you have a partner who loves you! … so don’t be so sad.

At least you’re young! … so don’t be so sad.

At least you know you can get pregnant! … so don’t be so sad.

At least you have more time to save money! … so don’t be so sad.

At least you won’t be super pregnant in the summertime! … so don’t be so sad.

At least you never got so big or got stretch marks! … so don’t be so sad.

I could sit here and go down that list individually and tell you why NONE of those were “at leasts” in my mind, but as a general rule just don’t say it.

Don’t say, “you’re so strong.” This one is my personal pet-peeve. I absolutely despise this. DESPISE. If you take one thing away from this blog, please, please don’t say this. One griever to another can say this but a normal person to a griever cannot. I heard this so much, and I started to get so upset that I started saying in response, “what’s the alternative?” I was always met by crickets. This is my life now. My reality. I wake up every day and this is what I am faced with. Is that a choice? Am I strong for waking up? I guess that means the alternative would be… not waking up. It doesn’t seem like I am “strong” when you put it in that light. When someone says that I am strong, it feels as if being strong is a choice. You choose to go to the gym, you choose to lift weights, you want to be strong. Well, I didn’t choose this. In fact, I’d choose anything BUT this. Don’t say this.

Unless you are very close with me, don’t cry. If you are family or a best, best friend, it’s ok, we can grieve this loss together. It is a loss for both of us. If we are not that close, please don’t cry. It puts me in an awkward position where I become the consoler. Where I have to say, “it’s ok,” and it’s not ok. Also, it makes me feel like I should be crying. Don’t get me wrong, I cry a lot. But in a moment where I am not crying, where I am maybe relaying the news to the 300th person, it feels strange to have the other person cry without me.

Here’s another one reserved for only close family or friends. Do not say, “call me if you need me.” I won’t. Why would I? It’s strange to say, “I’m always a phone call away” if I have not called you in 10-14 years since I was charged per text message. There’s a big exception here if you have gone through a similar loss. I want to leave interpretation up to you on what “similar” means; if you had a great grandmother die at the ripe age of 92, that is not similar. But if you had a nearly 3rd trimester pregnancy loss? Even if we aren’t too close, I may very well take you up on the offer to chat.

I feel like this goes without saying, but I heard it a few times, so I will say it: do not comment on appearance or body shape. It is irrelevant and likely hurtful. I know people may mean well when they say I look thin, but all it reminds me of is how I should be bigger. I am aware I have been subsisting on gummy bears and naps, but there is no need to mention it. I have no baby bump, no “mommy pouch,” no external reminders about what happened. That is hard. And even if I did have those things, it would be hard, too! Would I rather look like I was pregnant and not have a baby? Or would I rather look like I wasn’t pregnant and not have a baby? Neither! I’d rather have a baby. Even saying, “you look great” carries huge emotional baggage. Should I look worse? What does a person who loses a daughter look like? Am I not sad enough? There’s no reason to talk about appearance.

Here are a couple quick things not to say, ripped from the headlines a.k.a. things people actually said to me. Do not ask what happened in a public forum. I will tell you if I want. I certainly will not tell you if you comment on a public Facebook post. If I wanted to talk about it there, I would have put it in the caption. Do not ask me if it was a difficult pregnancy. My baby is dead. That feels like the most difficult pregnancy around, no? If you are asking me if I barfed every day, I can tell you, I’d rather barf and have an alive-baby. Do not say congratulations. Read the caption, y’all. If I was announcing a living child, I would have said that. I had one person who commented this, realized her mistake later, and messaged me directly to apologize. Of course, I knew she had written it in error, but I still appreciated her private message when she realized her mistake. The other three people who wrote it probably still think I’m at home with a newborn.

This seems obvious, but for the sake of comprehensiveness, I’ll remind you that platitudes are annoying, pointless and hurtful. I’m not going to waste any time here explaining why you should never say “she’s in a better place” or “everything happens for a reason,” or “God needed another angel.” My eyes could not roll higher into my head. Do not say any of those things.

I’ll close with the only thing I disagreed with Judith and Alina on. They say not to say, “I can’t imagine” or “I can imagine.” Personally, I’m fine with “I can’t imagine,” because truly, you cannot. As bad as you think you imagine it is to be hopeful and excited one moment and then be devastated and almost dying the next, it’s worse. Saying “I can’t imagine what you’re going through” is a fine thing to say. I’d say, “yeah, I hope you never have to.” You cannot imagine, nor do I want you to!

So, if you aren’t supposed to say any of those things, what can you say? I’m so glad you asked. I have thoughts.

What to say:

If you text or email, don’t expect a reply. I saw all of the messages in those first few weeks and I “hearted” or replied when I could. Every text that came in would set me off crying again, and sometimes I just needed to hide my phone under a pillow until I could handle it. Include the words “no need to reply” in your text. It gives an easy out. And if I feel like replying, I will.

Another related piece: it’s never too late to reach out. A lot of people will text in the first few weeks, but a grieving person will be grieving literally forever. For as long as they live and their person isn’t living, they will be grieving. Don’t feel like you missed the window. It is never too late to check in and say, “I have been thinking about you.”

Do say, “I’m so sorry.” This is an easy one if you are uncomfortable with loss. It’s a full sentence. Do not follow it up with anything else. Just “I’m so sorry.” I will probably say, “thank you.” The end.

Another great easy one, “this is so terrible/horrible/painful.” Acknowledge how bad it is. It’s bad. There’s no way around it. Having someone recognize how bad it is helps. For me, hearing someone say this helped me take a step back and be like, “Yea you know what? This IS fucking horrific. I am totally justified in becoming one with the couch and going through a whole box of tissues in a day.”

Related… curse. Yep, I said it, use those expletives. Maybe this one is more me-specific, but the one Facebook comment that made me laugh out loud and then be like “YESSS!!” was when someone wrote “FUCK Emily I am so so so sorry.” I was like “THIS IS EXACTLY HOW I FEEL. FUCKKKK!!!”

Do mention the person’s name who died. I haven’t shared our daughter’s name yet on the blog, but I will eventually. I have a whole post coming about how and why we decided to name our daughter. For most people who lose someone, you will know their name. Use it! I remember the first time I heard my daughter’s name come out of a friend’s mouth, it made me cry happy tears. I was so thankful that she was acknowledged as existing. Sometimes it feels like this whole pregnancy and loss happened in my mind, so to hear her name, and know that she truly existed, it meant the world.

Finally, ask me if I want to talk about it. Most times, people tiptoe around the subject. They don’t know if I want to talk about it, or if I want a completely baby-loss-free coffee date. But trust me, if you’re awkward, I can sense it. The easiest thing to do is just ask. “Do you want to talk about it?” The answer may be different on one day than it is on another. My moods fluctuate and sometimes I want a “normal” happy hour, but sometimes all I can think about is my daughter and all I want to do is talk about her. If a grieving person does choose to talk about it, thank them for sharing. It takes extreme vulnerability to talk about loss (cough cough, like this blog), so to know a friend is listening and wants to hear more, and recognizes your bravery in talking about it, it’s meaningful.

I hope this post was helpful not just for talking to me, but for talking to anyone else in your life going through a loss. Three rules of thumb to take away:

  • Don’t call! Text 😊
  • Saying something is better than saying nothing
  • In conversations, let the griever lead, and listen
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